Top Tweets for #BLeedingDisorders
What do a history-making Channel swim and ITP Awareness Month have in common? They’re both bringing powerful stories from the bleeding disorders community to BloodStream.
https://t.co/wxC4sqll06
Sponsor: #Takeda
#bloodstreammedia #raredisease #bleedingdisorders
From preparation to action. 📣
HFA advocates took their stories and lived experiences to Capitol Hill, meeting with congressional offices and representing the bleeding disorders community.
Advocacy Is in Your Blood.
Join BDAN:
https://t.co/S1ETEu4A1g
#BleedingDisorders
FFF Enterprises is proud to support hematology care teams with dependable access to critical plasma and specialty therapies, backed by a secure supply chain.
#ITPAwareness #BleedingDisorders #Purple4Platelets #FFFEnterprises #HelpingHealthcareCare
“You’ve opened a door for us.”
Mohammad El Khorassani, MD, recalls the hope WFH support brought when #hemophilia treatment was scarce in #Morocco.
Read the story: https://t.co/cRjx9m0Q3o
#BleedingDisorders #TreatmentForAll
📣 Your voice matters.
Join us on Oct. 13 at 7 p.m. ET for Your Voice Matters: Advocacy Basics for the Bleeding Disorders Community.
Learn the basics and how you can use your voice to make a difference.
🔗 https://t.co/FxVdO8Wxym
#Advocacy #BleedingDisorders
@turkhemoder Discover how #NovelTreatments are shaping the future of care for people with #BleedingDisorders.
📅 Register for the #EHC2026 Conference now! 👇
https://t.co/R4lO6Mp1Cy
@turkhemoder 💬 A panel discussion closes the session, bringing together different perspectives on the opportunities & considerations surrounding emerging treatment strategies in #BleedingDisorders.
🌍 Join us at the #EHC2026 Conference in Istanbul, Türkiye, hosted by @turkhemoder. As treatment options continue to advance, new approaches are opening up possibilities for more personalised & effective care for people with #BleedingDisorders.
Today, we hit the Hill! 📣
Bleeding disorders community advocates from across the country are in D.C., bringing their stories and lived experiences to Capitol Hill.
Add your voice. Join BDAN:
https://t.co/S1ETEu4A1g
#AdvocacyIsInYourBlood #BleedingDisorders
Check out this week's News Brief, including information about the upcoming Superhero Walk and Hispanic Heritage Month!
Click here to learn more:https://t.co/ozm6WPlP9v
#bdff #bleedingdisorders #newsbrief
Meet the #Hemophilia Society of Bangladesh, a WFH NMO serving 4,300 people with #BleedingDisorders. From patient support to national advocacy, HSB is helping improve care across #Bangladesh.
Read the latest NMO profile: https://t.co/4CzmStotki
#TreatmentForAll
@DougallDentist Find out more about the EHC's work on #DentalCare: https://t.co/BNCrQo1K9h
#OralHealth #BleedingDisorders #Haemophilia #MultidisciplinaryCare
@DougallDentist Prof @DougallDentist paid particular attention to women, whose #BleedingDisorders are too often recognised late. Thank you, #EDHF, for this platform. Reaching oral health professionals is key to safe, timely dental care for everyone living with a bleeding disorder. 🤝
@DougallDentist At EHC, we focus on #OralHealth as part of #MultidisciplinaryCare, because for people with #BleedingDisorders it is a matter of safety, prevention & quality of life. Untreated dental problems can lead to pain, infection & serious bleeding complications.
🦷 On 18 September, Prof @DougallDentist spoke at the European Dental Hygienists Federation (#EDHF) Annual Meeting in Rotterdam on behalf of EHC. Her message to dental hygienists: you can help spot possible undiagnosed #BleedingDisorders & encourage referral to a haematologist.
@WillMcKeown This talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ https://t.co/5I4Sxv0dkG
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️
So great to be back at the @Phys_Academy and reconnect with mentees, mentors and colleagues 🩸 I highly recommend this course for all clinicians interested in learning about #bleedingdisorders
In #Burundi, the WFH and SOBUH trained 60 health care professionals on identifying and diagnosing #hemophilia and #BleedingDisorders as part of the WFH Cornerstone Initiative. NMO board members also received training on governance, conflict management, and volunteer engagement.
For Benny Sorensen, MD PhD and CEO of @Hemab_Tx, innovation isn’t just about hitting drug development milestones. It’s about creating visibility.
https://t.co/wxC4sqll06
Sponsor: #Takeda
I’m Fine is presented by @SanofiUS
#bloodstreammedia #raredisease #bleedingdisorders
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