Since I have some new followers I want to re-introduce myself. I am a 30-something year old physicist who was diagnosed with HSD/hEDS and MCAS earlier this year, and I've started this blog to share my experiences and advice and connect with others.
https://t.co/4BXRydeUlb
Five simple accessibility tips for one-handed living https://t.co/6B2WXe5s4c
I have outlined five simple accessibility tips for one-handed or one-armed living for when you don't have as many functioning limbs as you would perhaps prefer.
I think if there was a Hell designed specifically for me it would involve sitting on a Teams call forced to watch someone processing and analyzing data in the least efficient and least sensible way possible
Do you have a Mom in your life with chronic pain or illness? Looking for Mother’s Day gift ideas?
It’s a curated list of gift ideas, based on my own experience, from comfort items to practical tools for pain relief.
https://t.co/cX2pk34ILh
this poor woman was put on anti-psychotics because she kept saying there was a man in her loft. one problem: there actually was a man secretly living in her loft
this is a plot to a horror novel i’m horrified https://t.co/t8B0n2xRRd
please get a library card even if you won’t use it because cities will look at library statistics and use that to decide to keep libraries open and properly funded
I'm back to working on my blog! I've updated the resource page with new links to resources and scholarly articles on hypermobility, Ehlers-Danlos syndrome, and assoiciated disorders. https://t.co/Nn3r3wkUUn
#hEDS#hypermobility
Holy crap.
Pancreatic is one of the deadliest cancers.
New paper shows personalized mRNA vaccines can induce durable anticancer T cells that attack pancreatic cancer. 75% of patients cancer free at three years.
After that plane literally flipped upside down after smashing into the runway and 100% of people survived, I hope every person who ever said “what’s even the point of seatbelts on a plane” feels like a real doof.
One of the ways I can tell I’ve been too stressed for too long without a break is I get muscle spasms around my eyes. I like that my unhinged insides start spilling out visibly on my face.
You know what's worse than a non-autistic person claiming to be autistic when they're not? An undiagnosed autistic person self-diagnosing and being told that they don't deserve acknowledgment of their challenges or support until they get an official diagnosis. 🙄😒
I have tickets to see Rilo Kiley, Metric, and Death Can for Cutie (all separate shows). I’d just like to say “you’re welcome” to my 14-year old self for making enough money to make her sad indie dreams come true.
@tec_1116 I had a studio apartment in the Midwest for $600/month in 2010. I think it would have been much longer ago that this was possible in the metros on the coasts. Gas prices also vary wildly by state.
Does anyone know any illustrators or designers with ME/CFS, long covid or another chronic illness?
I'm doing a project and would need some design help and would like to work with other chronic illness sufferers.
It's a paid gig, of course.
Mirrors (and vision) are very weird and you probably don’t understand how they work and that’s ok. Like, most people have no idea why mirrors seem to reverse text but do not flip you upside down.
Anyway, imagine laser beams coming from the observer’s eyes. It’s like that. But in reverse. That probably didn’t help.
Friend at the Superbowl caught one of Kendrick's background dancers repping Sudan and Gaza during the halftime show before getting chased and dragged off the field. Obviously was cut from the broadcast but any attempt to make a blip on the American consciousness is worth it 😤