hATTR hope starts with diagnosis

Sponsored by Akcea Therapeutics, this channel is dedicated to providing resources & info on hATTR amyloidosis. Community guidelines:

[hATTR hope starts with diagnosis @hATTRguide]

Stay active and up to date on all the news related to #hATTR #amyloidosis by signing up to our newsletter.
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[hATTR hope starts with diagnosis @hATTRguide]

Not only is the burden of disease for #hATTR #amyloidosis high for patients, but also for their caregivers. #DYK that US caregivers reported poor #MentalHealth? By helping your patients, you are helping their caregivers.
https://t.co/qPEslx9Tjr

[hATTR hope starts with diagnosis @hATTRguide]

As their healthcare professional, exploring treatment options in your patients with #hATTR #amyloidosis may help in alleviating disease burden and the strain on their #MentalHealth. Visit our website to learn more about a treatment option.
https://t.co/uZxXhtacvm

[hATTR hope starts with diagnosis @hATTRguide]

What does #MentalHealth look like for your patients with #hATTR #amyloidosis? According to a survey, patients suffer from a decrease in physical health, quality of life and work productivity – but you can help.
https://t.co/VHbQcJ3fBI

[hATTR hope starts with diagnosis @hATTRguide]

Hear from Dr. Wechalekar as he breaks down the burden of #hATTR #amyloidosis and how it affects patients and their caregivers – and don’t forget to share your own experience with how this disease has affected your patients’ #MentalHealth and how you supported them through this.

[hATTR hope starts with diagnosis @hATTRguide]

For patients suffering from the debilitating symptoms of #hATTR #amyloidosis, remaining undiagnosed can impact their #MentalHealth. Help your patients arrive at an accurate diagnosis – look out for the red-flag symptoms of this rare disease.
https://t.co/qPEslx9Tjr

[hATTR hope starts with diagnosis @hATTRguide]

#DYK that May is Mental Health Awareness month? When it comes to rare diseases like #hATTR #amyloidosis, the journey arriving to and following a diagnosis can take a toll on the #MentalHealth of your patients and their caregivers. How do you support your patients?

[hATTR hope starts with diagnosis @hATTRguide]

Today is #WorldPortugueseLanguageDay – a day dedicated to raising awareness of the history, culture and use of the Portuguese language. In your Portuguese patients, use your voice to communicate their increased likelihood of having #hATTR #amyloidosis.
https://t.co/qPEslx9Tjr

[hATTR hope starts with diagnosis @hATTRguide]

#SpringIntoAction by staying up to date on all the news related to #hATTR #amyloidosis. Sign up to our newsletter today!
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[hATTR hope starts with diagnosis @hATTRguide]

When you make a diagnosis of #hATTR #amyloidosis, it paves the way for the colleagues around you to #SpringIntoAction and become aware of the red-flag symptoms of this rare disease. Visit our website for access to helpful tools and resources.
https://t.co/b8ywh99cck

[hATTR hope starts with diagnosis @hATTRguide]

#SpringIntoAction and stay up to date with the multiple emerging therapies, such as TTR gene silencers, that are available to your patients with the polyneuropathy of #hATTR #amyloidosis. Visit our website to learn more.
https://t.co/uZxXhtacvm

[hATTR hope starts with diagnosis @hATTRguide]

The hATTR Compass program makes it easy for healthcare providers like you to confirm a diagnosis of a rare genetic disease like #hATTR #amyloidosis. #SpringIntoAction by learning more about the genetic testing program.
https://t.co/i8RHIIAQYq

[hATTR hope starts with diagnosis @hATTRguide]

If your patient has a known family history, belongs to one of the founder groups, and/or presents with a cluster of red-flag symptoms of #hATTR #amyloidosis, #SpringIntoAction and confirm or rule out a diagnosis through genetic testing.
https://t.co/qPEslx9Tjr

[hATTR hope starts with diagnosis @hATTRguide]

From one physician to the next, Dr. Khella shares his perspective on the importance of genetic testing for your suspected patients. #SpringIntoAction and share your perspective below.
https://t.co/U2rGVZ6ABL

[hATTR hope starts with diagnosis @hATTRguide]

Spring marks the season of new beginnings. #SpringIntoAction and stay alert about the red-flag symptoms of #hATTR #amyloidosis – a new patient may walk into your office today.
https://t.co/Xn3wR0tiT2

[Amyloidosis Research Consortium @Amyloidosis_ARC]

Friday, April 9th, join us for the ARC Masterclass: "The Art and Science of Managing Amyloidosis. Signup here: https://t.co/FkMsy1cSiY
#webinars #amyloidosis #masterclass

@vsanchorawala
@dhughespharmD
@stuchman1
@lis589

[hATTR hope starts with diagnosis @hATTRguide]

#MarchForhATTR
Stay active and up to date on all the news related to #hATTR #amyloidosis by signing up to our newsletter.
https://t.co/e6IATJaQyh

[hATTR hope starts with diagnosis @hATTRguide]

#MarchForhATTR
For your suspected #hATTR #amyloidosis patients, genetic testing through the #hATTRCompass Program can help confirm or rule out a diagnosis.
https://t.co/a5FGpmog29

[hATTR hope starts with diagnosis @hATTRguide]

#MarchForhATTR
Regardless of symptom presentation, the burden of #hATTR #amyloidosis on patients and caregivers is significant. Given the impact of this disease, the prompt implementation of targeted therapy upon diagnosis is imperative.
https://t.co/qPEslx9Tjr

[hATTR hope starts with diagnosis @hATTRguide]

#MarchForhATTR
#DYK that, according to a population-based study, 1.1% of the population in the region of Donegal, in Northwest Ireland, carries the T80A mutation (formerly T60A)? Take a closer look at who walks into your office today.
https://t.co/VHbQcJ3fBI