Top Tweets for #MetUpUK
In California this week for @NBCC’s Project LEAD—an intensive training in breast cancer science, clinical trials & advocacy. Grateful for the scholarship & excited to deepen my impact for patients everywhere. #ProjectLEAD #BreastCancerAdvocacy #NBCC #METUPUK
@METUPUKorg So many wonderful individuals. Honoured to have known some of them.
We need more research and access to treatments
#OurFriendsNotForgotten #METUPUK #Stage4NeedsMore #MBCCommunity #MetastaticBreastCancer #SecondaryBreastCancer #MBCVoices #LegacyOfStrength
METUPUK’s Founder Jo shares how her breast cancer evolved from triple positive to triple negative - and why ongoing biopsies and testing matter. Changes in cancer biology can affect treatment. Come back later today for Part 2 of Jo’s story. #MetastaticMay #METUPUK #BusyLivingWithMets
METUPUK Trustee Emma shares what it’s like watching her sister Helen face Metastatic Breast Cancer. A true poster girl for #BusyLivingWithMets, Helen keeps going while advocating for treatment and trials. Everyone living with MBC deserves more time - and less inequality. #METUPUK
Jo recently contributed to research with Oldham Healthwatch on the healthcare experiences of people with metastatic cancer.
The report highlights both progress and gaps in care across the UK.
Read report here:
https://t.co/cxXV4yzcs5
#METUPUK #PatientVoice #Stage4NeedsMore
Cancer patients have a particularly high burden of healthcare admin, whether it’s chasing appointments which haven’t been made or being sent appointment letters after the appointment date.
@METUPUKorg
#METUPUK
#MetastaticBeastCancer
#SecondaryBreastCancer
#BusyLivingWithMets
🧵Nearly 2 out of 3 people say they (or someone they care for) have had a problem with NHS admin in the past year. And around 1 in 5 people have been invited to an appointment after it was due to happen.
https://t.co/1C105joWY9
Not bad considering 3 hospital stays, one a craniotomy
No cycling though but in the last 10 years did complete 4 Manchester to Blackpool charity bike rides…
#metastaticbreastcancer #DarkerPink #METUPUK #Strava #YearInSport #NordicWalking @SirWiggo
A truly inspiring @METUPUK conference last week!
We were thrilled to welcome so many brilliant minds and inspiring individuals. Thank you to all our speakers, attendees, and sponsors for making this event such a success.
#METUPUK #conference #thankyou #GMCancerAcademy
I recorded a 60 second "why you should come and visit the Darker Side of Pink exhibition" at #Northallerton Treadmill exhibition space. Have a watch https://t.co/NP5j8eigeF
#MetastaticMay #costofliving #severitymodifier #METUPUK #DarkerPink
2/2 at the exhibition centre about #metastaticbreastcancer and why we need our disease highlighted.
There is also a donation to #METUPUK if you have a piece of cake (and later in the day pink prosecco?) a % will go to #metupuk
Have a read of my latest blog for
#MetastaticMay #BusyLivingWithMets #metastaticbreastcancer #physicalactivity #exerciseoncology
#costofliving #severitymodifier #METUPUK #DarkerPink #abcdretreat #nordicwalking
Are we worth the investment in drugs?@AndyBurnhamGM @GmWalks @lucygoss @MOVEcharity @orourkeclaire1 @hayleylever @CanRehab #GMCC24 #esmobreast24
Jo writes about having #physcialactivity in her life & living with MBC how this is even more important to her. Why is PA important? Because the research tells you that it can help with own wellbeing and mental heath. Have a read https://t.co/e8gqMqK0T3
Kirstin Spencer is the #METUPUK lead for SMC drug appraisals. She explains about treatment resistance, especially in ER+ disease. This topic was covered at the UKIBCS in Birmingham which we attended
https://t.co/JLTu8ax9Tw
#MetastaticMay #costofliving #severitymodifier
As our @METUPUKorg executive lead for Northern Ireland we are pleased to see the work that Ann supports with the work & platform that #metupuk have being on the #naome audit for England & Wales.
I’ve always said that we need devolved nations to work together to make a difference & again working with people like @SiobhanGaynor really makes a difference to get our voices heard
Well done ladies! Shame I can’t be at @myESMO in Berlin as I have a poster about platitudes that I should have presented & we could have met Siobhan! #metastaticbreastcancer #esmo #datasaveslives @useMYdata @C_Carrigan
Treatment Number 161/11 and back up to full dose #Kadcyla 🙏🏼💙 keeping me #BusyLivingWithMets
Hoping I don’t get the side effects like last time but now have 5 day injections of filgastrim to help.
Join #METUPUK to advocate for change with:-
👉awareness of #sbcinfographic🚩
👉better treatments, surgeries & #drugaccess
👉stop rationing drug lines
👉access to clinical trials
👉count us with data & statistics
👉lasting policy change
#metastaticbreastcancer
#secondarybreastcancer
#DarkerPink
#DisappearingLives
#stage4needsmore
Please be aware of the red flag infographics for signs & symptoms of MBC 🚩(these can be found on my website & translated into 12 languages)
An unusual Friday treatment @TheChristieNHS changed from Wednesday @tandgicft so I could attend the #UKIBCS this week.
Number 160/10 with #Kadcyla 🙏🏼💙 keeping me #BusyLivingWithMets
Join #METUPUK to advocate for change with:-
👉awareness of #sbcinfographic🚩
👉better treatments, surgeries & #drugaccess
👉stop rationing drug lines
👉access to clinical trials
👉count us with data & statistics
👉lasting policy change
#metastaticbreastcancer
#secondarybreastcancer
#DarkerPink
#DisappearingLives
#stage4needsmore
Please be aware of the red flag infographics for signs & symptoms of MBC 🚩
At the #UKIBCS24 @NovartisUK had a great stand with their #MomentsThatCount campaign where my photo was displayed from the video I did with them back in 2022. They also had a tree to put messages on so we wrote all the names of our #METUPUK friends who had died, which was over 30… we won’t forget them 💔
#metastaticbreastcancer
#secondarybreastcancer
#advancedbreastcancer
#stage4breastcancer
#DarkerPink
#Dyingforacure
#IAmThe31
#DisappearingLives
We are excited to have 3 runners raising funds for #METUPUK taking Great North Run!
We have a further 2 places available! So, if you fancy a personal challenge & the opportunity to raise vital funds for us, get in touch with our fundraising trustee
[email protected]
Recently Madeleine one of our #METUPUK Trustees took part in the NICE Methodology Roundtable Discussion and she has shared a blog writing about her experience and what the discussion was about - read more below…
#MetastaticBreastCancer
https://t.co/bI8DW4fSBx
Wishing all our friends and followers a Merry Christmas and all good things for 2024.
We will continue to stand shoulder to shoulder with you in 2024 to get more drugs approved, more clinical trials and the data which underpins this all.
Love from #METUPUK
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