Iain at his ‘Happy Place’ - @clublasanta - in 2019, where he discovered what was to become a passion - #Crossfit and met @LucyAnneCharles - sadly he never got to visit again as 2020 was the pandemic and 2021 the start of his extended stays in hospital. @AdaptiveCF_UK@AtaxiaUK
Tribute to Iain Fryatt, 1987 - 2024. https://t.co/ePlRibx5GU Iain was the 1st person with Friedreich’s Ataxia to ‘climb’ @Kilimanjaro in a #mountaintrike to raise money to help cure his condition @AtaxiaUK Sadly passed away in December at the young age of 37.
BREAKING NEWS! Committee for Medicinal Products for Human Use has recommended a market authorisation for Skyclarys® for people (16 and older) with Friedreich’s ataxia (FA) in the EU. Read more: https://t.co/cLXYXGnmrP
Now this is A Perfect Start To The Day !!
Thank you @ReataPharma Thank you @CureFA_org for helping push this through Thank you @AtaxiaUK for your constant campaigning.
Thank you @AtaxiaCentreUCL too, you must be delighted to hear this.
‘Frabjoulous Day, Calooh, Callay !!’
We are delighted that the @US_FDA has approved @ReataPharma's Omaveloxolone for the treatment of adults with Friedreich’s ataxia (FA) in the US. For more info, visit: https://t.co/gL6n6FqNSA
“We ought to take pride in the fact that, despite our financial and economic anxieties, we are still able to do the most civilised thing in the world - put the welfare of the sick in front of every other consideration”
- Nye Bevan
Happy Birthday NHS. Labour’s greatest legacy.
@_richardcbrown I know that both @wembleystadium + @Arsenal considered wheelchair accessibility, apart from the carpet in the lounge areas!
Podiums located amongst the other supporters, provide good sight lines.
Great memories of fans turning and high fiving @IainFryatt speak for the inclusivity
@exitthelemming I understand Charles Hawtrey always signed his autographs ‘John Wayne’ … but I think that was out of sheer cussedness rather than a case of mistaken identity 😏