Top Tweets for #iAmNumber17
Please take just 2 minutes to complete our survey - Share your Rare Reality and make the voice of the rare disease community heard this #RareDiseaseDay
#StrongerTogether #RareReality #IamNumber17
https://t.co/yiIoqJKx1r
What's YOUR RARE REALITY?
Share your recent healthcare experiences in this brief survey? RDI will share results with government, policy makers, HSE leadership and the public to shine a light on Feb 28 - #RareDiseaseDay
Survey closes midnight Tues Feb 24
https://t.co/SF9qCULXUk
#Ataxia_Spotlight
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my #Ataxia story and #IAmNumber17
International Ataxia Awareness Day September 25th #IAAD #IAAD25 #IAAD2025
James Lowe launches #IamNumber17 book raising awareness of individually rare collectively common #RareDiseases
#BallybrickenInABook
@WaterfordNS
Photo's coming to
@UHW_Waterford for #RareDiseaseDay2026
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my story and why my Passport is significant to me in my #RD journey
Visit the #IAmNumber17 website to learn
https://t.co/Wh8YcHlDrp
We signed the #IAmNumber17 open letter to the government, calling for greater awareness and support to ensure people with rare diseases receive the care and understanding they deserve and need. Together, we can make a difference. Read the full letter here: https://t.co/4aHMV7J3OI
@lifearc1 @GeneticAll_UK π£ We have delivered an open letter to the Government calling for greater awareness and support to ensure people with #RareDiseases receive the care and understanding they need and deserve.
Read the full letter here to learn more: https://t.co/lvgEHn4wp0
#IAmNumber17
π£ We have delivered an open letter to the #Government calling for greater awareness and support to ensure people with a #RareDisease receive the care and understanding they need and deserve.
Read the full letter here to learn more: https://t.co/lvgEHn3Yzs
#IAmNumber17
π· We have delivered an open letter to the Government calling for greater awareness and support to ensure people with #RareDiseases receive the care and understanding they need and deserve.
Read the full letter here to learn more: https://t.co/cnj6TlqjxK
#IAmNumber17
We signed the #IAmNumber17 open letter to the government, calling for greater awareness and support to ensure people with rare diseases receive the care and understanding they deserve and need.
Together, we can make a difference.
Read the full letter: https://t.co/aBOl0kFZMn
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my story and why my Passport is significant to me in my #RD journey
Visit the #IAmNumber17 website to learn
https://t.co/Wh8YcHlDrp
Behind every statistic is a person, a family, a story. Let's raise awareness for the challenges faced by the rare disease community. Visit the I am number 17 website to learn more: https://t.co/rsnkq1OEZQ
#IAmNumber17 #RareDisease
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my story and why my Passport is significant to me in my #RD journey
Visit the #IAmNumber17 website to learn
https://t.co/Wh8YcHlDrp
1 in 17 people in the UK will be affected by a #RareDisease but the realities of living with one often go untold. Learn about my story and why my Passport is significant to me in my #RD journey
Visit the #IAmNumber17 website to learn
https://t.co/Wh8YcHlDrp
1 in 17 people in Ireland live with a rare disease
-thatβs over 300,000 teammates, fans & friends. Rare isnβt always that rare.
The #IAmNumber17 campaign is now live at Croke Park, sharing 17 powerful stories from real-life Changemakers. https://t.co/VxC2MkAoVZ
@UHW_Waterford
We're proud to support the #IAmNumber17 campaign and advocate for the rare disease community π
π₯Watch the #FridgeDiaries film and learn more about the hidden reality of living with a #RareDisease. Help us raise awareness and share the film: https://t.co/rsnkq1OEZQ
Rare diseases are often invisible to the outside world, but their impact is profound.
π· Watch the #FridgeDiaries film to understand the hidden reality of living with a #RareDisease and share it with your community to help raise awarensses
#IAmNumber17
Rare diseases are often invisible to the outside world, but their impact is profound.
π· Watch the #FridgeDiaries film to understand the hidden reality of living with a #RareDisease and share it with your community to help raise awarensses
#IAmNumber17
We're proud to support the #IAmNumber17 campaign and advocate for the rare disease community.
π₯Watch the #FridgeDiaries film and learn more about the hidden reality of living with a #RareDisease. Help us raise awareness and share the Fridge Diaries film
https://t.co/65ppuBAsJQ
Rare diseases are often invisible to the outside world, but their impact is profound.
π₯ Watch the #FridgeDiaries film to understand the hidden reality of living with a #RareDisease and share it with your community to help raise awareness:
https://t.co/w1eGkZcLiP
β¨#IAmNumber17
1 in 17 people in the UK will be affected by a #RareDisease.
Their stories are often invisible and go untold. We're changing that. π
The #FridgeDiaries film launches soon. Learn more about the I am number 17 campaign at:
https://t.co/srrQjOw1BR #IAmNumber17
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