Top Tweets for #ACiChat
A4: #ACIChat low energy, migraines, vomiting, joint pain, but symptoms aside, it;s this need to not validate what my body is going through because the world won't accommodate for my rest
Just wrapped up hosting the first revived @ACICommunity #ACIChat! That’s the most engaged I’ve seen ACI since I started and I absolutely love it.
I’ll be RT’ing “late” replies for about another 20 minutes tonight, then ASAP tomorrow.
This was awesome.
A5b: #ACIChat I thought I had good plans and good at-home rehab options, but meh it just sucks sometimes. But on how I can help others, I always love to talk science. I love to break down complex problems and make them understandable. Let me know if I can help! 3/Fin
A5a: #ACIChat even though I say I use the products for sleep and pain and I'll stop when I have proper management, I get a good mix of alarm and nonchalantness. Regardless, I don't want to be in pain but I can't control what my tendons are going to do 2/
A5: #ACIChat I think for me, it seems like the best at home remedies/treatments for tendinitis. It seems like I'll be cursed with this for longer than I care for and I can't get proper pain management because of some of my other home remedies [QT] 1/
A4b: #ACIChat how much energy/spoons would I have to get everything done. It's both complex time and energy management and making sure I'm taking care of myself first and foremost. 3/Fin
A4a: #ACIChat even today, I had to figure out how much bracing I wanted for my ankle, how far I might have to walk from the parking lot to the dentists office if there was no handicap spots open, what mobility aid I'm going to use to get around 2/
A4: #ACIChat it keeps my days in flux. I'm unsure how I'll feel from day to day. Not sure what is going to break down and fail to work. How fatigued or energetic I'll be. I haven't lost too much of my dependability yet, but I wonder if I will. [QT] 1/
A5: This is why I love my work with ACI so much. We are working tirelessly to improve equitable access to healthcare. And I love it! #ACIChat
A4: Got a little caught up replying to new people trickling in, which is awesome!
Being disabled significantly lowers my productivity and leaves me in near constant pain. It’s gotten better over the past little bit, but it’s still there. #ACIChat
#ACIChat
I struggled with feeling lost on the best way to care for myself when first diagnosed. Didn’t feel fully supported or educated by my health care team back then.
A1c: #ACIChat I don’t have to worry about going to a different pharmacy to get cheaper medication. Hell I could easily have all my medications mailed to me including opioids. Okay I think I’m done for now. 😅 4/Fin
A1b: #ACIChat I get coordinated care for my complex healthcare needs. Medical students are taught culturally and racially competent health needs and can figure out what different skin diseases look like on dark skin. 3/
A1a: #ACIChat I don’t have to fight with insurance about medically necessary procedures/medications. I don’t have to worry about emergent care when it comes up. I have a multitude of options and care continuity if I just don’t vibe with a practitioner. 2/
A1: #ACIChat wow this is a great question. #HealthEquity means everyone has reliable, top of the line, affordable, patient centered healthcare. I get the same urgency as old white cis/het white men. I get the same battery of tests. I get pain management when I need it. [QT] 1/
A3: Ooooh, this is a good one that I honestly forgot I wrote lol.
Probably the fatigue and occasional crippling hip pain. It’s just… so hard and random and chaotic and ugh. #ACIChat
A2: Having community is everything. There are so many people I’ve met here that just click with me. And the community is (mostly) extremely supportive if I’m going through something, always here to listen and offer advice if I need it. Yeah, I just love community. #ACIChat
A1: To me, health equity means ensuring everyone has access to healthcare that benefits them. We don’t really have a lot of equitable health right now, imo, because there are so many barriers. But, I’d really like to see the equitability of health improve. #ACIChat
A0: Hey y’all, I’m Derek! I’m actually running this chat right now. Not really a fun fact, but it’s what I’m up to at the moment! What about y’all? #ACIChat
Kicking off the first revived #ACIChat over on @ACICommunity in TEN MINUTES! I hope you’ll come join us!
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