Top Tweets for #LetstalkaboutNETS
Important video collection for NEN patients – learn from the best NEN experts!
📱Watch recordings of the @ENETS_ORG -INCA NET Educational Webinars: https://t.co/AbUaWqp9f1
#LetsTalkAboutNETs

NENs of unknown primary site are relatively uncommon, accounting for 10% to 14% of all NENs. They can produce symptoms related to a neuroendocrine associated syndrome: flushing, diarrhea, etc.
☑️Download #NETInfo in 14 languages: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

Proper nutrition improves quality of life and minimizes nutrition-related side effects.
☑️Check out INCA’s Nutrition in NENs web section with a global collection of books and videos resources: https://t.co/bFqds3uWoQ
#LetsTalkAboutNETs

For women, common symptoms of pNET can be interpreted as menopause onset. Karin from Belgium spent 6 years with symptoms before the diagnosis. 📱Watch her story: https://t.co/zJ2YGti4Fs
☑️Download #NETInfo in your language: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

The best way to understand the patient experience in NEN clinical trials is to learn about it directly from patients.
📱Watch what Marie-Therese from the Netherlands tells us about her experience in a trial – watch the video: https://t.co/IWVIlE2ECS
#LetsTalkAboutNETs

Are you a busy GP? Level up your NEN knowledge in just 1 hour.
👉Free online videos
👉Earn 1 UEMS-EACCME® credit
👉7 languages
👉Endorsed by ENETS and NANETS
Join today: https://t.co/X0mfICDWmx
#LetsTalkAboutNETs

📌This free guide supports neuroendocrine cancer patients preparing for #radioligandtherapy by explaining side effects, what to expect, and daily impact in a clear and understandable language.
🌍 Available in 15 languages
🔗 Download: https://t.co/ekWhXLmXPv
#LetsTalkAboutNETs

📌Find out the latest in translational NEN research from Dr. Mauro Cives @cives_mauro, whose work focuses on the preclinical and clinical evaluation of innovative NET treatments, particularly regarding adoptive T-cell therapies: https://t.co/F4AuT6TwVD
#LetsTalkAboutNETs

Sometimes despite extensive diagnostic imaging and testing, the primary site of neuroendocrine cancer cannot be located. It is diagnosed as NET of unknown primary (abbreviated as CUP).
☑️Get a #NETInfo factsheet in your language: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

📌According to Dr. Grace Kong, Nuclear Medicine Physician at the Peter MacCallum Cancer Centre
(PMCC) Australia, the future of nuclear medicine for NENs looks bright.
📱Watch the video: https://t.co/M4GVMgwDdX
#LetsTalkAboutNETs #NENClinicalTrials

🔔Don’t miss the new NETWise podcast episode from Neuroendocrine Tumor Research Foundation (NETRF) @CureNETs : focused on giving insights to newly diagnosed NET patients.
✅Learn more and listen here: https://t.co/Q2zJfebpMq
#LetsTalkAboutNETs

Rapid heartbeat can be symptom of small bowel neuroendocrine cancer. Clinicians often look for the closest common condition such as anxiety or any psychosomatic condition.
✅Get to know small bowel NET in 14 languages: https://t.co/ekWhXLmXPv
#LetsTalkAboutNETs

New to #RadioligandTherapy?
Know what to expect. Prepare with confidence.
✔ Patient factsheet in 15 languages
Download for free: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

Nutrition guidance in NENs is vital for managing the patient journey.
✅Check out the global web section with nutrition in NENs resources from all over the world: https://t.co/bFqds3uWoQ
#LetsTalkAboutNETs

👏Kudos to @NECancerAus (NECA) for a month full of advocacy peaks. Read in detail about the NECA’s NET Patient Forum in Canberra, the Nurses Workshop and other advocacy highlights in May 2026: https://t.co/B6Ld6OCHPh
#LetsTalkAboutNETs

Diagnosed with pancreatic NET? Help researchers shape a new quality of life approach.
🙏Please take part in a short survey in English to contribute to improving how quality of life is measured for PanNET patients.
☑️Find out more: https://t.co/03fssBTsId
#LetsTalkAboutNETs

🔔NEW: Agora disponível em português brasileiro! INCA’s Global NET Patient Information Pack is now available in a new language - Portuguese (Brazil).
👉Now the 26 NETInfo factsheets are available in 14 languages.
☑️Download for free: https://t.co/ekWhXLmXPv
#LetsTalkAboutNETs

📌For Julian from Germany, it took 2 years from the onset of symptoms to the NET diagnosis. An ultrasound scan led to the correct diagnosis.
📱Watch Julian’s story: https://t.co/3uO8a1HLLa
☑️Get a #NETInfo in your language: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

📌In May, we honor oncology nurses and thank them for standing beside NEN patients.
👏Thank you for your dedication!
☑️We support nurses with information via #NETInfo factsheets in 14 languages: https://t.co/ekWhXLmpZX
#LetsTalkAboutNETs

All you need to know about the most common NENs – from the best NEN experts:
📱Watch recordings of the @ENETS_ORG -INCA NET Educational Webinars: https://t.co/AbUaWqp9f1
#LetsTalkAboutNETs

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