Top Tweets for #bleedingDisorders
❤️ More than a community, we're family!
BDASC Fall Advocacy & Medical Symposium brought families together for a weekend of connection, education, advocacy, and unforgettable memories.
We're stronger together!
#BDASC #FAMS #BleedingDisorders
A WBDR workshop in the #DominicanRepublic explored research, advocacy and public policy for #hemophilia and other #BleedingDisorders. Thank you to Hemophilia of Georgia, Pfizer and Roche, with additional thanks to Novo Nordisk. #TreatmentForAll
📣 Bring your research and perspectives to #WFHCCS 2027 in #Prague! Share your work through oral presentations or posters to help shape comprehensive care for people with #hemophilia and other inherited #BleedingDisorders.
Submit by December 1, 2026: https://t.co/zKDYK3xAEW
Check Out This Week's News Brief!
Learn more about all the spooky fun at the 20th Annual Creepy Crawl!
Click here to read our News Brief: https://t.co/capiOfbwbS
#bdff #bleedingdisorders #newsbrief
Explore #BleedingDisorders care with four WFH webinars this November: adolescent care, rare bleeding disorders, women’s and girls’ oral health, and chronic synovitis.
Find session details and registration links in our article: https://t.co/KU8s58PEiF
Amy and Patrick take a trip down memory lane with childhood costume stories, why Halloween on a Saturday hits differently, and the year a bleeding issue cut trick-or-treating short.
https://t.co/wxC4sqll06
Sponsor: #Takeda
#bloodstreammedia #raredisease #bleedingdisorders
On Thursday our Bay Area advocates met with Assemblymember @BauerKahan and @RepDeSaulnier's offices.
Thank you to Lauren Howe and Gabriella Amini for taking time to hear our stories and learn about bills and budget issues that matter to our community!
#bdccfad #bleedingdisorders
Placer County advocates JP & Lynne were busy today meeting with Assemblymember Joe Patterson and staff from Senator Roger Niello and Congressman Kevin Kiley’s offices.
Thanks to Joe, Magnolia and Peter for taking time to listen and learn more about #bleedingdisorders.
#bdccfad
Yesterday Janice King and Andrea had the opportunity to meet with Congressman Gallagher in his Yuba City district office.
Thank you, Congressman, for your support of the bleeding disorders community here in California! #bdccfad #bleedingdisorders #hemophilia
We’re getting into the Halloween spirit, BloodStream style! From costume plans to Patrick fully embracing his Jafar-from-Aladdin face, there’s plenty to discuss.
https://t.co/wxC4sqll06
Presenting Sponsor: #Takeda
#bloodstreammedia #raredisease #bleedingdisorders
New on GHR, we are joined by Dr. Steven Pipe, Dr. Kenneth Friedman, and Dr. Len Valentino, President of @wfhemophilia USA, to explore the complexities of factor-level testing.
https://t.co/MRz7jBwUqW
Supported by @SanofiUS
#bleedingdisorders #clinicalresearch #hematology
A special thank you to Sanofi, a Platinum Sponsor of Save One Life’s NEXT Leaders Congress!
Your generous support helped make this event possible, bringing together young adults in the bleeding disorders community ❤️
#NEXTLeaders #SaveOneLife #BleedingDisorders @SanofiUS
At WHO EMRO #RC73 in #Cairo, Rana Saifi, Regional Manager, WFH, called for maintaining momentum to implement the WHA resolution on Global Action to Advance Health Equity for People with #Hemophilia and Other #BleedingDisorders. #TreatmentForAll
We’re proud to unveil the World Hemophilia Day 2027 theme: “Every voice counts.” 🩸
On April 17, we’ll celebrate the collective efforts advancing care for people with #BleedingDisorders, and invite you to help shape what comes next: https://t.co/6wKWNTuQfV
#WHD2027
Yujie (Ruby) Zuo, who lives with #hemophilia A, spoke with Mark Skinner, Board Member, WFH USA, to explore Susan Skinner’s legacy of supporting leadership among women with #BleedingDisorders. Read more: https://t.co/PzSWn8QRtx
@fedhemo A powerful reminder that no one should navigate #VonWillebrandDisease alone. Part of our year-long campaign marking 100 years of #VWD throughout 2026. Each month, we shine a light on a different aspect of VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
“I would be in the hospital for months.”
Jasiah and his mother, Brigit, recall the challenges of accessing #hemophilia treatment in #TrinidadAndTobago, and why timely care matters.
Read their story: https://t.co/SwA5Kj7IQr
#BleedingDisorders #TreatmentForAll
TODAY! Health equity means reaching everyone. VillageReach President and CEO Dr. Ahmed Ogwell (@laktarr001) delivers the keynote at @wfhemophilia #GPAS2026: 9 a.m. EDT / 2 p.m. BST / 3 p.m. CAT. Free and virtual.
Register: https://t.co/T1Df9IFU6J #BleedingDisorders
🌍 #GPAS2026 starts today! Explore the WHA resolution, gaps in care, and advocacy for people with #hemophilia and other #BleedingDisorders.
Join us at 9 a.m. EDT - online and free.
Register here: https://t.co/saVggTyH26
Thank you Hemophilia Alliance for supporting the summit 🩵
📣 Registration is open for #wfhCCS 2027!
Join the global community in #Prague to learn, exchange ideas, and advance care in #hemophilia and other inherited #BleedingDisorders.
📅 April 14 - 16 2027
Register by January 31 for the early-bird rate: https://t.co/QojGxDOElZ
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