Heather Bee

🦓Wonky EDS and Slipping Rib Warrior, Awesomely Autistic, ADHD, Greyhound Loving, Crochet Queen! !👍🏻🤩

[Heather Bee @HeatherBeeSmile]

@WoozyNate

Hi. I don’t have x so using a friends account. I bought the mawrider and it hasn’t appeared in my inventory. Please can a creator or developer contact me. My Roblox user name is Ccythraulll Cheers

[Heather Bee @HeatherBeeSmile]

@ItsEmilyKaty Following. Great ideas! Xx

[SEDSConnective @SEDSConnective]

Important. One member on multiple sclerosis pathway for years felt it wasn’t right so after hearing us talk went to get a diagnosis for possible EDS. Turned out to be Loeys-Dietz. Lucky to still be with us.

[Heather Bee @HeatherBeeSmile]

@SEDSConnective @benefactgroup Done ✅

[SEDSConnective @SEDSConnective]

#FFBSEDSConnective It's Thursday Connect!
We're a symptomatic hypermobility #EDS #HSD #neurodivergent charity supporting & advocating
👇
▶Like/RT
▶Comment: EDS/HSD/ND #FFBSEDSConnective
▶Follow/FollowBack (let's get to 2k!)
▶Join: https://t.co/vTcLjJxW8o
▶Intro!

#NEISvoid

[SEDSConnective @SEDSConnective]

➡️ Have you signed up for our webinar yet?

It’s very simple to register - SEDSConnective trustee Greg explains what will happen on Sunday 20th November:
▶️https://t.co/bGMU3lNkwQ

🎟️Get your ticket here: https://t.co/70C5UBDzDk

#EhlersDanlosSyndrome #HSD #ND #chronicFatigue

[SEDSConnective @SEDSConnective]

From SEDSConnective Trustee Greg
"Despite the whole idea of being 'manly' whatever that means, symptomatic hypermobility and the issues associated are so often ignored by men. Always seek help and support"
#Ehlersdanlossyndromes #HSD #EDS #MCAS #IBS
#InternationalMensDay2022

[Heather Bee @HeatherBeeSmile]

@NoeAgneray @1nicopatty Ah. You have obviously inspired a 9 year then 😃

[Heather Bee @HeatherBeeSmile]

@1nicopatty
Hi. My son wants me to show you the idea he has for the a new nextbot. It is called The Ghost!

[SEDSConnective @SEDSConnective]

Are you interested in extreme fatigue, pain, #hypermobility, #neurodivergence? Do you work in education, research, #health or social care?
Are you suffering physical symptoms or have #autistic, #ADHD, dyspraxic children? #SEND
Webinar 20th Nov. 2.30pm
https://t.co/BuKKBRzNO2

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

Have to say......

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

This is not my quote and I first saw it about a year ago but so apt ….

‘Privilege is when you think something is not a problem because it’s not a problem to you’

[BendyBrain: Dr Jessica Eccles @BendyBrain]

Just about to run a workshop with @JGjanegreen from @SEDSConnective at #INSA22 - why brain-body is important for school attendance come find out more #workshop5

[Rachael Moses @NHSRachaelM]

Cannot switch off after today

Today we have 7024 people in hospitals with COVID & 160 on ventilators - this is a 37% increase in one week.

The majority cared for on respiratory & acute wards which are already under pressure & more so as the weather changes & winter approaches

[Heather Bee @HeatherBeeSmile]

He suggests that the audio be the horror version of the wiggles walking on the moon 😃

[Heather Bee @HeatherBeeSmile]

@MartinSLewis @DeeRuddockA No because the benefits office won’t pay me it because they didn’t change me off contribution based ESA when they should have

[Heather Bee @HeatherBeeSmile]

https://t.co/Fp2oIrcLHV #GoFundMe

[Heather Bee @HeatherBeeSmile]

Hi. If anyone would be kind enough to donate, even just a little bit, you would be helping to save my son and I from a life of misery and pain.

I'm raising money for Help! 10 Years of Severe Pain and Hurts to Breath. Click to Donate https://t.co/V5sMXDe6C9

[Heather Bee @HeatherBeeSmile]

This lady is truly amazing! Without her hard work, dedication and kindness, I would not have got the help that I have today.
Thank you Jane! Xxx

[Jane Green MBE FCCT connective 😶 @JGjanegreenMBE]

Delighted to help share our issues!

[Heather Bee @HeatherBeeSmile]

@AUconnective Interesting!