Top Tweets for #ppMS
Seems you must liquidate assets to stay on Medi-cal if they managed to lure you into it. Your kind of -stuck. They even want my pre-paid funeral arrangements made in 1999 cashed out. 🤨🤔😿
`$100)cashed out (worth . #PPMS sucks!!!!!
Absolutely fantastic. I feel like this article mirrors my journey and ignorance. Funny how you can go to the neurologist and get the word stable, yet you know you’ve regressed. #PPMS
https://t.co/pImHX1M8CV
#Multiplesclerosis isn’t one-size-fits-all it’s more like a buffet of suffering Read the full breakdown (with dark humour) Here’s the real deal on #RRMS #PPMS and other MS types, https://t.co/DXqXAZKIc2 #DarkHumor #Neurodegeneration #ChronicIllness
🩺 Współczesna #medycyna umożliwia spowolnienie postępu choroby u pacjentów z pierwotnie postępującą postacią stwardnienia rozsianego (#PPMS) – mówi prof. Alina Kułakowska, prezes Polskiego Towarzystwa Neurologicznego. @neurologiczne
https://t.co/4v4d8UmfDu
😢🙏🙏❤️🙏🙏😢 #PPMS
😔 Sad news: Janice Dean stepping away from Fox & Friends after 22 years due to MS health challenges
After two decades delivering sunny forecasts and brightening mornings, beloved meteorologist Janice Dean announced she must prioritize her health as her multiple sclerosis has progressed.
Sending her love, prayers, and well wishes for brighter days ahead and continued strength. You’ve brought so much joy to so many — thank you, Janice!
@JaniceDean
Wishing you health, peace & all the sunshine in the world. What’s your favorite Janice Dean memory?
(Video: AI)
I don’t consistently check all the boxes, I’m with you 100%. Frustrating when you try to explain other people that it is the multiple sclerosis and they don’t believe you or think it’s a crutch. I just stumbled down the stairs into a corner. Breaks the heart sometimes. #PPMS
20 Things I LOVE about Multiple Sclerosis
1. Vertigo - I get to pretend that I am on a Trans-Atlantic sea cruise every day... plus I like wearing Hawaiian shirts.
2. Disabling Fatigue - I get to take naps and snuggle with my pillow.
3. Insomnia – I get to catch up on all the reruns of the shows I missed while taking my naps... life can stick me with a crippling disease but I won't miss a thing.
4. Heat Intolerance - I get to drink all the Chocolate Ice Cream Shakes I want.
5. Nausea and Vomiting - I can drink all the Chocolate Ice Cream Shakes I want with no weight gain.
6. Delayed Verbal Processing – Nothing stops me from putting my foot in my mouth faster than being unable to think of what I was just about to say... several times in a row.
7. Cognitive Dysfunction - When I put my cell phone in the refrigerator, my car keys in the microwave, and the milk in the dishwasher I am always pleasantly surprised when I find them.
8. Short-term Memory Loss - I get to walk into the same room over and over several times until I remember why I went in there to begin with... it is a great excuse to just go make another Chocolate Ice Cream Shake.
9. Speech Ataxia - I never know what funky new words I may create when I talk. I believe this is how "jive talk" started.
10. Paraesthesia - It reminds me of when I was 10 years old at summer camp when I stuffed my socks full of Pop Rocks on a dare.
11. Footdrop - It makes it really easy to plant even rows of seeds in my garden.
12. Diplopia - Getting to see my Chocolate Ice Cream Shake twice at the same time is awesome.
13. Optic Neuritis - The ugly people on my High Def TV are finally blurry! Woo Hoo!!!!
14. Dysmetria – I get to figure out brand new innovative ways to do simple things like cutting vegetables or frying bacon... or putting on pants while frying bacon.
15. Muscle Paresis - I will no longer feel obligated to help friends if they ever need to move a couch up a flight of stairs or bury a body in the backyard.
16. Muscle Spasticity - Gym membership? Ha! Look at these quads!
17. Bladder Spasticity - I will always know where all the rest rooms are located.
18. Dystonia - I was never a fan of typing words correctly anyway... just ask Siri on my iPhone.
19. Clumsiness – I used to just be good to look at but now I am much more fun to watch.
20. I am stuck in a motorized wheel chair – I have another reason to keep working on designing the first ever “low-rider” turbo charged Rascal Scooter for street racing with death ray for use for the idiots who park in handicapped spots.

