Top Tweets for #NORDSUMMIT
Leaders from the NORD #RareDisease Centers of Excellence will take the stage at the #NORDSummit this October to share, with real case studies, how they are tackling some of the field’s most pressing challenges: shortening the path to diagnosis, improving coordinated care, and advancing research and innovation. Learn more and join us at https://t.co/tjJ0mdcxam.
#Healthcare #Medicine #Research
⏰ Final call to submit your #research abstract for display at the 2026 #NORDSummit!
Submit your #RareDisease or orphan product study, or #PublicHealth study related to rare diseases, by Wednesday, July 22, here: https://t.co/88wI3BXEXl
Speaker proposals for the 2026 #NORDSummit close tomorrow, May 22, at 11:59 p.m. ET.
Do you have a perspective on #RareDisease research, patient access, or #HealthPolicy? Submit your proposal now: https://t.co/DgrWN6sAXk
Lisa Shea Shares Key Takeaways from 2025 National Organization for Rare Disorders (@RareDiseases) Summit
@allofound
https://t.co/Ob7zzJVMo9
#BleedingDisorders #FNAIT #HDFN #Health #Hematology #Hemostasis #HemostasisToday #Medicine #NORDSummit #RareDiseases #Thrombosis #WAIHA #WAIHAWarriors #MedEd #MedX
Collaboration defined the 2025 #NORDSummit, reshaping #RareDisease progress.
Regulators, scientists, and patient leaders are using data-driven pathways like totality-of-evidence models and real-world evidence to bring therapies to patients faster.
Involving patients from the start and balancing safety with flexible regulation is key to advancing innovation—together.
Today's #NORDSummit takeaway: community voices shape innovation from start to finish.
Patient advocates co-design #ClinicalTrials, advise on data interpretation, and spur policy reform.
Just last month, they helped secure #FDA approval for the first #BarthSyndrome treatment.
Number four of our 2025 #NORDSummit countdown highlights an overlooked yet urgent need that deeply resonated with attendees: mental health is health care.
It’s up to all of us to fight for every #RareDisease patient, caregiver, and family to have access to holistic care to support their physical and emotional well-being.
#MentalHealth #HealthCare #Therapy
Participants at the #NORDSummit called for earlier inclusion of children in studies to generate meaningful, family-driven data, as well as the reauthorization of the Rare Pediatric Disease Priority Review Voucher program by year-end to continue incentivizing companies to invest in #pediatric drug development.
Together, these efforts ensure that children with #RareDiseases aren’t left behind in the race for new treatments and cures. Support the cause by taking action: https://t.co/FHCPXH8tI7
Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders.
#NORDSummit
#PrimaryBiliaryCholangitis
Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit.
With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth https://t.co/GK2NgDNi5V
Standing up for the people not in the room is what the Rare Disease Advocate Council (#RDAC), members do daily. Thank you to Senator @amyklobuchar, a long champion 🥊of the Rare Disease community for despite the #GovernmentShutdown stopped by the @RareDiseases 2025 #NORDSummit.
Eli T. was honored to represent NBTS at this week’s 2025 NORD Summit in Washington, D.C., where experts and advocates convened to advance breakthroughs in research, treatments, and policies for the entire rare disease community.
#NORDSummit #BrainTumorResearch #RareDisease
That’s a wrap on the #NORDSummit—two incredible days of connection, collaboration & commitment to shaping the future of #RareDisease research, treatment & policy.
CEO Pam Gavin: “We're living in challenging times, but the rare community continues to show what unity looks like.”
Our @lmarieasad represented the Friends of the PBC Foundation at the 2025 @RareDiseases #RDAC meeting and 2025 #NORDSummit in Washington D.C., advocating for the rare disorder community.
#PatientAdvocacy
What’s next for #GeneTherapy and #CellTherapy?
#NORD + @ASGCTherapy co-hosted a #NORDSummit panel on promising, cutting-edge science—and the challenges of access, affordability and equity. Featuring experts from @UMassChan and @GeneDx.
Patient voices + FUNDING = New treatments
“We decided that at the very center of everything we do, we should put universal access to cell and #GeneTherapy. It’s an injustice to have a therapy but not be available because it’s potentially a market failure.”
- @ASGCTherapy President Dr. Terence Flotte at the #NORDSummit
#NORDSummit: Terence Flotte, MD, president of the 7,000-member @ASGCTherapy, speaking Oct. 21 at the 2025 @RareDiseases Breakthrough Summit in Washington, D.C.
Image & quote taken by Senior Correspondent, @LLuxner
#RareDisease #GeneTherapy #CellTherapy
#NORDSummit: Terence Flotte, MD, president of the 7,000-member @ASGCTherapy, speaking Oct. 21 at the 2025 @RareDiseases Breakthrough Summit in Washington, D.C.
Image & quote taken by Senior Correspondent, @LLuxner
#RareDisease #GeneTherapy #CellTherapy
U.S. Senator @AmyKlobuchar, Co-chair of the Rare Disease Congressional Caucus, surprised our #NORDSummit audience to speak on the bipartisan, national importance of supporting the #RareDisease community right now, and not falling behind in our quest to deliver treatments for the 95% of #RareDiseases that lack them.
"I think about those families. I think about those kids right now who are trying their hardest despite the odds against them. And I want you to know that you have changed lives. We have made progress, and I don't want to look at that progress in the rearview. We are moving forward together." - @SenAmyKlobuchar
#NORDSummit: Lee Greenwood, whose 5-year-old daughter Noa was born with #CanavanDisease, a severe #GeneticDisorder found mainly among Ashkenazi Jews. In June 2022, the girl received lifesaving #GeneTherapy and is now developing normally. @RareDiseases
Image & quote by @LLuxner
A big moment for our team yesterday at #NORDSummit! We shared two research posters, including our abstract on desmoid tumors, selected for the prestigious Lightning Round main stage! @RareDiseases
Full poster details below👇
🔗 https://t.co/hiPvKqbkU9
🔗 https://t.co/ggD4XkYcSJ
Today’s NORD Breakthrough Summit featured a special guest, Senator Amy Klobuchar, who spoke to an excited crowd about her dedication to the rare disease community.
#NORDSummit #RareDiseases #CheckRare
Last Seen Hashtags on Sotwe
ometv
Seen from United States
anxiouspanda
Seen from Ecuador
momson()
Seen from Turkey
DiseñoYCiudad
Seen from United States
nolimits()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()()
Seen from United States
backshots
catbutt
Seen from United States
minichat
Seen from Mexico
سكس_زوجين_
musclecunt
Seen from United States
Most Popular Users
Elon Musk 
@elonmusk
241.7M followers
Barack Obama
@barackobama
119M followers
Cristiano Ronaldo
@cristiano
114.4M followers
Donald J. Trump
@realdonaldtrump
111.9M followers
Narendra Modi
@narendramodi
107.2M followers
Rihanna
@rihanna
98.7M followers
NASA
@nasa
92.4M followers
Justin Bieber
@justinbieber
91.8M followers
KATY PERRY
@katyperry
90M followers
Taylor Swift
@taylorswift13
83.9M followers
Lady Gaga
@ladygaga
75.4M followers
Virat Kohli
@imvkohli
73.3M followers
Kim Kardashian
@kimkardashian
70.9M followers
YouTube
@youtube
68.8M followers
Neymar Jr
@neymarjr
66.3M followers
Bill Gates
@billgates
65.1M followers
Selena Gomez
@selenagomez
63M followers
The Ellen Show
@theellenshow
62.3M followers
CNN
@cnn
61.8M followers
X
@x
60.7M followers