Top Tweets for #Vascern
Can better patient care start with learning from others? Dr. Bosshardt joined the #VASCERN Exchange Programme at @vallhebron to see how experts in Barcelona integrate #research into #Marfansyndrome care.
Here’s what he learned: https://t.co/UQsI9Ccq1y
#RareDiseases #aortaed
🚀We have expanded to new skies!
Looking for more ways to stay updated on rare vascular diseases? We’re now sharing insights and resources in even more places. Come find us! 👀
#RareDiseases #VASCERN #StayConnected
📚The 2024 ESC Guidelines for managing peripheral arterial and aortic diseases (#PAAD) : Coordinated with #EACTS, #VASCERN, and #ESVM for alignment
🌍 Peripheral Arterial & Aortic Diseases (PAAD) affect 113M globally, with nearly 50% in low/middle-income countries.
🔍 Holistic evaluation is key—PAAD & aortic disease often coexist. Multidisciplinary teams should manage care.
👩⚕️ Women may present atypically—screening is vital.
💡 Lifelong follow-up, CV prevention, exercise, & diet are crucial to managing chronic PAAD.
🫶 Engage patients & families in decision-making and long-term support for better outcomes. #ESCCongress @escardio @ESC_Journals
2024 #ESC #Guidelines for the management of peripheral arterial and aortic diseases. Developed by the task force on the management of peripheral arterial and aortic diseases of @escardio, endorsed by @EACTS, @vascern and @ESVM_:
https://t.co/pGNDw4CBTq
@escardio @ESC_Journals
The second world Congress on rare skin diseases (#wcrsd #) has started in Paris. #vascular anomalies #diagnostics and #stratification in first day program! #vascapa #hevas #cmtc #vascern #revamp #vacure #vac2025 #deduveinstitute
The German Society of Neurosurgery meeting started in Göttingen. #vascular malformations, their genetic background and #theragnostics in the program. #vascapa #hevas #cmtc #vascern #deduveinstitute #welbio
#ESHG 2024 final day. Such a fantastic #European congress. Thousands of geneticists presenting latest discoveries on numerous rare and common #diseases. Future is bright for better #diagnostics, #treatment and #prevention. #vascapa #vascern #hevas #cmtc #revamp #vacure #uclouvain
#ESHG 2024 final day. Such a fantastic #European congress. Thousands of geneticists presenting latest discoveries on numerous rare and common #diseases. Future is bright for better #diagnostics, #treatment and #prevention. #vascapa #vascern #hevas #cmtc #revamp #vacure #uclouvain
Today we end the season of the #VASCERN #SpringMeetings with the #HHT Working Group in Paris.
An opportunity for the group to share their updates about #genetics, #european patient regisitries, clinical cases and much more. Thank you to all to make it happen!
À great session on #genetic defects behind #lymphedema and #lymphatic malformations at #ESL 2024. Patient #stratification using genetics will help future management trials. #vascapa #vascern #theralymph #deduveinstitute #lymph #lgda #LE&RN
Visages de la recherche, version télé : Z Research sur @TrendsCanalZ ce soir dès 20h avec @MiikkaVikkula @deDuveInstitute @UCLouvain_be @WELRI_asbl. Lauréat du Prix Generet pour les maladies rares, @FRB_KBS @FWOVlaanderen
Soutenez la recherche : https://t.co/Jx1YXmeexN
Visages de la recherche, version télé : Z Research sur @TrendsCanalZ ce soir dès 20h avec @MiikkaVikkula @deDuveInstitute @UCLouvain_be @WELRI_asbl. Lauréat du Prix Generet pour les maladies rares, @FRB_KBS @FWOVlaanderen
Soutenez la recherche : https://t.co/Jx1YXmeexN
Targeted treatment in #complex #lymphatic
anomaly (#CLA): a case of #synergistic efficacy
of #trametinib and #sirolimus:
https://t.co/o4zxB1Ticz
Lowered dose, no increase in #adverse effects.
#VASCAPA #HEVAS #LYMPH #ISSVA #VASCERN #Orphanet #theralymph #Welbio #CMTC #lymphedema
Interested in #drug #treatment of #vascular and #lymphatic anomalies. #Sirolimus and #Trametinib are used in trials & off-label. Here combination of both, in lower dose, effective without increased toxicity #VASCAPA #HEVAS #ReVAMP #ISSVA #VASCERN #CMTC
https://t.co/o4zxB1Ticz
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