Hannahs Hope 4GAN

Giant Axonal Neuropathy (GAN) is a terminal genetic disorder. HHF's mission is to fund research for a treatment & cure & to be the world-wide GAN resource.

[Hannahs Hope 4GAN @HHF4GAN]

Tomorrow is the day!! https://t.co/EcYpoiZ1qV #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Check out the new HHF website https://t.co/M28Tdvpb0q #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Our #1 wish from Santa is still a cure for GAN https://t.co/zENoM7ylT9 #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Hannah's Hope Fund - DOUBLE your DONATION https://t.co/R0m1gAB440 #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Looking for a Spring Youth Multi-sport race... https://t.co/JdeG5O14Ag #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Our #1 wish from Santa is still a cure for GAN https://t.co/d2Y3qAib0u #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Virtual Giving Day for GAN https://t.co/qEmQgU332P #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

Hannah's Hope Fund Needs Your Help! https://t.co/bycijjjBht #vr4smallbiz

[Hannahs Hope 4GAN @HHF4GAN]

While we continue to search for a cure, the GAN kids just want to play like other kids. This is a cool way one school is making that happen for sweet Josie. https://t.co/0IoSpchxrw

[Hannahs Hope 4GAN @HHF4GAN]

The $5 admission fee benefits Hannah's Hope Fund! If you know anyone planning a wedding, please share this on your page.

River Stone Manor is also doing a special promotion this year, where you can receive... https://t.co/RGj8s2KKDW

[Hannahs Hope 4GAN @HHF4GAN]

Thankful for everyone who ran for GAN in The Woodlands Marathon today! https://t.co/O1VUA1eyd2

[Hannahs Hope 4GAN @HHF4GAN]

https://t.co/pywM2AKPya

[Hannahs Hope 4GAN @HHF4GAN]

Ultra-Rare Curly GAN Girls Rock #RareDiseaseDay

[Hannahs Hope 4GAN @HHF4GAN]

Consider helping us celebrate Rare Disease Day by donating $7.60 to help us find a cure for GAN. That's just 10 cents for each of the 76 known patients with GAN Worldwide. The top 20 fundraisers at The... https://t.co/pcAobFJWkN

[Hannahs Hope 4GAN @HHF4GAN]

We are so honored that NIH highlighted GAN by unveiling a portrait of Amber on National Rare Diseases Day. Hug someone Rare today!!! GAN and Curly Hair are like Peanut Butter and Jelly

[Hannahs Hope 4GAN @HHF4GAN]

Great video about Hannah and her family https://t.co/6QLtnOOjSd

[Hannahs Hope 4GAN @HHF4GAN]

So proud of Samantha! https://t.co/HkrB7DhsCc

[Hannahs Hope 4GAN @HHF4GAN]

Co-Founder and CEO, Lori Sames was at UTSW in Dallas with our Dr. Steven Gray and Dr. Rachel Bailey to plan the translation of our next gene therapy, targeting the autonomic nerves. Steve is building a new gene... https://t.co/YWGv6e9KMB

[Hannahs Hope 4GAN @HHF4GAN]

https://t.co/Qj5zU9yVq7

[Hannahs Hope 4GAN @HHF4GAN]

With only 75 known cases of GAN worldwide, its a true blessing when you get to finally meet in person someone who is as “rare” as you are! Justin and MacKenzie are both seniors in high school (they meet in... https://t.co/QAOTDZwl5o