Top Tweets for #DANLOS
If I didn’t draw Carlos soon I would’ve been shot.. #danlos (all my Interpol art is finished at midnight)
What is the association between patients with #hypermobile #Ehlers-#Danlos syndrome and hypermobility spectrum disorder with disorders of mast cell activation? Great review from Hugo Penny, Imran Aziz & @c_lam78 in current opinions of gastroenterology
https://t.co/eW5PrctlH4
Natürlich haben wir auch etwas zum Tag der seltenen Erkrankungen für Euch. Kennt ihr schon das Ehlers-#Danlos-Syndrom?
#RareDiseaseDay2024 #RareDisease @Ehlersdanlos @POTSDys
https://t.co/Fm598B2HSh
Female patients face more scrutiny, unfortunately!
https://t.co/UbP7P4Wbgj
#interstitial #cystitis #endometriosis #CRPS #Ehlers #Danlos
May Is #EDS and #HSD Awareness Month. SD author @IsobelKnight2 has created a number of posts on our blog about #Ehlers-#Danlos Syndrome new research, co-morbid conditions and management strategies.
Read 'What is Hypermobile Ehlers-Danlos Syndrome?' here: https://t.co/1rZawAboLW
https://t.co/Ye9oQMwqC9
#novel #postural #orthostatic #tachycardia #syndrome (#POTS)-#related #diagnoses including #fatigue #dysautonomia #Ehlers–#Danlos #yndrome #mast #cell #diseases...
prior to and after #SARSCoV2 infection and #COVID19 #vaccination
This Friday, we will be thrilled to welcome Dr. Jeong as the final speaker in our Spring 2022 #Graduate #Seminar #Series as she gives insight on #Biomechanical #Phenotyping of Children with Hypermobile #Ehlers-#Danlos Syndrome. More here: https://t.co/DkiMxB4XAu
👇 dit dus. #Ortostatische #intolerantie/#POTS/#Dysautonomie, komt niet alleen bij #ME/#CVS voor ook bij de #Ehlers #Danlos #Syndromen, uit retrospectieve studie/verkennende studie (2021) bleek POTS aanwezig bij 90% vd #EDS patiënten. Dit is dus 👇#zorginNederland 🤷♀️
In NL schijnt men nog steeds te geloven dat OI/POTS (zoals bij MECVS) niet hoeft te worden onderzocht, want anders zit het lichaam niet tussen de oren en staat dat herstel in de weg. Een stoornis van het autonoom zenuwstelsel mag gemist worden om de mythe in stand te houden.
peer-reviewed artikel over #anesthesie / #chirurgie bij de #Ehlers-#Danlos-#syndromen. Waar elke #chirurg en #anesthesists rekening mee dient te houden. https://t.co/mF3YeHdCAp 👇
I published the below peer reviewed article with Pradeep Chopra on anesthesia / surgery in Ehlers-Danlos syndromes.
CRPS is also an important consideration (esp w EDS) for foot or hand surgery / injury.
https://t.co/QT8WB3oEmN
met o.a. #POTS, #Chiari #Malformatie, #Ehlers #Danlos, #Tarlov #cysten, #chronische #migraine, #Chronisch #Vermoeidheid #Syndroom, #Fibromyalgie met verschijnselen van een lekkage van het ruggenmergvloeistof.
Post-durale punctie hoofdpijn versus spontane lekkage vt hersenvocht
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