Top Tweets for #Notanaccident
#NotRecognised #NotAnAccident 100% risk of HCV in factor 8. Moving to larger pools created bigger risks of viruses.
Mono HCV haemophiliacs have not had their childhood loses recognised. Multiple re infection with every dose of factor. Extremely unwell through school, fatigue, photos of kids yellow because of their bodies fighting HCV all unrecognised.
We are not the same as an older transfusion victim. We have been badly let down in the current scheme. @andyburnham we ask that you acknowledge not only our letter from MHH but those from other campaigners and Societies.
@fionatwycross @UKHouseofLords @HouseofCommons @UKgovcomms @CliveEfford @markpack @KieranMullanUK @DianaJohnsonMP @IanByrneMP @IBCA_UK @IBCA_CEO_UK @LabLab15460 @Gooders2023 @steveb297 @GraymF1
@andyburnham it would be awful if you've led this community into falsely believing that you would help. Show this isn't the case & at least acknowledge letters sent to you by people still going through this trauma. Look at mono hep C, look at @IBCA_UK & fix it.
#FinishThisFight #NotAnAccident still no response to the letters from @HepatitisCTrust @HaemophiliaIRL, MHH, CBC and other groups.
PM you had a lot to say, as you always do at the infected blood inquiry but you have now gone silent. Is this because your position means you have to toe the line like you did when you was the health minister. Or is it because you just talk a good talk with nothing to back it up? @KieranMullanUK
@GraymF1 @Gooders2023 @LabLab15460 @UKHouseofLords @fionatwycross
Andy Burnham speech on contaminated blood https://t.co/RVLh4o2mth via @YouTube
@andyburnham we are still waiting for you to step up and #FinishThisFight. Right now your silence is deafening to the community.
Mono-HCV haemophiliacs have not had their childhood losses recognised. Being infected as a child multiple times, exposed to viruses and heavy stigma that came about after the aids campaign meant ALL children suffered. Sir Brian recognised this why haven’t @cabinetofficeuk.
#NotRecognised #NotAnAccident
@GraymF1 @Gooders2023
@katehaemophili1
#NotRecognised no haemophiliac has been recognised for being used as research.
No haemophiliac has had their true losses recognised for the criminal negligence around factor 8 & 9. Government and consultants knew the dangers. In the case of HCV it was 100% risk of infection.
Stigma : something all haemophiliacs went through. As a child this was horrific. Those informative years that shape a life were played out with the governments tombstone campaign at the heart of it. Under the current scheme this does not go far enough. There should have been a separate tariff for the HATE and suffering haemophiliacs had.
Sir Brian concluded this was #NotAnAccident
@andyburnham you was there…. You commented about the “systemic coverups that went on for decades”. Also the treatment of haemophiliacs and how they “suffered unethical clinical trials”. Please don’t wash your hands of us now. Sit down with those who have lived this trauma and #FinishThisFight
@jamesmurray_ldn @DianaJohnsonMP @CliveEfford @KieranMullanUK @sianberry @GraymF1 @Gooders2023 @JasonEvansF8 @cazjwheeler
#NotRecognised #NotAnAccident
@fionatwycross @katehaemophili1 @HaemoSocUK
Mono HCV haemophiliacs knowingly infected and exposed to a soup of viruses. Disrupted childhood through multiple reinfection. Stigma due to being a haemophiliac and the fear of infecting other kids. Extreme fatigue and a little body fighting diseases. NOT recognised for financial losses and out in the same class as transfusion infected. Their childhood would have suffered. Sir Brian recognised this why is it that everyone in government and some societies have their fingers in their ears and are not listening.
Come on @andyburnham you can fix this and get mono haemophiliacs the justice they so rightly deserve…..
Mono HCV haemophiliacs #NotRecognised
@fionatwycross @andyburnham @cabinetofficeuk Robin Healey Sir Brian comments on haemophiliacs education disruption. It’s worthy to note that this is ALL haemophiliacs and that mono HCV haemophiliacs have been ignored / forgotten by our current government regarding their childhood losses for being multiply reinfected as haemophiliac children with HCV.
