Top Tweets for #fall2018ls
@NPCQIC A promise made to work as hard and as fast as we can to increase longevity and quality of life for those living with single ventricles. Remembering why we started, we'll get to the right outcome. #fall2018LS
Great to hear the official count - there were as many parents and individuals with single ventricle at @NPCQIC #Fall2018LS as there were cardiologists! Now that’s some co-production!
Pictured are many of the patients and parents in attendance this past weekend.
Check out @NPCQIC's #Fall2018LS hashtag feed for Learning Session celebrations! Congrats on a successful Learning Session, NPCQIC!
NPCQI. Attending with children and adults living with single ventricles. This is why we do what we do what we do @NPCQIC #fall2018LS
Truly powerful presentations at the @NPCQIC #Fall2018LS day 1 by mother, father, and patient/provider Alicia Coleman Wilmoth emphasizing the importance of creating a #FontanOutcomesNetwork for the future of #SingleVentricle patients, siblings, parents, spouses, and providers.
A powerful family changed the HMP platform for families @LurieChildrens. Accepting the status quo, was not an option for their 1 year son Winston and told their story of change with 6 week old little sister in the #Fall2018LS @NPCQIC.
#Fall2018LS Primary Children’s Hospital representing!
We are collaborators at ❤️!! @NPCQIC @Sarahclauss1 @NanAddison @kids_heart_doc #Fall2018LS #Inova #CNMC #UVA #ChicagoPizza
Photo Booth Fun! #Fall2018LS
The vision of Fontan Outcomes Network. It is a promise to Individuals living with single ventricle to do our best to improve and lengthen their lives. #Fall2018LS @NPCQIC
Proud to see our Aussie ANZ Fontan Registry research, led by Yves D’Udekem and my dear colleagues and friends, highlighted at #Fall2018LS ❤️@NPCQIC @HeartKidsAust @HeartAust @DuPlessis_K @DrWinlaw @MarshallKateH @KarenJEagleson #FontanRegistry #CHD #heartdisease
The Fontan is laid out like a finish line. But like every other parent, we want to know about his future. I want my son to outlive me. — Erin Hoffmann @npcqic #fall2018LS
Thank you for inspiring us and casting this vision Alicia. We will work together to turn this vision into reality. @NPCQIC @pc4quality @PCHA_CHD @SistersHeartSBH @Action4HF #Fall2018LS
Really something special to be listening to people with complex congenital #heartdisease and their families share their visions for the future of pediatric cardiac care #Fall2018LS @NPCQIC Tears and laughter fill the auditorium ❤️
@npcqic Lots of roles coming together to improve survival and quality of life for HLHS individuals. Here are mine. #Fall2018LS
HLHS patients having fun at National Pediatric Cardiology Quality Improvement Collaborative #Fall2018LS
Inova Childrens representing at the NPC-QIC Fall Learning session. Great turnout and learning a lot! #fall2018LS
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