#RARECancer - Twitter Hashtag

about 18 hours ago

Winnie at the ROS1ders UK National Conference on why peer support matters: others share the same core experience, so she no longer feels isolated. The full conversation is here: https://t.co/zAY0swzYg7 #ROS1 #LungCancer #RareCancer #PatientVoice #LungCancerAwareness

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TargetCancer Fdn @targetcancer

1 day ago

"What I thought was a job turned out to be a passion." Everyday, TRACK study team member Mary Oster connects with #RareCancer patients nationwide to help them understand how the TCF-001 TRACK study works. Thank you, Mary, for your dedication! #FacesofTCF

targetcancer's tweet photo. "What I thought was a job turned out to be a passion."

Everyday, TRACK study team member Mary Oster connects with #RareCancer patients nationwide to help them understand how the TCF-001 TRACK study works.

Thank you, Mary, for your dedication! #FacesofTCF https://t.co/sMSz4CqLJQ

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Diagnostics MDPI @diagnostic_mdpi

2 days ago

Primary neoplasms of the seminal vesicles—diagnosis by exclusion, with carcinoma and the rarer non-epithelial and biphasic tumours 🧬 Open-access narrative review by Zachariou et al. in @Diagnostics_MDPI: 🔗 https://t.co/Pv1seYoQMs #Urology #Pathology #RareCancer

diagnostic_mdpi's tweet photo. Primary neoplasms of the seminal vesicles—diagnosis by exclusion, with carcinoma and the rarer non-epithelial and biphasic tumours 🧬
Open-access narrative review by Zachariou et al. in @Diagnostics_MDPI:
🔗 https://t.co/Pv1seYoQMs
#Urology #Pathology #RareCancer https://t.co/1vSFulTm6j

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A.M. Cleaning & Supplies L.L.C. @cleansupplyAM

3 days ago

We would love to thank everyone for your support and telling others about this extremely rare Liver Cancer. It only effects a small amount of people. Please continue to share and tell others. #FiberolamellarHepatocellularCarcinoma #rarecancer #GoFundMe https://t.co/pV7JmeNLXt

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andrea saied @andreasaied

6 days ago

Nicola is 43, mum to Rebecca, Rachel and Hope, and living with FATWO, a cancer with only around 150 recorded cases worldwide. I’ve given £5 toward specialist reviews and support for her girls. Please share the GoFundMe page. #FATWO #RareCancer https://t.co/dEIWg1VLvr

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ROS1DERS UK Charity

@ros1dersuk

6 days ago

Scan day nerves are real. 💛 Small rituals can help: a slow morning, a comfort kit, your questions written down, someone on the phone. What’s in yours? #Scanxiety #ROS1 #rarecancer #Lungcancerawareness #Lungcancercommunity

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ROS1DERS UK Charity

@ros1dersuk

7 days ago

Living with lung cancer isn’t only physical. 💛 Your feelings are valid, scan-day dread and good days alike. Swipe for small ways to look after yourself, then tell us: what helps you? #EmotionalWellnessMonth #ROS1 #rarecancer #Lungcancerawareness #Lungcancercommunity

ros1dersuk's tweet photo. Living with lung cancer isn’t only physical. 💛 Your feelings are valid, scan-day dread and good days alike. Swipe for small ways to look after yourself, then tell us: what helps you?

#EmotionalWellnessMonth #ROS1 #rarecancer #Lungcancerawareness #Lungcancercommunity https://t.co/RZVOc67pU5

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Du.meᗢ @MissNihi

10 days ago

Chika has endured 4 surgeries, lost her right kidney and part of her left, and faces $80,000 immunotherapy infusions for rare ECS RCC. I donated to help her reach two Asian hospitals that accepted her case. Support her on the GoFundMe page. #RareCancer https://t.co/LxRb4qYW1w

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News18Gujarati

@News18Guj

10 days ago

દર્દીના ફેફસાંમાં ફેલાયું દુર્લભ પ્રકારનું કેન્સર, છેક શ્વાસનળી સુધી પહોંચ્યું; આ ટેકનિકથી બચ્યો જીવ #LungCancerAwareness #rarecancer https://t.co/xAIyADDVao

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Targeted Oncology @TargetedOnc

14 days ago

🔎 FDA News: VIR-5500 and [²¹²Pb]PSV359 have received #FDA fast track designations for #ProstateCancer and solitary fibrous tumors, respectively. Read more: https://t.co/hT9MumFGbh #Oncology #CancerTreatment #RareCancer

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A.M. Cleaning & Supplies L.L.C. @cleansupplyAM

16 days ago

Please support my daughter and her rare Liver Cancer. This is rare cancer that only effects a few hundred people in the world with a healthy Liver. Thank you. https://t.co/iBADAWA6EN #FiberolamellarHepatocellularCarcinoma #CancerCare #rarecancer #HelpUsLive #livercancer #donate

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Psych PhD @nomoretired2023

23 days ago

@KristinaRevay @ThePOTSPostman I found this interesting. There are/were so so many resources when I was dealing with my #RareCancer and it was "normal" to talk about it a lot. Yet with #ChronicIllness there is always a stigma around it. And it doesnt carry as much weight even if the person suffers more.

