Top Tweets for #facommunity
Friedreich's ataxia places a heavy burden on patients and caregivers, impacting them physically, emotionally, and financially, per a study. https://t.co/fAqliREmWw
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Exercise improved fitness in kids and adults with FA, per a study that also found no clear added benefit from an energy-boosting supplement. https://t.co/Hk6KjLydNJ
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
For FA Awareness Month in May, columnist Elizabeth Hamilton is switching things up to acknowledge that caregivers need self-care, too. https://t.co/YpUSo3gx3n
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Nomlabofusp helps increase frataxin levels in Friedreich's ataxia, and its effects can be easily monitored using skin or cheek cell samples. https://t.co/dnBlwdA5MQ
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Columnist Jean Walsh recalls how she worried about telling her friends about her FA diagnosis, and how her true friends stuck by her. https://t.co/7UbtvTPGwZ
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Columnist Matt Lafleur felt defeated when he was turned down for a clinical trial, but then something happened when he least expected it. https://t.co/4CYFbaRJ2E
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Early diagnosis of advanced heart failure enabled timely evaluation and access to a heart transplant for a man with FA. https://t.co/6nC5AX66yT
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Columnist Jean Walsh could still walk when she and her husband bought their home, but now they need a new kitchen due to her FA. https://t.co/FSqzikkLF4
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
The 2026 Annual Ataxia Conference ended with laughter and empowerment, as a comedian living with FA shared her challenges, and hopes. https://t.co/SjYFlarMXL
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Brain scans of people with Friedreich’s ataxia (FA) revealed reduced communication between the frontal cortex and the cerebellum. https://t.co/8qm06cSxTa
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Living with Friedreich's ataxia often involves fatigue, but some practical advice may help in the management of this common FA symptom. https://t.co/XrkDL8vYM5
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
A session at this year's Annual Ataxia Conference offers tips to help people with Friedreich’s ataxia prepare for a first neurologist visit. https://t.co/Ri0cGgF7PJ
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Columnist Kendall Harvey grieves the loss of her ability to run, but she's trying her best to bloom where she's been planted. https://t.co/pU3NF3cmAN
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
U.S. researchers have developed stem cell lines derived from a man with Friedreich's ataxia carrying an ultra-rare mutation in the FXN gene. https://t.co/G0jy2z1Vpw
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
An 80-member group of people affected by rare diseases found support and connection on a cruise organized by a Friedreich's ataxia patient. https://t.co/vNVEyVV7kC
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
The 2026 Annual Ataxia Conference will feature educational sessions, social events, and a keynote with Fiona Cauley and Bill Nye. https://t.co/iPHw27GMmS
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
A brain imaging marker linked to increased activity of support cells in the brain help detect early disease activity in children with FA. https://t.co/CzsjKbW3QJ
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Using MRI scans, researchers found that shrinkage in a brain pathway key to movement is linked to motor symptoms in Friedreich's ataxia. https://t.co/pCpgu6LdSA
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
It was time for columnist Elizabeth Hamilton to buy a car, but several factors came into play, including her daughter's mobility needs. https://t.co/2XF47E7q9u
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
Columnist Kendall Harvey dreamed of being a helpful person everybody admired, but Friedreich's ataxia taught her that she would need help. https://t.co/dKJ915pj4J
#FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity
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