Mainstream school impact inquiry findings.
Chronic school deprivation: Sir Brian commented how haemophiliac children in main stream schools suffered “massive disruption to their primary and secondary education”.
The “fatigue wall” students showed they constantly suffered from extreme fatigue and physical weakness”.
“Early infection destroying their ability to study, sit exams”.
This was compounded for haemophiliacs who were repeatedly re infected with EVERY dose of factor VIII. Again IGNORED!
We are asking you to revisit the core route for HCV haemophiliacs as we are not the same as a one off transfusion patient whose odds of infection was LESS than 1%.
@IBCA_CEO_UK @IBCA_UK @CliveEfford @DianaJohnsonMP @IanByrneMP @IanLaveryMP @sianberry @KieranMullanUK @GOVUK @HumanRightsCtte @milnerslaw @addresstheharm @ashishskynews @BBCNews @itvnews @guardian @FinancialTimes
@Gooders2023 @steveb297 @GraymF1 @LabLab15460 @DuryTerren13578
@IBCA_UK @IBCA_CEO_UK @andyburnham #NotRecognised #NotAnAccident
All haemophiliacs were used for research.
Safer treatment - ignored.
DDAVP for milds - ignored.
Parents fears and worries about Factor VIII - ignored.
By choosing route of infection and not recognising haemophiliacs in their own tariff you are trying to re write our painful history. We will not allow this.
Mono HCV haemophiliacs have not been recognised for their childhood educational losses. Stigma was horrific during schooling, HCV Haemophiliacs yellow in school photos. Bodies struggling through education because of repeat re infection with each dost of factor and multiple virus exposure - Not recognised within this current scheme.
We hope that the @HaemoSocUK @katehaemophili1 @ConanMci have been supportive of the mono HCV haemophiliacs group in meetings as we have been asking you to advocate for this forgotten group. To ignore us means we have not had justice and a large portion of your haemophiliac members have been let down and abandoned.
@CliveEfford @DianaJohnsonMP @IanLaveryMP @IanByrneMP @KieranMullanUK @sianberry @GraymF1 @Gooders2023 @GlennWilko58 @DarcusWolfe @LabLab15460
Some coverage on the BBC home page today. Hopefully, media coverage of this will ramp up over the coming weeks, in the lead up to the inquiry report. This scandal deserves mainstream coverage just as much, if not more than the Post Office Scandal.
#NotAnAccident #NotRecognised @fionatwycross the haemophiliac history is not for government @cabinetofficeuk to rewrite.
This vulnerable cohort was abused by the state who were there to protect them.
Mono HCV haemophiliacs have been badly let down and put in a cohort that does not reflect our losses. Sir Brian recognised that being infected as a child would have had repercussions. Why hasn’t @GOVUK.
@IBCA_CEO_UK @IBCA_UK @KieranMullanUK @DianaJohnsonMP @katehaemophili1 @GraymF1 @Gooders2023
@LabLab15460
@andyburnham @downingstreet @CPSUK
What happened to #Haemophiliacs knowingly infected with #HIV & #HEPC must be investigated
Those responsible no matter there age to be held to account
#justice is more than just compensation
Innocent lives destroyed by the state …..
@Bayer it was all about the profit$
#NotRecognised #NotAnAccident
Will haemophiliacs get just in the unethical research part of the claim. As it currently stands no!
Mono HCV haemophiliacs multiply re infected, struggled with schooling due to infection, stigma this was recognised by sir Brian and ignored by @cabinetofficeuk @GOVUK
We ask you @fionatwycross to sit down with those caught up in this fiasco to understand that our childhoods were negatively impacted.
@katehaemophili1 @HaemoSocUK @andyburnham #FinishThisFight
@IBCA_UK
@Gooders2023 @GraymF1
#FactorVIII essential to clot blood for #Haemophiliacs we trusted government we trusted @DHgovuk in 1970’s 80’s it was infected #HIV #HEPC
#NotRecognised #NotAnAccident
Disappointed that NO haemophiliac has had their true losses recognised.
