Top Tweets for #IPFWEEK
๐ซ For #IPFweek, we're sharing Andy's story.
Despite his diagnosis of IPF, Andy made it his mission to support others living with PF. For #PFmonth23, Andy hosted a Create a Stir fundraiser and launched a PF support group in North Wales. ๐
Read more โก๏ธ https://t.co/3yea9sZR3R
For #IPFWeek we're sharing our amazing supporter Alec Steele who is taking the cricketing world by storm after a video of him playing a match with an oxygen tank on his back went viral.
During #PFmonth23 Alec is raising awareness and funds for our cause: https://t.co/aJiqzVD6YM
Exciting news! The agenda for 2024 IPF is now available! Don't miss out on this incredible opportunity to connect with industry leaders and gain valuable insights. Save the date + prepare for an exceptional experience at #IPFWeek in New Orleans! https://t.co/FsoHG0wSvN
STAFF HAVE GONE PURPLE! ๐ฃ
To end Pulmonary Fibrosis Awareness Month staff have gone purple today to raise money for
@ActionPFcharity and here are Heather and Sharon showing us how it's done! ๐คฉ
#PulmonaryFibrosisAwarenessMonth #PulmonaryFibrosis #PFMonth #IPFWeek
๐ซ In support of #IPFWeek here is my statement of opinion, tabled earlier this week.
I'm really happy to have cross-party support on urging @WelshGovernment to bring forward a respiratory quality statement to ensure people with IPF have access to appropriate treatment & support
โ
Itโs #IPFweek and I'm supporting @asthmalungcymru raise awareness of idiopathic pulmonary fibrosis.
๐จ IPF is a progressive lung condition, affecting over 2000 people across Wales.
๐ Visit https://t.co/FGMu9o2HJl for more information.
Itโs #IPFweek and I'm supporting @asthmalungcymru raise awareness of idiopathic pulmonary fibrosis, a progressive lung condition, affecting over 2000 people across Wales. I want everyone with IPF in North Wales to have access to the treatment they need!
Itโs #IPFweek and I'm supporting @asthmalungcymru raise awareness of idiopathic pulmonary fibrosis, a progressive lung condition, affecting over 2000 people across Wales.
I want everyone with IPF in North Wales to have access to the treatment they need
2,500 people in Scotland have Idiopathic Pulmonary Fibrosis (IPF)
Itโs a progressive disease, with many people having a prognosis of just 2 to 3 yrs of survival after diagnosis
But we're funding research that could transform these statistics: https://t.co/N2KnBzYKij
#IPFWeek
I'm supporting @asthmalungcymru to raise awareness of IPF, a lung condition that affects over 2000 people in ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
We're calling on @WelshGovernment to bring forward a respiratory quality statement so that people with IPF can have access to the treatment & support they need #IPFWeek
Thank you @JGriffithsLab for tabling a Statement of Opinion relating to #IPFWeek.
@WelshGovernment must bring forward a respiratory quality statement to ensure people with #IPF have access to appropriate treatment and support. ๐ซ
Please support: https://t.co/Wy6sreuv2N
This week we are raising awareness for @actionPFcharity and to honour this, we have decided to change our branding to Purple. ๐
We think it suits us, what do you think?
#pulmonaryfibrosis #branding #charity #awareness
Thanks @patientMpower for highlighting @ILFA_Ireland's work calling for national clinical care programme for pulmonary fibrosis to ensure equity of access to diagnositics & healthcare supports
#IPFWeek
How could care for pulmonary fibrosis be improved? Well the folks at the Irish Lung Fibrosis Association @ILFA_Ireland had a very good idea โ talk to the people involved! #PFmonth #PF #PFawareness https://t.co/o8k2Q9fcic
On Day 3 of #IPFweek we are holding the AGM of the #APGonLungHealth . Due to our chair being unwell and our vice chair needing to send her apologies, @Jim_Wells_MLA was in the chair and @JohnBlairMLA joined us as well
Thank you to all the MLAs who spoke in favour of the Organ and Tissue Donation (Deemed Consent) Bill. For severe lung conditions such as IPF, a lung transplant is the only lasting solution #SoftOptOutNINow #IPFweek https://t.co/KkCyBuMaoD
On Day 2 of #IPFweek Ballymena man Tony Devlin, 75, shares his story of being disgoised with idiopathic pulmonary fibrosis, the incurable lung disease that claims 200 lives a year in NI https://t.co/tGoWw1uOTQ @News_Letter @PamCameronMLA @PaulaJaneB @ColinSDLP @OrlaithiF_MLA
On day 2 of #IPFWeek we are excited to announce that the new Cross-Party Group on Lung Health has been established. Thank you @JGriffithsLab for agreeing to chair and to @DoddsJane @MikeHedgesAM and @AltafHussainSWW for coming to the first meeting
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