Top Tweets for #developakure
No good road network, major roads with floods when its raining. Yet out road is roads are full of potholes.
Àkúré should be treated nicely like the millenium city it was in the good old days of the past administrations.
#DevelopAkure.
Indeed, today's Black Pearl Award marks years of dedicated efforts !! CONGRATS !! Dr #NickSireau @AKUSociety, thank you for also acknowledging the EU-funded support for #Developakure (EU Research Programme) #raredisease #Alkaptonuria
It all started with a dedicated father of two who found out that both his sons suffer from #raredisease #Alkaptonuria.
Discover the successful results of #EUFunded #FP7 project #DevelopAKUre 👉 https://t.co/oOYHXkFtp5
#EUHealthResearch
Great news for the #RareDisease community!
Extension to the existing marketing authorisation for Orfadin, to be used in #Alkaptonuria, has been possible thanks to #FP7 grant #DevelopAKUre.
➡️https://t.co/kP4BRtIPG2
#InvestEUResearch🇪🇺
I am pleased to announce that following @EMA_News recommendation & the excellent work carried out by #EUfunded #DevelopAKUre, the @EU_Commission has adopted the Decision to extend marketing authorisation for Orfadin for the treatment of #Alkaptonuria👏
➡️https://t.co/I3XKbDT7Id
A truly remarkable achievement for #Alkaptonuria sufferers as the @EU_Commission adopted today its Decision to extend marketing authorization to Orfadin👉https://t.co/gmtIraSrfs
Its development for the treatment of this #RareDisease was enabled by #EUfunded #DevelopAKUre.
Another inspiring #talk by Dr #NickSireau @AKUSociety 🔝😃🤩 no presentation slides, "just" a super #speech! Wow 🙌
#ECRD2020 @eurordis
#rarediseases #advocate #awareness #patient #research #science #treatment #Alkaptonuria #DevelopAKUre
Buenas noticias para #EERR, ensayo clínico #DevelopAKUre de #nitisinona en pacientes con #alcaptonuria #AKU , ha sido analizado y ha mostrado resultados positivos 👍
#ResearchImpactEU
https://t.co/t869hjA5tC
Vía @EU_H2020
It all started with a dedicated father of two who found out that both his sons suffer from #raredisease #Alkaptonuria.
Discover the successful results of #EUFunded #FP7 project #DevelopAKUre 👉 https://t.co/oOYHXkFtp5
#EUHealthResearch
retweet @ EU_H2020: Good news for #raredisease Alkaptonuria (AKU) patients as a #EUfunded clinical trial of #nitisinone in AKU has been analysed & shown positive results! 👉 https://t.co/VA2ETglG1p
#ResearchImpactEU #DevelopAKUre
Good news for #raredisease Alkaptonuria (AKU) patients as a #EUfunded clinical trial of #nitisinone in AKU has been analysed & shown positive results! 👉 https://t.co/aSRpBftYLm
#ResearchImpactEU #DevelopAKUre
Seven years in the making: @akusociety sees the end of the #DevelopAKUre trials for the drug nitisinone, which shows positive trends. A new chapter begins for them https://t.co/FfMMl0Nf36
Today on #RareDiseaseDay discover the #H2020 project #DevelopAKUre that completed three clinical trials bringing a potential treatment for alkaptonuria closer to commercialisation!⚕️
➡️https://t.co/LvvlvrH1um
#EUHealthResearch #ResearchImpactEU🇪🇺
Now that's what you call note taking, very impressive @twovizthink Thanks @AKUSociety for a great day. #alkaptonuria #CPD #dietetics #DevelopAKUre #raredisease #akuworkshop2018 #twovizthink
Vitaflo Dietitians keeping up to date today with the help of @AKUSociety on #alkaptonuria #CPD #dietetics #DevelopAKUre #raredisease #akuworkshop2018
Through @findacure_fdn, I discovered the @AKUSociety which was looking for someone to coordinate patient recruitment, patient support & dissemination (comms) for their pioneering patient-led #DevelopAKUre clinical trials
Runner with Knee Injury Finishes Marathon to Awareness for Alkaptonuria https://t.co/jbHW5vQKRG #AKU #RareDisease #DevelopAKUre @AKUsociety
Today is my last day at the @AKUSociety after a fantastic 7 years! I wish all the best for the charity and the #DevelopAKUre clinical trials
Heading to Amsterdam today with the @AKUSociety for the #DevelopAKUre Project Board meeting tomorrow. Lots of prelim results to discuss!
Proud to be chairing the new @PSRorphan Patient Advisory Board, building upon our #developAKUre partnership https://t.co/37KXP3j922
PSR Orphan Experts Launches Patient Organization Advisory Board https://t.co/tG3zWCOP3L
AKU patients discuss their experience of being enrolled
in the #DevelopAKUre clinical trial. https://t.co/kp6uXQQJbD @AKUSociety
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