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National Organization for Rare Disorders (NORD)

@RareDiseases

29 days ago

Thank you for sharing your #RareCancer story, @RepRonTusler. We're committed to advocating for more investment in rare #cancer research on behalf of the 1 in 4 cancer patients in Wisconsin and across America facing a rare diagnosis. Learn more: https://t.co/LNL68vzqW9

Rep. Ron Tusler

@RepRonTusler

30 days ago

When I was diagnosed with spinal cancer, I had many doctor visits and a misdiagnosis. There was no FDA-approved treatment. I’m here because of my loving family, amazing doctors, and God’s miracles. Thank you, NORD, for the great work you do in WI #RareCancerDay

RepRonTusler's tweet photo. When I was diagnosed with spinal cancer, I had many doctor visits and a misdiagnosis. There was no FDA-approved treatment. I’m here because of my loving family, amazing doctors, and God’s miracles.
Thank you, NORD, for the great work you do in WI #RareCancerDay https://t.co/vqbsVxLb4m

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National Organization for Rare Disorders (NORD)

@RareDiseases

30 days ago

This #RareCancerDay, NORD is sharing findings from a survey of oncologists we conducted with @medliveofficial. What we found: 1 in 2 oncologists don't feel confident recognizing a rare #cancer. Read our full findings: https://t.co/rZtC7PGBWW #RareCancer #oncology

RareDiseases's tweet photo. This #RareCancerDay, NORD is sharing findings from a survey of oncologists we conducted with @medliveofficial.

What we found: 1 in 2 oncologists don't feel confident recognizing a rare #cancer.

Read our full findings: https://t.co/rZtC7PGBWW

#RareCancer #oncology https://t.co/0QQSOhOc7P

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National Organization for Rare Disorders (NORD)

@RareDiseases

30 days ago

Today is #RareCancerDay, a day devoted to shinning a light on the over 1 in 4 cancer patients diagnosed with a #RareCancer and the issues they face each day. Read Sarah's story about her experience living with neuroendocrine #cancer of the #appendix and how she chooses hope without certainty each day: https://t.co/yFwfCadyhx

RareDiseases's tweet photo. Today is #RareCancerDay, a day devoted to shinning a light on the over 1 in 4 cancer patients diagnosed with a #RareCancer and the issues they face each day.

Read Sarah's story about her experience living with neuroendocrine #cancer of the #appendix and how she chooses hope without certainty each day: https://t.co/yFwfCadyhx

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National Organization for Rare Disorders (NORD)

@RareDiseases

30 days ago

This #RareCancerDay, watch NORD’s Rare Cancer Coalition webinar featuring patients and experts discussing the #RareCancer research experience, barriers patients may face, and the vital role of rare patient perspectives in research: https://t.co/R9K1wjZ0Ew #CancerResearch #oncology #cancer

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SARC @SARCtrials

30 days ago

Today is Rare Cancer Day. Sarcoma is a #rarecancer—but rare cancers affect real people, real families, and real communities. At #SARCTrials, collaboration is at the heart of our mission: bringing researchers and clinicians together to advance sarcoma research. #sarcoma

SARCtrials's tweet photo. Today is Rare Cancer Day. Sarcoma is a #rarecancer—but rare cancers affect real people, real families, and real communities.

At #SARCTrials, collaboration is at the heart of our mission: bringing researchers and clinicians together to advance sarcoma research. #sarcoma https://t.co/vGQEOf71dI

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Vivek Subbiah, MD

@VivekSubbiah

about 1 month ago

2/8 We've been betting on the wrong horse. New data show rare cancer trials achieve 42.2% success rates vs. 38.2% for common cancers. Yet we marginalize them in drug development. Time to flip the script. My new @ESMO piece explains why. #RareCancer #Oncology https://t.co/8ab0yOO2e3

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ROS1DERS UK Charity

@ros1dersuk

about 1 month ago

Two unforgettable days at the ROS1ders UK National Conference 2026. The conversations, the connections, the expertise and, most importantly, the people who made it all happen. #ROS1 #ROS1dersuk #LungCancerCommunity #NationalConference2026 #rarecancer