Top Tweets for #EHCommUNITY
That's a wrap on the #EHCLeadership Conference 2026! 📸 Three days of discussions, workshops & community in Brussels. Thank you to all National Member Organisations, speakers & sponsors who made it happen. See you next year! #EHCLC2026 #EHCommunity
Our Committees & Working Groups are in the spotlight at the #EHCLeadership Conference 2026! #WomenAndBleedingDisorders, #VonWillebrandDisease, #ERIN, #Youth, #MentalHealth — find out more about each Focus Area here 👉 https://t.co/kGUEsieh2t
#EHCLC2026 #EHCommunity
Day2 of the #EHCLeadership🩸Now in a panel discussion on HTA, with Roberta Sadauskaité, who will explain the importance of participating in HTA, and Arnoud Plat, Miguel Crato, and Vasileos Kapouranis, who'll share examples from their respective countries. #EHCLC2026 #EHCommunity
2° day of the #EHCLeadership 2026 Conference is now underway! 🩸First up: a panel discussion on treatment and access for all #haemorrhagicdisorders, featuring Dr Yesim Dargaud and Dr Cristina Catarino. Two excellent presentations – thank you to both!! #EHCLC2026 #EHCommunity
Day 2 of #EHCLeadership Conference 2026 is underway! 🩸First up: a plenary discussion on Treatment and Access for all #BleedingDisorders, with Dr Yesim Dargaud & Dr Cristina Catarino. #EHCLC2026 #EHCommunity
Today we said farewell to Miguel Crato, stepping down as EHC President after years of outstanding leadership. ❤️ And we warmly welcome Tatjana Marković as our new Interim President until October 2027! #EHCLeadership #EHCLC2026 #EHCommunity
It's time! 🙌 The #EHCLeadership Conference 2026 starts today in Brussels! Three days of learning, sharing & community. Follow along for live updates! 🇧🇪 #EHCLC2026 #EHCommunity
🗣️Great energy at our NMO Meeting during #WFHCongress2026! The EHC shared key updates on governance, upcoming General Assemblies, 2026 events across Europe, and ongoing projects & surveys shaping future advocacy. A strong moment of connection for the #EHCommunity 🌍
⚡ It's TODAY! Don't miss our #ThisWay Webinar "Strength in Motion" at 18:00 CET. Clive Smith, President of @HaemoSocUK, shares his journey to marathons & triathlons.
#EHCommunity
https://t.co/ilbkD8aqcy
⚡ Ready to start YOUR journey? 👉 Join our #ThisWay Webinar "Strength in Motion" on Feb 19, 18:00 CET. 🗣️ Clive Smith, President of @HaemoSocUK, shares his journey to marathons & triathlons. 📝 Register: https://t.co/VY6jGUUdGN
#EHCommunity
📢 Essential new #VonWillebrandDisease resource! The EHC Handbook on #VWD covers symptoms, diagnosis, treatment & more. 🎯 Perfect for EHC National Member Organisations, patients & families. Get your copy & share: https://t.co/zpIFwZXlPm
#EHCommunity
📣 Gertu was told "girls can't have bleeding disorders." Diagnosed with severe #Haemophilia A at 11, she learned to advocate for herself & thrive. ♥️ Read her #ThisWay story 🔗 https://t.co/gkkHXvXd3G
#WomenAndBleedingDisorders #EHCommunity
📸 Relive the magic of #EHC2025! All the best moments from three unforgettable days in Vienna are now live on our Flickr. Download your favourites and share your memories with the #EHCommunity! 👉 https://t.co/rMMTWrP6Kz
🎉 CONGRATULATIONS TO CZECHIA 🎉
We're thrilled to announce the winner of our National Member Organisation (NMO) Lottery draw at #EHC2025: our Czech NMO has won an additional registration to the EHC Leadership Conference 2026! 🎊
Thank you to all participants!
#EHCommunity
🩸 Proud to join the first #ABGEC (@FedEmo_Giovani regional chapter) event in Padua, Italy! 🇮🇹 70 participants came together for an inspiring day focused on #BleedingDisorders, community connection and learning. Thanks to the organising committee! 👏
#EHCommunity
📸 Official photos from our Leadership Conference 2025 are now on Flickr!
Three inspiring days in Brussels with 80+ participants.👇
https://t.co/mH7lWbzZza
Thank you to everyone who made it unforgettable!
#EHCLC2025 #EHCLeadership #EHCommunity
🌟 We have a new #ERIN identity! Our logo reflects our mission: ensuring equal access to diagnosis & treatment for all with #ExtremelyRare bleeding disorders.
💪Join our people-centred network. No one left behind.
#EHCommunity
🎉 Welcome, Kazakhstan Association of Disabled People with Haemophilia!!
#EHCommunity
🎉 Welcome, Kazakhstan Association of Disabled People with Haemophilia, as our 49th Member! 🤝 "Great honour to join the EHC. Ready to work together for better treatment" - Akzhan Yerikkyzy, President
🔗 https://t.co/2SUjSxP100
#EHCommunity
🎉 Welcome, Kazakhstan Association of Disabled People with Haemophilia, as our 49th Member! 🤝 "Great honour to join the EHC. Ready to work together for better treatment" - Akzhan Yerikkyzy, President
🔗 https://t.co/2SUjSxP100
#EHCommunity
📣 Tomorrow join our #ThisWay Webinar on #Storytelling & #Awareness!
🗓️ 18 June | 16:00 CEST
🗣️Camilla Wensing & Enea Atroce
Learn impactful storytelling, practice in breakouts & share tips!
🔗 Register now: https://t.co/oANyQ3FqsF
#EHCommunity
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