Top Tweets for #savearian
Most rare diseases have no cure, so living with a rare disease is an ongoing learning experience for patients and families. #RareDisease #SaveArian
We are with Dr. Joseph Muenzer, paediatric geneticist and professor, North Carolina University, Chapel Hill, USA. He is the torch bearer for MPS-II Disease ( Hunter Syndrome). We are grateful and blessed πβ€οΈ
#huntersyndrome #lsds
#saveArian
Happy Birthday Arian. Love you to the moon and back....
#happybirthday
#SaveArian
#endHunterSyndrome
Have you seen the official #RareDiseaseDay 2021 video ? You can watch it here
https://t.co/vJlLV5Qg6t
#RareDisease #SaveArian @eurordis
βA disease may be rare, but hope should not beβ. Rare Disease Day is being observed on the last day of February each year, with the objective to raise awareness about rare diseases. #RareDiseaseDay2021 #SaveArian
Alone we are RARE, together we are STRONG. Letβs join hands to raise our voice for the rare disease patients. #CareTheRare
A rare disease is any disease that affects a small percentage of the population. Most rare diseases are genetic #RareDisease #SaveArian
Today is MPS Disease Awareness Day ! Pl come forward and support our effort to raise awareness of this devastating disease. Pl do not forget to pray for Arian and other children affected with MPS disease. #MPSAwarenessDay #SaveArian
Rare Disease Day is being observed today on a RARE day, 29th February to raise awareness of the challenges of living with a rare disease. Pl join, make our voice stronger #RareDisease #endHunterSyndrome
#SaveAllTheBoysWithHunterSyndrome
#SaveArian
Rare Disease Day will be observed on 29th February 2020 to improve knowledge among the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases. Pl help spread the word #HunterSyndrome #SaveArian
29th February 2020 - International Rare Disease Day. Pl come and join hands to raise awareness about rare diseases #RareDiseaseDay @rarediseaseday #SaveArian #HunterSyndrome
@drharshvardhan Sir,we are very happy as you are appointed as Minister of Health and Family Welfare, Minister of Science and Technology and Minister of Earth Sciences again. Arian is blessed with your prayers,blessings. Arian is in hospital, getting his weekly infusion #SaveArian
All gave some, some gave all, though we do not know them all but we owe them all. Thank you #SaveArian
Today is MPS Awareness Day ! Pl come forward and support our effort to raise awareness of this devastating disease. Pl do not forget to pray for Arian and other children affected with the disease. #MPSAwarenessDay #SaveArian
Pl support our effort to raise awareness about MPS and related diseases #MPSAwarenessDay on 15th May #SaveArian
Happy Birthday to Arian @Save_Arian ! He is a brave boy, he has Hunter Syndrome. Pl bless him on his special day. @MPSSociety @eurordis @MPSSocietyUK @RareDiseases #SaveArian
https://t.co/GseWg8V7Be
Today is 24th February. Happy Birthday to our brave son Arian ! He needs your blessings and prayers always
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. #RareDiseaseDay #SaveArian @eurordis
A special #FF goes to all our well-wishers and supporters, who inspire us with their support and prayers. Hope you have not forgotten Arian. Pl keep Aian in your prayer. Have a good weekend #HappyFriday #Infusion #SaveArian
@Maishaan Happy Birthday Bhai ! All the best wishes to you. When you are there hope is always there. Thank you for your all the support in our bad time. Pl continue your support to #SaveArian
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