Top Tweets for #makeindiaibdaware
We complete 5 years today! Creating IBD India was act of rebellion - a step towards decolonizing and indigenizing IBD representation and advocacy in India. Despite continuing challenges, we are committed to working for the legitimate needs of our community. #makeIndiaIBDaware
This World IBD Day, let's take a step to talk about IBD a little more, remove the stigma, and move towards a better future for all those who live with IBD, and build a nation where every person with IBD is seen, heard and supported equally.
#makeIndiaIBDaware #worldIBDday2026
We conducted our first ever IBD Awareness Walk at India Gate, New Delhi today. We walked along with family, friends and allies, making IBD more visible and more seen.
This World IBD Day - Samajh Badhao, Stigma Hatao!
#makeIndiaIBDaware #worldIBDday #chronicIllnessAwareness
IBD India is an experiment, started by ordinary patients, which has survived, despite multiple people working against it - because of our connect with community - of unheard voices, invisible faces, who are impacted the most, and for whom we strive to work for. #makeIndiaIBDaware
At IBD India, we are committed to empowering and enabling community members to share their lived experiences and advocate for a better ecosystem of care. We hope non-patient stakeholders are willing to work with local patients living in India and give them a chance to contribute.
People with gut conditions often have a complex relationship with food. This Sunday, we talk about Anorexia & Bulimia, and learn more about food and body image - with Mamta Nangia.
DM with your email to receive the webinar invite.
#makeIndiaIBDaware #EatingDisorderAwareness
For #WorldIBDDay2025, we were fortunate to be a part of an amazing program at Lisie Hospitals in Kochi, led by Dr Mathew Philip. The patient inclusion in the program is an example to follow, and we're grateful for our inclusion despite a language barrier. #makeIndiaIBDaware
For World IBD Day, a few of our community members across ages and geographies, tell us about their journeys and their wish for the future.
We applaud their courage and thank them for helping #makeIndiaIBDaware
Watch the video here - https://t.co/z4SDrVy8GL
With great pride, we are excited to share that 3 of our community members - 2 from 🇮🇳, 1 from 🇧🇩, have secured the 2025 @CCYANetwork fellowship.
Additionally, we have now worked with 11 patient & caregiver speakers, from all corners of 🇮🇳 in the past 2 years.
#makeIndiaIBDaware
IBD India Newsletter - Q1 2025 Issue - available in both Hindi and English now!
Translations into Hindi and other regional languages will make it possible for patients to understand their condition and help others understand it as well.
#makeIndiaIBDaware
IBD India, in collaboration with Multifly Lifestyle - an award winning accessible fashion startup, has created locally manufactured ostomy innerwear for ostomates. #ostomy #makeIndiaIBDaware
https://t.co/sycAdJZi6h
My attempts to make something of myself with Crohn's, Ostomy and Cancer in an unaccommodating ecosystem have stripped me of everything I identified with. How strong can one be? I'm only human. Sometimes, maybe a lot of times, skill and hard work aren't enough. #makeIndiaIBDaware
Day 2 - Crohn's and Colitis Awareness Week
#CCAwarenessWeek #makeIndiaIBDaware #CrohnsandColitisAwarenessWeek
A sneak peek into our upcoming patient education newsletter.
One of the goals of this resource is to give patients the language to understand IBD and explain it to someone else as well.
Hindi and Telugu versions coming soon as well!
#makeIndiaIBDaware
Inaugural edition of the IBD India Newsletter, coming soon!
#makeIndiaIBDaware
Community Members at the IBD Vizag 2024 Conference, in October earlier this year, presented our work on mental health access, and spoke on patient-physician collaborations, peer support and other strategies to enable holistic care for those with IBD in India. #makeIndiaIBDaware
Sharing a patient authored piece - winner of the IBD India Writing Contest for September 2024. The article will be featured in the first edition of the IBD India Newsletter and the author is being given a cash prize as well. #makeIndiaIBDaware
Mental health and improving access to mental health for patients and caregivers is a priority at IBD India. We discussed our efforts at improving access and the importance of mental health at @Ibdmeet2024 in Vizag. @CCF_IN #makeIndiaIBDaware #mentalhealth #worldmentalhealthday
11 years since my IBD diagnosis today. Heading for another surgery for my thyroid cancer soon. I had begun this year with hope. IBD complications and cancer diagnosis have neutralized my years of hard work, trying to get a post-grad degree and be debt free.
#makeIndiaIBDaware
This World IBD Day, we encouraged our community members to have face-to-face meetups outside of a hospital setting. Sharing a picture from Bangalore and Hyderabad meetups.
#makeIndiaIBDaware #ibdindiameetup
This World IBD Day, we are encouraging our community members to meetup in their localities. We'll share pictures from the meetups on our social media platforms. #makeIndiaIBDaware #ibdindiameetups #worldibdday2024
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