Top Tweets for #endSUDEP
SUDEP Action Day – 18 October 2022
#SUDEPActionDay #EndSUDEP #EpilepsyAwareness #SeizureSafety #SUDEPPrevention #KnowTheRisks #EpilepsySupport #EpilepsyResearch #StayInformed #TakeAction #SUDEPAwareness #SeizureAware #EpilepsyCommunity #HealthForAll #RaiseAwareness #SupportSUDEPAction #EpilepsyWarrior #LivingWithEpilepsy #StayStrong #SUDEPResearch
Incredible research by @uihealthcare neuroscientists published this week in a high-profile journal! This is ground-breaking research as this study identifies the brain region (amygdala) associated with breathing failure following seizures. #EndSUDEP #EndEpilepsy
UI study identifies brain sites linked to loss of breathing after a seizure, bringing researchers closer to understanding what causes SUDEP—Sudden Unexpected Death in Epilepsy—a rare but fatal complication of #epilepsy. Learn more: https://t.co/q6Kp21KNh2 @IowaMed @UIowaNeuro
Its Monday, beautiful day
Let's talk about Epilepsy
Let's raise awareness about Epilepsy
Let's End stigma associated with Epilepsy
#endsudep #epilepsyawareness #endseizures
To every one out there we wish you a great Sunday
Let's end Stigma let's love one another
Let's be the reason someone is comfortable with their conditions
#TANZANIAEPILEPSYORANISATION #ENDSUDEP #EPILEPSYISMORETHANSEIZURES
@akhstanzania @usembassytz @ICInclusion @SarahMatuja
Epilepsy can occur in children who have no other developmental challenges; however, epilepsy is common in children who have developmental disabilities. Approximately 30% of children with epilepsy have other developmental disabilities
#endsudep #epilepsyawareness
We are excited to partner with @CureEpilepsy on this webinar. It is critical to keep talking with #DEE #RareEpilepsy families about the prevention of #SUDEP. #EndSUDEP
Join us for our upcoming, free webinar which will cover what we know about SUDEP (Sudden Unexpected Death in Epilepsy), specifically in the rare epilepsy community.
https://t.co/h1K0Bihs7y
#epilepsywebinar #SUDEP #rareepilepsy
...You are not forgotten. 💜 Here's a preview of the Memory Wall for #EpilepsyWalkLA on March 6. Are you walking in memory of someone you loved? Bring their photo or write their name on the wall.
Register, Donate, or Take Action: https://t.co/RoXPsnDbJu
#EndEpilepsy #EndSUDEP
If a person gets a seizure in your presence, how do you go about it 🤔.
Let's talk about seizure first aid and recovery!
#endsudep
#epilepsyawareness
#epilepsyandcovid19
#ncds
#kawekenya https://t.co/KNx8TO5x8H
Happy Birthday to Cameron Boyce. Today would’ve been his 22nd birthday. RIP 🖤
Is #SUDEP scary as heck? Yes! Take this unique opportunity (Wed pm) to hear families, some #DEE #caregivers, about what they've learned and what they wish they knew earlier. Let's all help #EndSUDEP and prevent needless #Epilepsy deaths @EpilepsyFdn https://t.co/948fcUYrz5
Please join us to talk about sudden unexpected death in #epilepsy on Jan 27th. The panel has 4 families who have experienced or live with the fear of #SUDEP, incl Sally Schaeffer, SUDEP Institute Director @EpilepsyFdn. Ask ?s, learn and help #EndSUDEP
https://t.co/JGDMDlKhTT
More from Jordan: "Today is a very special day ... I ran 15 miles [on] Joe’s 25th birthday to conclude my 100 day running for epilepsy challenge. Overall, I covered 250 miles ... we raised $6,082 for the Epilepsy Foundation." (2/2)
#EndSUDEP #sudepawareness #run100 #runforjoe
I'm supporting Epilepsy Foundation of America! https://t.co/awPSxtZ0xt via @DonorDrive #rhettrocks #endepilepsy #EpilepsyAwareness #seizuresafeside #endsudep #epilepsywarrior
"...While medication helped get the #seizures under control, his parents couldn't always monitor his condition when he went to bed"
#EpilepsyAwareness #monitoring #device #EndSUDEP
https://t.co/2ly1U8Qy8L
Epilepsy Foundation Board Chair Bradley P. Boyer, Esq. and @EpilepsyChicago Board Member Geoffrey Vance, Esq. discuss the prevalence of epilepsy and epilepsy-related deaths, and the Epilepsy Foundation's mission to #EndEpilepsy and #EndSUDEP: https://t.co/VKBevowAjZ
👇When to be evaluated by an #Epilepsy Specialist or referred to an #NAEC #EpilepsyCenter #NationalAssociationOfEpilepsyCenters @EpilepsyFdn @myepilepsystory @AmEpilepsySoc #EpilepsyAwareness #EndSUDEP
Dr. @bensalem_owen director of our Epilepsy Program, explains the benefits of seeing a neurologist specializing in epilepsy – called an epileptologist – as well as what to expect at a specialized epilepsy center.
https://t.co/1kWQQYr13c
What is #epilepsy? #SUDEP? Learning about Sudden Unexpected Death in Epilepsy is vital for every person, patient & parent. We must all work to #endepilepsy & #endsudep. TY #TheCameronBoyceFoundation & @EpilepsyFdn for this PSA. Remembering #CameronBoyce: https://t.co/K6LJoLkNKD
#TheCameronBoyceFoundation & @EpilepsyFdn have collaborated to create #kNOwSUDEPNow. Watch the PSA honoring Cameron Boyce feat. Cameron’s parents, @TheVictorBoyce & Libby Boyce, and friends @KaranBrar and @Sophie1Reynolds. #EndSUDEP #EndEpilepsy
Raise awareness about epilepsy & the risks of sudden unexpected death in epilepsy (SUDEP). Together we can share tools & resources to help others engage w/their health care team about reducing possibilities of SUDEP & accelerate research to help #EndSUDEP. https://t.co/RvF7vgbrVQ
"My mother passed away from epilepsy just over 2 years ago and I make sure to tell everyone I know, friends, family, and even acquaintances about the risks of #epilepsy and how they can help fund more research to #EndSUDEP and epileptic symptoms." - Nicole #EndEpilepsy
" My mother passed away from epilepsy just over 2 years ago and I make sure to tell everyone I know, friends, family, and even acquaintances about the risks of #epilepsy and how they can help fund more research to #EndSUDEP and epileptic symptoms." - Nicole #EndEpilepsy
" My mother passed away from epilepsy just over 2 years ago and I make sure to tell everyone I know, friends, family, and even acquaintances about the risks of #epilepsy and how they can help fund more research to #EndSUDEP and epileptic symptoms." - Nicole #EndEpilepsy
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