#findfcs - Twitter Hashtag

10 months ago

On #WorldHeartDay we unite across continents to raise awareness, inspire action & celebrate ❤️ health. 👉 Up to 80% of premature CVD deaths can be prevented. #DontMissABeat #FindFH #FindHoFH #FindLpa #FindFCS

fhpatienteurope's tweet photo. On #WorldHeartDay we unite across continents to raise awareness, inspire action & celebrate ❤️ health.
👉 Up to 80% of premature CVD deaths can be prevented.
#DontMissABeat #FindFH #FindHoFH #FindLpa #FindFCS https://t.co/F4F6MK5wKT

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FH Europe Foundation @fhpatienteurope

over 1 year ago

FCS Awareness Day is today! Join us in the #FCS10gFatChallenge. People with FCS have difficulty with metabolising or absorbing #fat. Any fat. Also the healthy fats. #FindFCS #Rarediseases

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FH Europe Foundation @fhpatienteurope

about 2 years ago

DAY3 of the #HU24EU! High-Level Conference on Cardiovascular Health! #Hungary will present a concept paper on #CVD which builds on the #EACH #CVH Action Plan. #FindFH #FindHoFH #FindLpa #FindFCS #cholesterol #LDL #PerfectoFH #UseHeart #FHEF #PatientVoice https://t.co/gSpoGkDrDl

fhpatienteurope's tweet photo. DAY3 of the #HU24EU! High-Level Conference on Cardiovascular Health! #Hungary will present a concept paper on #CVD which builds on the #EACH #CVH Action Plan.

#FindFH #FindHoFH #FindLpa #FindFCS #cholesterol #LDL #PerfectoFH #UseHeart #FHEF #PatientVoice https://t.co/gSpoGkDrDl https://t.co/i2r1X9B1GS

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FH Europe Foundation @fhpatienteurope

about 2 years ago

#FHEurope delegation representing the Network of 32 patient org. for people living with familial lipid disorders* / #CVD risk factors will be present at the conference where #Hungary will present a concept paper on #CVD. #FindFH #FindLpa #FindFCS #CVH https://t.co/D5NqdIwhsC

fhpatienteurope's tweet photo. #FHEurope delegation representing the Network of 32 patient org. for people living with familial lipid disorders* / #CVD risk factors will be present at the conference where #Hungary will present a concept paper on #CVD.

#FindFH #FindLpa #FindFCS #CVH
https://t.co/D5NqdIwhsC https://t.co/enCbMOfhB5

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Federica Fogacci @FedericaFogacci

almost 3 years ago

Great to see what @society_eas & @fhpatienteurope have in store for the #FHWeek 🌟 Take a look at the programme and don't miss the chance to ask the speakers what you've always wanted to know about FH! https://t.co/GdAT9v28nQ #FindFH #FindHoFH #KnowFH #FindFCS #FindLpa #KnowLpa

FedericaFogacci's tweet photo. Great to see what @society_eas & @fhpatienteurope have in store for the #FHWeek 🌟
Take a look at the programme and don't miss the chance to ask the speakers what you've always wanted to know about FH!
https://t.co/GdAT9v28nQ
#FindFH #FindHoFH #KnowFH #FindFCS #FindLpa #KnowLpa https://t.co/aczjcsdwet

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FH Europe Foundation @fhpatienteurope

over 3 years ago

#FCS in #children #webinar! Don’t miss this rarely covered topic during a dedicated online event hosted by @ActionFCS. Wednesday, April 26th 2023 8pm-9pm CET. To register, please email [email protected] #inheritedlipids #raredisease #FindFCS #FHEurope #Network

fhpatienteurope's tweet photo. #FCS in #children #webinar!

Don’t miss this rarely covered topic during a dedicated online event hosted by @ActionFCS. Wednesday, April 26th 2023 8pm-9pm CET. To register, please email info@actionfcs.org

#inheritedlipids #raredisease #FindFCS
#FHEurope #Network https://t.co/umxHgAqlty

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FH Europe Foundation @fhpatienteurope

about 4 years ago

🔊the #RareBarometer survey on the Journey to Diagnosis for People Living with a Rare Disease closes - June 15! Open to #people living with a #raredisease and their #family members from around the🌍. Available in 26 languages, more👉https://t.co/1EkvpzakqO #FindHoFH #FindFCS

fhpatienteurope's tweet photo. 🔊the #RareBarometer survey on the Journey to Diagnosis for People Living with a Rare Disease closes - June 15!

Open to #people living with a #raredisease and their #family members from around the🌍.

Available in 26 languages, more👉https://t.co/1EkvpzakqO

#FindHoFH #FindFCS https://t.co/ewG4fMM7za

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Daccord Magdalena @magdadaccord

over 4 years ago

I feel confident about the #ambassador programme with the @fhpatienteurope & Team, as we build on the @eurordis Winter School learnings. A big shout out to the #Eurordis team,the faculty and the incredible peers. #rarediseases #scientificinnovation #FindHoFH #FindFCS

magdadaccord's tweet photo. I feel confident about the #ambassador programme with the @fhpatienteurope & Team, as we build on the @eurordis Winter School learnings.

A big shout out to the #Eurordis team,the faculty and the incredible peers.
#rarediseases #scientificinnovation #FindHoFH #FindFCS https://t.co/NqEv8oK9C2

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FH Europe Foundation @fhpatienteurope

over 4 years ago

Today is #FCS Awareness Day! Familial chylomicronemia syndrome (FCS) is a #raredisease. People with FCS can't eat #fat as they don't have the enzyme which breaks it down. It’s a #genetic #lipid #disorder, meaning it is passed down from parents, present from birth. #FindFCS

fhpatienteurope's tweet photo. Today is #FCS Awareness Day!
Familial chylomicronemia syndrome (FCS) is a #raredisease. People with FCS can't eat #fat as they don't have the enzyme which breaks it down.

It’s a #genetic #lipid #disorder, meaning it is passed down from parents, present from birth. #FindFCS https://t.co/che9k7RAfi

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