Top Tweets for #Irdirc
📣 Call for Experts – Join IRDiRC’s Interdisciplinary Scientific Committee
✅policy/public affairs/human rights
✅education or capacity building
📩 Apply by 27 July 2026 [email protected]
👉🏼 More info: https://t.co/tcxbRloURk
#RareDiseases #IRDiRC #ISC
Ahead of #NewbornScreeningDay (28 June), IRDiRC welcomes the WHO report on birth defects & newborn screening—a major step toward earlier diagnosis and better lives.
👉Learn more: https://t.co/DqatVetTdx
#RareDisease #NewbornScreening #IRDiRC #WHO
🌟 Welcoming 4 new members to the Regulatory Scientific Committee (RSC)!
Together, we’ll advance regulatory science, strengthen collaboration, and accelerate innovation for people living with rare diseases.
👉Learn more: https://t.co/7c5zygWQQV
#RegulatoryScience #IRDiRC
🌟 Undiagnosed Day 2026 in Gdańsk 🇵🇱
IRDiRC was represented by Chair Dr. Dave Pearce and CCC Vice-Chair Shirlene Badger, joining global experts to advance diagnosis through collaboration.
🔗https://t.co/WIqvD8xZmk
#UndiagnosedDay2026 #RareDiseases #IRDiRC
💡What could healthcare look like in 2035 if we act with the urgency rare diseases demand?
At the #DIA2026 panel chaired by Estelle Michael, IRDiRC members discussed a future health ecosystem that learns continuously and acts earlier.
#RareDiseases #FutureHealthcare #IRDiRC
🌍 On Rare Disease Day 2026, IRDiRC reaffirms its commitment to advance research for 300M people living with rare diseases worldwide.
Learn more about our work: https://t.co/owJzkTx3Lt
💙#RareDiseaseDay #IRDiRC #RareDiseaseResearch
🏥 5 days left to apply!
Join the IRDiRC Task Force on Models of Care for Care Coordination, launched by the Interdisciplinary Scientific Committee.
📆 Apply by 20 Feb 2026
🔗https://t.co/c2CyTay2Yt
#IRDiRC #RareDiseases #CareCoordination #HealthPolicy #CallForExperts
📢 IRDiRC leading critical conversations at World Orphan Drug Congress USA 2026 🇺🇸
🗓️ 9–11 June 2026
📍 Thomas M. Menino Convention & Exhibition Center, Boston
👉Full agenda: https://t.co/avM3DsJaxA
#RareDisease #IRDiRC #WODCUSA
⏳ Call for experts: 8 days left to apply!
IRDiRC’s TSC is seeking global experts to advance digital biomarkers & endpoints in rare disease therapeutic development.
📆 Deadline: 20 Feb 2026
👉Apply now: https://t.co/MxGNuDdahJ
#IRDiRC #DigitalBiomarkers #RareDiseases
📊 Only 9 days left to apply!
IRDiRC CCC is seeking global experts for a Task Force on Optimizing Data Sources & Registries to accelerate rare disease treatment development.
Apply by 20 Feb 2026: https://t.co/CFIiqw46nj
#IRDiRC #RareDiseases #RWE #CallForExperts
🌍 IRDiRC Call for Experts: New 2026 Roadmap!
Join 4 Task Forces/WGs on Digital Twins, Care Models, Data/Registries, Digital Biomarkers.
Worldwide experts: researchers, clinicians, patients, regulators and the list goes on!
👉https://t.co/USL4qnMPU2
#IRDiRC #CallForExperts
🎉 Welcome @CerebrumDAO as a new IRDiRC FCC member!
Cerebrum DAO is driving innovation at the intersection of neuroscience, AI, and decentralized technologies.
🔗 https://t.co/0LYXaPOXHX
#IRDiRC #FCC #CerebrumDAO #Neuroscience #AI
🎊 Happy New Year from IRDiRC! 🎇
As we enter 2026, we reaffirm our commitment to advancing rare disease research with our global members and experts.
Thank you for your collaboration and dedication. 🌟
#IRDiRC #RareDiseases #Research #Collaboration
🗞️ News from Centre-Alliance for Rare Disease in Rwanda 🇷🇼 Member of #IRDiRC PACC 🔔
As we close out December 2025, continues to stand with children & families affected by rare diseases.
Ongoing support includes:
🎓 Education
💙 Psychosocial care
🤝 Social inclusion
📢 New #IRDiRC study on global #orphandrug approvals: it sheds light on the persistent global delays patients face in accessing innovative therapies for rare diseases.
🔗 https://t.co/aZbsHSxr74
✅ Wrapping up 2 inspiring days at the IRDiRC Fall Consortium Assembly in Paris! 🇫🇷
Global experts came together to shape the future of rare disease research, from drug repurposing to diagnostics & patient engagement. 🌍
#RareDiseases #IRDiRC #Research
“The complexity of funding rare disease research: an IRDiRC assessment of the landscape” explores how funders set priorities, define ROI, and address gaps—calling for flexible funding and collaboration.
🔗https://t.co/irdGXTnXCS
#RareDisease #ResearchFunding #IRDiRC #GlobalHealth
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