Health Data Avatar

Privacy-first cross-border health data sovereignty for patients & carers #datasovereignty #healthdata

[Health Data Avatar @HealthDataAva]

If you’re using #Claude, it’s time to structure all your health records and signals once and forever so nothing gets misread, missed or silently omitted.
P.S. you can also connect your HDA health story to ChatGPT and some other tools. More and more integrations coming every week

[Health Data Avatar @HealthDataAva]

@Marie_Serg Health Data Avatar helps you securely centralise and structure your health memory across formats and languages for personalised care, prevention and automation — so you never have to rebuild it: https://t.co/X5lF8ttqzB

[Marie Serge, She/Her @Marie_Serg]

Portals, PDFs, emails, photos — scattered, untranslated, locked behind systems built for everyone but you.
I spent 10 years as a patient advocate across 4 countries watching this destroy continuity of care.
So we built the tool that should have existed already. Product Hunt in 8h

[Marie Serge, She/Her @Marie_Serg]

What #HealthDataAvatar offers that others don't
Unique sharing with fine-grained access controls
Cross-lingual data processing
Multiple profiles writing access
Removing identifiables before interacting with LLMs
With all this, top security standards & privacy-first architecture

[Health Data Avatar @HealthDataAva]

In order to solve current inefficiencies,
Health data infrastructure must be ethical, patient-first, independent of any single government or vendor, while still being able to integrate into international systems, and give individuals full control over privacy, access, and sharing

[Health Data Avatar @HealthDataAva]

I’ve moved countries 7 times.
Each time, I started my health story from zero.
A thread on what that actually means and what inspired HDA🧵

[Health Data Avatar @HealthDataAva]

So after 10 years of advocacy, 4 countries, 6 years after a simple prototype as a personal hack, I met our founding engineer, and we built Health Data Avatar.
A privacy-first health data management platform built for us. Not providers, insurers or surveillance (Hello, Palantir)

[Health Data Avatar @HealthDataAva]

Check us out on #ProductHunt if health data sovereignty for patients & carers resonates!

[Marie Serge, She/Her @Marie_Serg]

We're launching on Product Hunt tomorrow. 1.5 years bootstrapped, 2 people full-time, and a problem I've lived across 10 years and 7 moves as a patient & patient activist. Nervous doesn't cover it. 14 hours left...