A major trial has found the MS drug ocrelizumab slowed disability progression in primary progressive MS, including older patients and wheelchair users.
🔗 Full story: https://t.co/KLTMPlPvIn
#MultipleSclerosis #MSResearch #PPMS #DisabilityProgression #Neurology

My incredible wife Abby is battling Primary Progressive MS (PPMS). To help cover her medical care and keep things stable for our 6yo daughter Indy please donate or share: https://t.co/yERrGZtNyy #MSAwareness #PPMS #GoFundMe #Barrie #MutualAid
$TGTX - hoping Azer is game changer for #PPMS patinets- from CEO enrollment exceeding trial spots is encouraging
$tgtx Patient: Jan-1st person 2receive azer-cel for PPMS 6/25.
B4: She felt creeping sensation that moved from her toes up her right side, worsening gait, cognitive difficulties &frequent falls.
Recovery: 60 days after, reported feeling well & was able to return to activities 1/2
I’m more aware than I care to be, but awareness and patience are paramount. #PPMS

The #AfHESG training session has started, have you joined?
Today, we are discussing designing and implementing provider payment mechanisms (#PPMs)
Prof.@EdwineBarasa taking participants through the first session.

All set for the #AfHESG Session, have you registered?
📅 27th Feb 2026
🔗 Register here: https://t.co/v43DzV1Qm3
#PPMs
#HealthFinancing

Fantastic news from @ImmunicInc!
$IMUX #vidofludimus #IMU838 #RMS #PMS #PPMS #neurology #biotech #healthcare
🏦 Today, #Immunic announced an oversubscribed #PrivatePlacement of up to USD 400 million to accelerate the transformation into a commercial-stage company
Key elements:
🔹 Upfront proceeds of USD 200 million, with potential for up to USD 200 million in additional proceeds
🔹 Expected to fund completion of phase 3 #ENSURE trials in relapsing #MultipleSclerosis (#MS), initiation of phase 3 trial in primary progressive MS, and transition into a commercial organization
🔹 Simona Skerjanec, former SVP, Global Head of #Neuroscience and Rare Diseases at Roche, elevated to interim Chairperson of the Board of Directors
🔹 Thor Nagel, Principal at BVF Partners L.P., joins Board of Directors
🔹 Simona Skerjanec and Dr. Daniel Vitt to lead search for CEO with commercial background
👉 Learn more: https://t.co/eVHQunrIph
$IMUX #vidofludimus #IMU838 #RMS #PMS #PPMS #neurology #biotech #healthcare

🚨 AfHESG Training Alert!!!
Interested in deepening your understanding of Provider Payment Mechanisms (PPMs)?
Join AfHESG for a practical session on designing and implementing PPMs.
📅 27th Feb 2026
🔗 Register here: https://t.co/DrZ9csg2br
#PPMs
#HealthFinancing

Phase 3 PERSEUS trial results in primary progressive multiple sclerosis #PPMS patients. No significant benefit of #tolebrutinib vs. placebo on primary endpoint of time to 6-month cCDP (disability measure). However, positive impact of brain volume.
@ACTRIMS #ACTRIMSForum

Phase III FENtrepid Study:
#Fenebritninb achieved noninferiority to ocrelizumab in reducing disability progression (cCDP12) in primary progressive multiple sclerosis #PPMS patients; actually 12% better. @ACTRIMS #ACTRIMSForum

🚨 Exclusive Podcast Episode | New Phase 3 data presented at @ACTRIMS suggest fenebrutinib may meaningfully impact non-relapsing progressive disease biology – a key limitation of current therapies.
🎧 Hear the lead trial experts talk about what this could mean for #PPMS patients:
• Spotify: https://t.co/pGGEYrNdeU
• Apple: https://t.co/T4pMeI2w2j
@UCSF @Penn @Mstranslate
#FENtrepid #MultipleSclerosis #PrimaryProgressiveMS #PPMS #ClinicalTrials #ACTRIMSForum #ECTRIMSPodcast

#PPMS において、
高齢患者・より重症(高EDSS)患者でも
#オクリズマブ は障害進行リスクを低下。
「早期だけが対象」ではないことを示す重要なデータ。
#PPMS #MS #ECTRIMS2025
オクレリズマブ は 日本未承認です。
同様の効果が 他の B細胞除去治療薬でも期待できると 良いですね。
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