Top Tweets for #radeep
📍Attending ASCAT 2026? Meet us at Stand 3!
We’ll be at Stand 3 in the Exhibition Hall at Central Hall Westminster in London from 7–10 October!🩸
👉Find out more: https://t.co/7CYkbLmeXe
See you there!👋
#ERNs #ERNeu #ASCAT2026 #EuroBloodNet #RADeep
2025 ha estat un any molt actiu per a #RADeep, el registre europeu d'anèmies minoritàries liderat per #VallHebron.
📃 Vam acollir la reunió del Comitè d'Accés a Dades
🗣️ S'han presentat cinc treballs a la Reunió Anual de @ASH_hematology
@ERNEuroBloodNet #RecercaPediàtricaVH
Més: https://t.co/LTtYJkhdXK
📣NEWS from the #ASH25! Sara Reidel is presenting “Data validation and quality framework for building a european multimodal real-world dataset for clinical outcome research in sickle cell disease” at the 67th ASH Annual Meeting.
🔗https://t.co/UiPxu61jJZ
#RADeep #hematology
💻#NOW! Poster session at #ASH25: “Implementing patient-centered PROMs in sickle cell disease care: A european consensus approach”
Presenter: Anna Collado Gimbert (@vallhebron)
🔗Find out more: https://t.co/2ut99fRxga
#ASH25 #RADeep #Hematology #Research #Innovation
🎤Anna Collado Gimbert (@vallhebron) presented “Sickle cell disease in europe: A cross-border real-world data analysis from the radeep registry” at #ASH25!
🔗Find out more: https://t.co/cCFntb8xi8
#ASH25 #RADeep #Hematology #Research #Innovation #Healthcare
📣The RADeep team is at #ASH25 in Orlando!
We’re excited to be part of the 67th @ASHematology Annual Meeting, taking place from December 6-9, 2025, at the Orange County Convention Center in Orlando, Florida. 🩸
https://t.co/M1ynRm7lBr
#RADeep #Hematology #Research
✅ Day 1 | ERN-EuroBloodNet & RADeep Network – #SCD Patients Session at #ASCAT2025 !
Sexual Health Program for Patients with Sickle Cell Disease
🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health
#ERNs #hematology #RADeep #ERNeu #ASCAT2025
🩸The 20th Annual Sickle Cell & Thalassaemia Conference #ASCAT2025, officially kicked off today!
📍@ERNEuroBloodNet and #RADeep are proud to be present with a dedicated booth, come visit us!
🔗Stay tuned for updates and insights from the conference!
#SickleCell #Thalassaemia
🌍🩸#WorldSickleCellDay RADeep: Advancing Research in Sickle Cell Disease
📊Currently, the #RADeep registry includes comprehensive clinical, epidemiological, and laboratory data from 3,580 pediatric and adult patients with #SCD, spanning 8 European countries*.
#WSCD25
🔬 @mmanupe took the stage at the #EHA2025 Hematology-in-Focus Session with a compelling presentation on:
💻“Emergence of rare anemias using extensive sequencing techniques”
🔗Discover more about
#RADeep: https://t.co/CoLniAmWcH
#ERNEuroBloodNet: https://t.co/pPzOjpcOXc
🩸🌍The RADeep Network is now live on social media!
🔎What is #RADeep?
Established in 2017, RADeep is the European patient registry platform dedicated to rare anemia disorders (RADs), serving as an umbrella for both new and existing patient registries across Europe.
#SYNTHEMA collaborates with #RADeep, the EU-wide platform gathering data on rare anaemia disorders. With 200+ healthcare providers in 13+ countries, RADeep—under the @ERNEuroBloodNet umbrella—bolsters our efforts to improve research and care.
👉 https://t.co/0ajOhxr2rW
✳️Thank you very much to all the participants who has joined us at the #RADeep Data Access Committee Meeting!
🤝It was a very productive and fruitful day of sharing. Let's keep working together!
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure #haematology
🚀#NEWS from the #RADeep Data Access Committee meeting!
🌍The national collaborators presenting the state of the art of each collaboration at national level.
ℹ️ Read more about RADeep https://t.co/EqIxm9mxAT
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
📣#TODAY The Rare Anameia Disorders european epidemiological platform #RADeep Data Access Committee is starting now!
📍The meeting is hosted at @vallhebron with the participation of national representatives, patients representatives and legal experts.
#ERNeu #ERNs #HealthUnion
💻Dr. @mmanupe , Coordinator of #RADeep Registry, will be speaking today at the workshop "Challenges in drug development, regulation and clinical practice in haemoglobinopathies", organised by @EMA_News.
🔗https://t.co/8EFJqrYuQA
#ERNeu #ERNs #HealthUnion #EU4Health
📢Dr Abboud acknowledges the efforts of @ERNEuroBloodNet and the key paper of registries ENROL #RADeep in the research for novel therapies in #SCD.
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure @miguel_abboud
Mar Mañú Pereira & Raffaella Colombatti are #NOW presenting "In the frame of #ENROL and through #RADeep, @genomed4all & @SYNTHEMA_EU we are building the largest EU Sickle Cell Disease clinical and research dataset. Advancing together on #sicklecelldisease"🤝
#ERNeu #ERNs #SCD
¡Esta mañana hemos arrancado con #SIMFalta2024 !! ¡Menudo inicio de jornadas! 1era mesa sobre visión global en #scd y #thalassemia, compartiendo datos de nuestros pacientes del #REHemAR y #RADeep . Coordinación indispensable para aumentar el conocimiento sobre estas enfermedades.
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