Will this be put right in the unethical research part of the scheme?
Not at the current levels offered and not without legislation ensuring that this will never happen again.
This was one of the most heinous acts by the State. One which cannot and should not be hidden. Everyone needs to recognised and acknowledge fault. We cannot be the governments dirty secret anymore.
@andyburnham @fionatwycross @katehaemophili1
This has changed ALL haemophiliacs HIV, co infected and Mono HCV.
@Gooders2023 @GraymF1 @LabLab15460 @CliveEfford @KieranMullanUK @sianberry @IanLaveryMP @IanByrneMP @addresstheharm @cazjwheeler
#Contaminatedblood inquiry @DHgovuk knowingly imported infected US Prison blood 1970's 1980's infecting UK #Haemophiliacs with #HIV #hepc
@Bluefairy111 @ibca @NickTorfaen Yep and through this notes there are references to “does he even bleed?. But they kept giving him factor.
#NotRecognised #NotAnAccident
@DarcusWolfe @IBCA_UK @ibca @cabinetofficeuk @andyburnham I agree. It’s government IOU’s makes it very hard to sort out your finances when it is paid like this. You all need this over with asap. It has been decades for haemophiliacs.
#NotRecognised #NotAnAccident
#NotRecognised #NotAnAccident no parents were advised of the risks! Mild haemophiliacs pumped with factor VIII for joint pain, tooth extraction SAFE ddavp left on the shelf. They was walking experiments and mono HCV haemophiliacs have not been recognised for this abuse.
I have photos of my husband yellow throughout his schooling. All ignored by the current scheme for mono HCV haemophiliacs.
We are asking that @fionatwycross @andyburnham please re visit the financial losses for mono HCV haemophiliacs on the grounds stated in our letter MHH-010 and attached document. It is a simple ask that can be costed out and would mean that this cohort receives the justice they deserve @katehaemophili1 @ConanMci
@KieranMullanUK @DianaJohnsonMP @GraymF1 @CliveEfford @IanLaveryMP @sianberry @HaemoSocUK @LabLab15460 @IBCA_CEO_UK @ibca @Gooders2023 @DarcusWolfe
#Interferon treatment for 12 months to cure #HepC was a living hell !!!
I was one person before that treatment & another after !! And it didn’t even work !!
I was born with mild #Haemophilia & infected by @DHSCgovuk with #HepC #MonoHepC_Haemo for 40 years the hell of #Interferon treatment & long term mental & physical side affects are being dismissed by the so called experts ?@NickTorfaen @cabinetofficeuk why is a member of your Government #TEG group once employed by #Bayer who are responsible for the #ContaminatedBlood disaster allowed to have an opinion ?
The #Guilty can’t dictate the compensation
“This was no accident”
“NotRecognised”
@bloodinquiry
@lfeatherstone
@HaemoAPPG
@CliveEfford
@AndyBurnhamGM
@DianaJohnsonMP
@maitlis
@cazjwheeler
@BBCHughPym
@Haemosexual
@SKinnock
@sianberry
@TeriG2569
@LabLab15460
#NotRecognised mono HCV haemophiliacs #NotAnAccident
Nothing for multiple re infection of HCV and impact on mono HCV haemophiliacs educational / childhood losses. Written into the draft document that was circulated to a chosen few, for then @GOVUK @cabinetofficeuk to realise that they made an admission of guilt that children infected multiple times would of had an impact on their education and a knock on effect with job prospects.
@fionatwycross @andyburnham we ask you sit with @katehaemophili1 and MHH which is a group for mono infected HCV haemophiliacs to #FinishThisFight @KieranMullanUK @sianberry @CliveEfford @DianaJohnsonMP @IanLaveryMP @cazjwheeler HCV haemophiliacs are not the same as transfusion patients. The risk with every bottle of factor VIII was 100% transmission. Given for non life saving reasons. Giving us a life sentence !! Transfusion less than 1% risk.
