HD Care

Community. Advocacy. Research. Education.
A UCI-based support group dedicated to those affected by Huntington's Disease, a neurodegenerative disorder.

[HD Care @HDCare3]

Reminder! Register for Sounds of the Bayou with HD-CARE on September 30th at Campus Jax. Join us for an afternoon of live music, food and a Live Auction to vacation in Mexico, Tuscany or New Orleans. Every dollar of registration and funds raised go towards the HD lab and clinic.

[HD Care @HDCare3]

#huntingtonsdisease #research #clinic #fundraise

[HD Care @HDCare3]

Thank you to everyone who supported the Huntington's disease clinic and research at Sounds of the Bayou on September 30th! We are so grateful to our community as we battle this devastating disease. Huge shoutout to our sponsors: @TevaUSA, @emst150, Dunning's, and @NorthgateGlzMrk

[HD Care @HDCare3]

REGISTER EARLY!!! https://t.co/TpF03PULvc You may even get some benefits ;)

[HD Care @HDCare3]

Donate directly to HD-Care: https://t.co/OtsKdxmmJx

[HD Care @HDCare3]

Reminder! Register for Sounds of the Bayou with HD-CARE on September 30th at Campus Jax. Join us for an afternoon of live music, food and a Live Auction to vacation in Mexico, Tuscany or New Orleans. Every dollar of registration and funds raised go towards the HD lab and clinic.

[HD Care @HDCare3]

#awareness #patient #community Interested in being an HD-Care sponsor and ambassador? Email [email protected]. Sign up or scan the QR code to register: https://t.co/TpF03PVjkK

[HD Care @HDCare3]

Donate directly to HD-Care: https://t.co/OtsKdxmmJx

[HD Care @HDCare3]

Register for our upcoming HD-Care Fundraising Event, Sounds of the Bayou on September 30th! Every dollar from registration and our “Live Ask” is what truly makes a difference for the lives of Huntington’s disease patients. #huntington #huntingtonsdisease #give #donate #fundraiser

[HD Care @HDCare3]

#awareness #patient #community
Interested in being an HD-Care sponsor and ambassador? Email [email protected]. Sign up or scan the QR code to register: https://t.co/TpF03PVjkK

[HD Care @HDCare3]

Thanks UCI MIND for highlighting HD-Care in their quarterly newsletter! Check out the article along with other exciting news from UCI: https://t.co/x8dGoce8au

[Prilenia @PrileniaTx]

We’re excited to share the last participant in our global Phase 3 PROOF-HD study has completed the last planned visit of the blinded treatment period. We're working to bring topline results to the #HD community as soon as possible.  Learn more: https://t.co/zAkZ1OcpZs

[HD Care @HDCare3]

Prilenia Therapeutics B.V., a clinical stage biotechnology company, met a milestone that the last participant in PROOF-HD, a global Phase 3 study in Huntington’s disease, has completed the last planned visit of the blinded treatment period, completion of the main study!

[European Huntington Association @EuroHuntington]

🙌 Great News from @PrileniaTx and @HuntingtonSG
The PROOF-HD clinical trial has completed the last planned visit of the blinded treatment period, marking the completion of the main study.
Read the press release here ➡️ https://t.co/rYiKPsJcg6
#proofhd #prilenia

[HD Care @HDCare3]

RSVP link for the Pizza Party: https://t.co/rx1pE1IvBO

[HD Care @HDCare3]

Exercise? I thought you said “extra slice”!
COVID isolation hit us all and we want to reintroduce ourselves in person. HD-Care is hosting a pizza party at Sgt Pepperoni’s, and we will even have a renowned Huntington’s disease scientist joining us, Dr. Joan Steffan.

[HD Care @HDCare3]

We are looking for runners!! Want to be part of an inspiring non-profit organization? Be involved in a cure for Huntington’s disease? This is your opportunity! The OC Marathon is on May 6 & 7 and join our HD Warriors Fundraising Team! Register at https://t.co/7qwM7y3ni0
#HD

[HD Care @HDCare3]

Looking back on 2022 and the holidays, we want to thank everyone that ran for HD-Care including Wendy, Sandra and Alonso! Happy New Year and here's to another year of fighting for those we love!
#HuntingtonsDisease #LetsTalkAboutHD #RunForAClaus

[HD Care @HDCare3]

Best way to celebrate the holidays and raise awareness for Huntington's disease! #RunForAClaus #huntingtondisease #runforaclaus5k

[HD Care @HDCare3]

If you would like to donate to HD-Care in Darryn’s memory, please follow this link: https://t.co/OtsKdxmmJx

[HD Care @HDCare3]

It is with a heavy heart to let you all know that a valued member of our community, Darryn Travis, passed away on November 30th. His wife, Dina Travis, has been an avid patient advocate for the past 20 years in addition to being his caregiver. We continue this fight for you.

[HD Care @HDCare3]

HD-Care is Running for a Claus on December 10th! You can sign up to run with the HD-Care team or donate through the website to support our non-profit organization! Link: https://t.co/wVvfOixnv7
#huntingtondisease #huntingtondiseaseawareness #HD-CARE #runforaclaus #runforaclaus5k