Global Hemophilia Report

PODCAST // A monthly audio journey thru the science and discoveries driving hemophilia research. Sr. Advisor: Dr. Donna DiMichele.

[Global Hemophilia Report @GlobalHemReport]

We asked Amy Board what she would change about the @wfhemophilia World Congress: bring more community voice into the clinical space through storytelling.

https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS

#bleedingdisorders #clinicalresearch #hematology

[Global Hemophilia Report @GlobalHemReport]

@wfhemophilia World Congress made one thing clear: The bleeding disorders conversation is still far from equal and it is shaping lives in different ways around the world.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch

[Global Hemophilia Report @GlobalHemReport]

Imagine having a treatment plan today and losing access tomorrow. Learn why access is one of the most urgent challenges facing the bleeding disorders community.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch #hematology

[Global Hemophilia Report @GlobalHemReport]

The future of bleeding disorders care is being written right now. This episode of the GHR explores what's changing, what's working, and what challenges remain.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch #hematology

[Global Hemophilia Report @GlobalHemReport]

Clinicians are debating gene therapy and AI, while families still fight for diagnosis. This week GHR explores what's shaping the future of bleeding disorders care today.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#clinicalresearch #hematology

[Global Hemophilia Report @GlobalHemReport]

A child with hemophilia B, stuck on bypassing agents and barely able to play—then rebalancing agents changed everything. Hear Dr. Carpenter on the latest episode of GHR.
https://t.co/MRz7jBwUqW

Supported by @sanofi
#clinicalresearch #hematology #GHRpod #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

CJ Hansen brings both his nursing expertise and lived experience with severe hemophilia to the Global Hemophilia Report.
https://t.co/MRz7jBwUqW

Supported by @sanofi
#clinicalresearch #hematology #GHRpod #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Too much clotting is dangerous. Too little causes bleeding. On the latest GHR, Dr. Hermans dives into how rebalancing agents strike the delicate middle ground for certain patients.
https://t.co/MRz7jBwUqW

Supported by @sanofi
#clinicalresearch #hematology #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Rebalancing agents are changing the game in hemophilia care. Hear Drs. Hermans, Carpenter, Hansen, and DiMichele break down the science.
https://t.co/MRz7jBwUqW

Supported by @sanofi
#clinicalresearch #hematology #GHRpod #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Communication is key, and for Megan and the Nigerian community, keeping patients and doctors at the forefront is top of mind.
https://t.co/MRz7jBwUqW

Supported through advertising by @SanofiUS
#hemophilia #bleedingdisorders #clinicalresearch #hematology #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Dr. Amy Dunn highlights why keeping the community connected is essential—patient and family voices drive government decisions and must be included in every conversation.
https://t.co/MRz7jBwUqW

Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch

[Global Hemophilia Report @GlobalHemReport]

Dr. Khair and Dr. O’Connell discuss the latest insights in hemophilia care including therapies enabling children to grow up bleed-free.
https://t.co/MRz7jBwUqW

Supported through advertising by @SanofiUS
#hemophilia #bleedingdisorders #clinicalresearch #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

This season opener explores comprehensive hemophilia care in 2025: what's working, what's strained, and what needs to evolve.
Listen Now! https://t.co/MRz7jBwUqW
Supported by @SanofiUS
#bleedingdisorders #clinicalresearch #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Thank you to the @@bdsumhac for featuring our episode on Mental Health Challenges to Progress in Hemophilia in their list of resources to improve access to support!

More from GHR ➡️ https://t.co/MRz7jBwUqW

#bleedingdisorders #clinicalresearch #hematology #raredisease

[Global Hemophilia Report @GlobalHemReport]

Patrick and Dr. Donna DiMichele wonder what have we learned, what still can’t be measured, and what might the next forty years hold in #hemophilia research?
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Dr. Donna DiMichele joins Patrick James Lynch to explore how science, data, and humanity have shaped the story of hemophilia on the latest episode of GHR.
https://t.co/MRz7jBwUqW
Supported through advertising by @sanofi
#bleedingdisorders #clinicalresearch #hematology

[Global Hemophilia Report @GlobalHemReport]

Dr. Donna DiMichele joins Patrick to trace the hemophilia community’s journey through crisis, beginning with the HIV epidemic of the 1980s.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch #hematology #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

Host Patrick James Lynch reflects on turning forty…and on forty years of life with hemophilia — joined by Dr. Donna DiMichele.
https://t.co/MRz7jBwUqW
Supported through advertising by @SanofiUS
#bleedingdisorders #clinicalresearch #hematology #GHRpod #bloodstreammedia

[Global Hemophilia Report @GlobalHemReport]

When researchers and clinicians come together nationally, rare disease studies can build on each other to set new care standards. Dr. Donna DiMichele breaks down this collaborative approach.

https://t.co/MRz7jBwUqW
Supported by @SanofiUS
#clinicalresearch #hematology #GHRpod

[Global Hemophilia Report @GlobalHemReport]

Maria Santaella from @nbd_foundation explains why including women in studies is critical—and how we can ensure non-HTC clinicians take these findings seriously.
https://t.co/MRz7jBwUqW

Supported through advertising by @SanofiUS
#clinicalresearch #hematology #GHRpod