@Gooders2023 @steveb297 @LabLab15460 @GraymF1
@fionatwycross @andyburnham @cabinetofficeuk Robin Healey
Haemophiliacs have not had justice #NotRecognised #NotAnAccident
Mono HCV haemophiliacs have been badly let down. Sir Brian recognised the damage done to haemophiliacs and how it affected their childhood why has the cabinet office ignored this? Is it to hide the atrocities done to a vulnerable cohort of children. Did their lives not matter enough ?
Were we just seen as vessels for human experimentation ?
Sadly @GOVUK do not understand haemophiliacs as no societies or infected were involved in the scheme from the beginning. This can be fixed if you consult with those at the heart of the scandal.
@IBCA_CEO_UK @DianaJohnsonMP @CliveEfford @IanLaveryMP @KieranMullanUK @katehaemophili1 @HaemoSocUK_PI
@LabLab15460 @TeriG2569 All of us were infected with HCV & many other pathogens which were pumped into us have not been fully recognised
Yes, the headlines regarding HIV recognition are clear to see but please stop downplaying the true scale of the harm inflicted on us it’s creating more division
#NotRecognised #NotAnAccident
HCV haemophiliacs have not had their childhood losses recognised. Sir Brian recognised our differences why havnt @cabinetofficeuk @GOVUK
@KayBurley @MelJStride Yes Clarke should be stripped of his title…..and all government and NHS Drs involved in the cover up charged….l think Engels had the gist of the mindset of our rulers……
I'll add my plea to this: the #InfectedBlood scandal was #NotAnAccident and is #NotFinishedYet.
Please give us closure @cabinetofficeuk @fionatwycross
.@10DowningStreet @andyburnham You are a hero to so many infected blood victims. Now they are waiting for you to finish their fight for justice. Will you meet with the infected blood community?
@cabinetofficeuk @fionatwycross
It happened and they are still trying to cover up the truth by putting the haemophiliac hepatitis victims in with whole bloods, #NotAnAccident
@IBCA_UK
“It will be an enormous problem when it happens.”
46 years ago this month, those words were spoken at the September 1980 Glasgow symposium on haemophilia.
I first read this extract around 10 years ago. The starkness and foreboding of that final sentence has stayed with me ever since.
The Infected Blood Inquiry described the symposium as an “absolutely key moment” in understanding the seriousness of non-A, non-B hepatitis, now Hepatitis C.
Per Everytown, “every year hundreds of US children access a loaded firearm and unintentionally shoot themselves or someone else. This is #notanaccident” – it is a preventable American tragedy. Secure storage is not only a simple solution…it is the least we can do for our kids.
#NotAnAccident
#NotRecognised
The Haemophiliac story has been brushed under the carpet to stop the heinous acts of our government becoming common knowledge.
Mono-HCV in the wrong tariff. Sir Brian recognised the differences between whole blood and haemophiliacs why didn’t you? @cabinetofficeuk @GOVUK
Autonomy - this is far too low for ALL haemophiliacs.
Was it a deliberate decision to go down the virus route rather than looking at the route of infection and its prevailing consequences. Thus wiping out the history and stigma ALL haemophiliacs suffered.
Transfusion / whole blood community did not have the stigma that a medical identity bracelet had. They did now stand in front of the school assembly whilst the school was told to “be careful” around xyz. They were not ostracised from their community. They had their childhood and their autonomy. We did not…..
@RupertLowe10 @KieranMullanUK @IanLaveryMP @IanByrneMP @CliveEfford @sianberry @katehaemophili1 @ConanMci @andyburnham @fionatwycross @jamesmurray_ldn @LouHaigh
@IBCA_CEO_UK @IBCA_UK
We ask that you relook at the scheme to include our suffering
@Gooders2023 @GraymF1 @LabLab15460
@Haemosexual
@RupertLowe10
As you said how can the government mark there own homework #infectedblood #NotRecognised #Haemophilia #HEPC
@TeriG2569
Knowingly infected by the state ❤️💛🖤
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