Top Tweets for #ENdNF
Five early-career scientists. Five new paths toward treating NF. Our latest Young Investigator Awards fund research into treatment resistance, immune evasion, SWN pain, cognitive impairment in NF1..and more! 🔗 https://t.co/bQS28jCZpy
#EndNF
CTF was selected for Anthropic’s AI for Science rare-disease research program. Using Claude, CTF will build an AI-assisted pipeline connecting NF data & scientific literature to identify drug targets + advance treatment development. https://t.co/8il5HZCXRQ
#EndNF #DrugDiscovery
The NF Clinic Network is growing! Six new clinics have joined the network, bringing the total to 87 across the U.S. and Canada—expanding the reach of specialized NF care for children and adults.
Learn more about the newest clinics: https://t.co/zpVO4LoNA1 #EndNF
📢 Call for Abstracts is open!
The Neurofibromatosis Young Investigators' Forum is seeking original NF research from junior faculty, fellows, postdocs, and PhD students.
🗓 Submit by Sept. 8
📅 Dec. 3–4 | Baltimore, MD
👉 https://t.co/XwFdu498Z3
#Neurofibromatosis #EndNF #RareDisease @ChildrensTumor
“What keeps me going is proving that there’s a place for everyone, and everyone deserves a chance, no matter what they look like.” Read more about Tracy’s interview on her clinical trial with the team at Henry Ford Hospital: https://t.co/2vz8MxQu3e. #EndNF
Florida makes NF history! First state to fund NF research—$5M secured. Led by @gabegroisman. A model for every state. https://t.co/jmt2qGgkVy #endnf Thanks to all who made it happen ↓
Venture capital is in the room at the NF Conference. We've brought NF innovators and biotech investors together to pressure-test emerging programs on science, strategy, and the path to funding. Faster capital = faster treatments. #EndNF #NFConference
Every breakthrough starts somewhere.
Today at #NFConference, emerging scientists are sharing new research on tumor biology, genetics, biomarkers, clinical care + therapeutic dev. Young Investigator Day helps connect fresh ideas w/ collaborators who can move them forward. #EndNF
CTF has launched a global initiative to create consensus-based clinical care recommendations for NF1 and SWN, so that NF care is consistent no matter where in the world you live. Phase 1 starts with genetic testing guidelines. 🔗 Read more: https://t.co/hV7pWHmHGj
#EndNF
The NF2-SWN community is made up of people with different experiences, different challenges, and a shared determination to keep moving forward.
#NF2SWNAwarenessDay #EndNF
17th May is Shine A Light On NF 2026 💙and buildings and landmarks lighting up in NF blue to raise awareness of Neurofibromatosis! #EndNF Nerve Tumours UK #ShineALightOnNF #DoSomethingBlue #MakeNFVisible #WorldNFDay @NervetumoursUK
🔵🟢 Avui, 17 de maig, els fanals de davant l’Ajuntament #Mataró s’il·luminaran de color blau i verd pel Dia Internacional de la #Neurofibromatosi
👉 Aquesta és una malaltia genètica minoritària que causa tumors als nervis i pateixen una de cada 3.000 persones @acnefi_org #EndNF
The NF Registry is re-launched on the NORD® IAMRARE® platform. Share your experience, get updates on research and clinical trials, and help drive drug discovery for the NF community.
Join → https://t.co/0SBYJXBVaR #EndNF #NF #PatientPoweredResearch #DrugDiscovery
Today is #WorldNFAwarenessDay
Across the world, people are raising visibility for NF and turning awareness into action. Every story shared, conversation started, and action taken helps advance research, build understanding, and make NF visible.
https://t.co/bIK8dTFZdO #EndNF
Much appreciation to @huntsmancancer for their continued support to #ShineALightonNF !! The Beacon of Hope is lit up in blue and green this weekend in support of all those with NF. @ChildrensTumor
#imwithTravis #ikNowaFighter #MoreNotLess #EndNF
#ShineALightOnNF 2026 💙May 17th is World NF Day and buildings and landmarks across the UK and Ireland are being lit up in NF blue! @NervetumoursUK #EndNF
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