Top Tweets for #arpkd
🧵 (3/3) ❄️ Keep indoor spaces cool
🚿 Cool down regularly
🌍 Small precautions can make a meaningful difference during the warmer months. Always follow the advice of your healthcare team regarding hydration, dialysis, and kidney care.
#PKDInternational #ADPKD #ARPKD #AIRP
Kurkal & Gupte 🚨 New way to classify liver disease in #ARPKD kids!
Moving beyond kidney-focused systems → simple, clinically meaningful categories (#CSLD vs #CiSLD) 🌍
90%+ expert agreement. 👀
#PedsGI #LiverTwitter #GiTwitter
Read: https://t.co/j7hvlbDyE0
PKD International was delighted to attend the ERKNet Annual Meeting in Lyon, contributing the patient voice in 2 WGs and participating in valuable discussions on clinical trial readiness and collaboration for rare kidney diseases across Europe.
#RareKidneyDiseases #ADPKD #ARPKD
Professor Pat Wilson, University College London, and Chair of PKD Research Advisory Board explaining PKD disease progression at #UKKW26
@kidneydayUK
#WorldKidneyDay #KidneysMatter #PKD #ADPKD #ARPKD
Let’s hear from the kidney doctor 👉 busting a big myth about kidney disease and why early diagnosis is key to protecting your health.
Find out more this World Kidney Day:
https://t.co/v9hS6awIuw
#WorldKidneyDay #KidneysMatter #PKD #ADPKD #ARPKD @kidneydayUK
💙 In one week, on March 12, 2026, we mark @worldkidneyday, the global campaign dedicated to raising awareness of kidney health and the importance of prevention, early diagnosis, and equitable access to care.
#PKDInternational #WorldKidneyDay #WorldKidneyDay2026 #ARPKD #ADPKD
72% of #RareDisease are #Gentic and they account for the majority of severe long term patients in our hospitals. It s worth remembering this ! #ADPKD #ARPKD
💛 Today, February 28, is @rarediseaseday.
🧬 It is a global moment to shine a light on rare diseases — and on the urgent need for earlier diagnoses, appropriate care pathways, continued research, and sustained support for patients and families.
#PKDInternational
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
https://t.co/OWIOajz0ww
#ARPKD #VisualAbstract
🌍 Fundación Mexicana para el Riñón Poliquístico de México A.C. is part of the PKD International network.
🔗 Discover more: https://t.co/kEh3Zc3hs0
#PKDInternational #ADPKD #ARPKD
✨ This Christmas, choose to give hope.
🔗 Donate today and support the PKD community: https://t.co/WgvE1aZkNg
#PKDInternational #PolycysticKidneyDisease #ChristmasGiving #ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
https://t.co/OWIOajz0ww
#ARPKD #VisualAbstract
At #PKDInternational, we are proud to partner with Njurförbundet, the Swedish Kidney Association — a national organization that supports people affected by kidney diseases, including polycystic kidney disease (#PKD).
🔗 Learn more: https://t.co/40vOChEx1W
#ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
https://t.co/OWIOajz0ww
#ARPKD #VisualAbstract
🔬 Multi-Omics: A Personalized Future for #PKD Patients
Multi-omics research is already transforming #ADPKD and #ARPKD studies.
💡 These advances bring us closer to a future where therapies are guided by each patient’s unique biological profile 👇
@TheRaCilProject
Determinants of left ventricular mass in children with autosomal recessive polycystic kidney disease
@jnephropathol #LVH #ABPM #ARPKD https://t.co/UdTMZrpE73
Diagnosing autosomal recessive polycystic kidney disease (#ARPKD) in children can be challenging. Researchers have now identified a unique urinary peptide pattern that can help distinguish ARPKD from other kidney conditions 👉https://t.co/lCqMH61syn
@TheRaCilProject
❤️ Today we celebrate 20 years of @AIRPonlus in Milan!
PKD International President Flavia Galletti proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛
#PKDInternational #PKD #ADPKD #ARPKD
Intronic and Coding Genetic Variants in Autosomal Recessive Polycystic Kidney Disease Among Israeli Bedouins of Arabian Peninsula Ancestry
https://t.co/OWIOajz0ww
#ARPKD #VisualAbstract
Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: https://t.co/SBKhNogAzG
#PKDInternational
🔍 Diverticula are more common in people with Polycystic Kidney Disease (PKD) than in the general population.
PKD is more than “just a kidney disease.”
Share the facts. Be PKD aware this Awareness Week:
👉https://t.co/Cbt5Jq2mUp
#PKDAwarenessWeek #ADPKD #ARPKD
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