#diffusescleroderma - Twitter Etiketi

3 yıldan fazla bir süre önce

Yesterday was my stem cell transplant birthday and I celebrated accordingly! I'm 7 years old now!!! I'm grateful to be here and enjoy this second chance everyday!!! #HSCT #StemCells #DiffuseScleroderma #AntiRNApolymerase3 #LovingLife

julieisthekey's tweet photo. Yesterday was my stem cell transplant birthday and I celebrated accordingly! I'm 7 years old now!!! I'm grateful to be here and enjoy this second chance everyday!!!
#HSCT
#StemCells
#DiffuseScleroderma
#AntiRNApolymerase3
#LovingLife https://t.co/YQFTFDOsnN

Julie🟧 🟦 @julieisthekey

yaklaşık 6 yıl önce

#ACASavedMyLife My preexisting condition of scleroderma would have had me dead in 5 years. Thanks to #ACA I found insurance coverage for a #StemCellTranplant. Thriving and healthy today because of these democratic policies! #RidenWithBiden #BuildBackBetter

julieisthekey's tweet photo. #ACASavedMyLife
My preexisting condition of scleroderma would have had me dead in 5 years. Thanks to #ACA I found insurance coverage for a #StemCellTranplant. Thriving and healthy today because of these democratic policies!
#RidenWithBiden
#BuildBackBetter https://t.co/xuFaUwu2zG

316

2K

644

14

0

24

77

7

0

3K

JustJulie @JustJul87741611

4 yıldan fazla bir süre önce

6 years ago I had a stem cell transplant, #HSCT. I am overjoyed to be healthy and living my best life. #DiffuseScleroderma #AutoImmuneDisease #DrRichardKBurt #ChicagoNorthWestern #AntiRNApolymerase3 #AliveandWell

JustJul87741611's tweet photo. 6 years ago I had a stem cell transplant, #HSCT. I am overjoyed to be healthy and living my best life.
#DiffuseScleroderma
#AutoImmuneDisease
#DrRichardKBurt
#ChicagoNorthWestern
#AntiRNApolymerase3
#AliveandWell https://t.co/xA5JwLOBne

24

45

3

0

Julie🟧 🟦 @julieisthekey

4 yıldan fazla bir süre önce

#RareDiseaseDay2022 I have #DiffuseScleroderma I was given chemotherapy to reset my immune system and then had my own stem cells transfused back into my immune deficient body. I am grateful to be alive! #NorthWesternChicago #HSCT #StemCellsSaveLives #VeryRareDiseaseDay #HOPE

5

13

0

1

0

Julie🟧 🟦 @julieisthekey

neredeyse 5 yıl önce

@Rschooley @LisaKeel9 Mayo diagnosed my rare disease and saved my life in doing so. #DiffuseScleroderma #AntiRNApolymerase3 #SclerodermaSucks

0

6

0

Julie🟧 🟦 @julieisthekey

neredeyse 6 yıl önce

@QuinnLeone4 It is sad. I cry everytime. 😪😪😪😪 Yes!!! Kicking ass and taking names! #DiffuseScleroderma #StemCellTransplant #DrRichardKBurt https://t.co/Y8Y1JMo5CX

1

0

Julie🟧 🟦 @julieisthekey

yaklaşık 6 yıl önce

@LeahScottJewell @js_edit Yes and no. It usually is but I was lucky enough to be in a clinical trial and I am in remission. #DiffuseScleroderma

0

Nadia Siddiqi @NadiaSiddiqi

neredeyse 9 yıl önce

@bobsaget @iTunes @amazon https://t.co/co5ofEUoAv #Singing for #Christmas #Hannukah #Bobby #AmalClooney #Doppelganger https://t.co/5J4yLhq0Xk #DiffuseScleroderma #undiagnosed #worriedformummy #LaVieEnRose #rendition #inTraffic https://t.co/hXgtgvWQoX https://t.co/Ar5YmnYuiM #Shameless #selfplug #promo #Do

1

4

2

0

Nadia Siddiqi @NadiaSiddiqi

neredeyse 9 yıl önce

@STRAYKIDSTFLN Nike Swoosh #original #lyrics #song #Lasso #Ragdoll #shamelessplug #VoiceResults #Thevoice #Promo https://t.co/iRUnFMEkpe https://t.co/p1NXpP13T8 #NadiaShireenSiddiqi #NadiaWriterSiddiqi #Nurse #Scrubs #Unionjack #ACapella #aunaturale #DiffuseScleroderma #Familial

0

5

1

0

Nadia Siddiqi @NadiaSiddiqi

neredeyse 9 yıl önce

@RepSwalwell Why did he resign? #gorrilas #sunshineinabag #freemoney #cut #expenditure #sick #bloated Lost my #earbud #humanist #feminist #marxist #gibberish #bunkum #ToxicCrusaders #Suits #HLS #RoyalWedding #TransatlanticDeak #diffuseScleroderma https://t.co/uVS4FmXDLx #Dreamon

0

2

0

Joel @JoelAfterTime2

9 yıldan fazla bir süre önce

Today's Rare Diseases Day. I want to thank @GlobalGenes for their support for sufferers of rare diseases. #DiffuseScleroderma #WRDD2017 https://t.co/l9uvCUPhOc