hypermobility.org

Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.

[Fav @Favwontmiss]

I'm a neurodivergent health researcher with a PhD and I can't emphasize this enough:

Not everything that supports your mental health has to look like “mental-health work.”

Here are 11 stupid-simple but way too underused mental health tools:

1. Read fiction (supports your mood, absorbs your attention, and lets you experience the world through someone else’s eyes).

[Met Office @metoffice]

Cloud will gradually break through the afternoon with sunshine and showers in the north 🌦️

Staying murky along the coasts in the southwest ☁️

Feeling warm and muggy🌡️

[hypermobility.org @HMSACharity]

Heatwave alerts for much of the UK. Those with heat/sun sensitivity, please take care over the next week. It's going to be flopping hot!

Last month's 'Ask the OT' chat is here: https://t.co/q80MLEvUDQ Or register for tomorrow's 'Ask' here: https://t.co/BO95DVOq8F

[Met Office @metoffice]

Cloud will gradually break through the afternoon with sunshine and showers in the north 🌦️

Staying murky along the coasts in the southwest ☁️

Feeling warm and muggy🌡️

[hypermobility.org @HMSACharity]

Tonight, tonight ,tonight...

We're a little excited, you?

[Kathryn Langman @KathrynLangman]

Very excited to be sharing my experiences using the Spider Tool with my #hypermobile patients alongside @HMSACharity on 17th June 🕷️ Come join us for some free #CPD and discussion #physiotherapy #occupationaltherapy #hypermobility https://t.co/sL5UVv9hOC

[𝓐 ⭑ @ayojoestar]

Neurodivergent burnout is NOT regular burnout and I need people to understand this.

[hypermobility.org @HMSACharity]

#VolunteersWeek We’re recruiting, specifically for our Helpline Team.

Helen says: “Callers really value speaking to someone walking the same road as them... Any level of knowledge and skill will always be valuable.”

💜 Apply: https://t.co/wtBmnWi2XQ
🔁 Please share to + reach!

[hypermobility.org @HMSACharity]

We’re hosting a free education session for clinicians on using the Spider Tool to support holistic assessment and treatment planning in hypermobility.

📅 17 June • 19:00–20:15 BST 🎙️ With Kathryn Langman 🔗 Register: https://t.co/hMalq4H3oa

🔁to help us reach more clinicians!

[hypermobility.org @HMSACharity]

@ThePOTSPostman We often tell people coming to us fresh from their light bulb moments that if anyone tells them they have a solution to all their issues, they should run. Far, far away.

[hypermobility.org @HMSACharity]

One of those weeks where loads got done but it looked like nothing moved. Wildlife was the highlight: fledglings, bees, butterflies, a bold young fox. Pic by @TheOtherKev

[hypermobility.org @HMSACharity]

The heat’s already tough and the bank holiday looks to be even hotter. Those who melt over 20°C, it's not too late to join us live at 7pm — register for replay https://t.co/BO95DVOq8F

[hypermobility.org @HMSACharity]

Free Ask the OT with @JBOccyTherapy, 21 May at 19:00 BST.

If you’re looking for practical, realistic strategies for pacing, planning, joint protection, mobility aids, or managing daily life with a hypermobility syndrome, this session is for you.

🔗Book: https://t.co/UumGC0m0k0

[hypermobility.org @HMSACharity]

Ask the OT with Jo Southall 📅 21 May • 19:00 BST 💻 Free online session
Bring your questions about pacing, planning, joint protection, mobility aids + everyday strategies for living well with a hypermobility syndrome.
🔗 Register: https://t.co/UumGC0m0k0

[hypermobility.org @HMSACharity]

It’s #SelfCareSunday! 🎉���� We’re joining #CraftHour with hooks, needles, puzzles + games. Maybe nature, birdsong or an audiobook for you? What’s your self‑care today?

[Hypermobile Solutions @HypermobileSol]

If you’ve Googled EDS, you’ve probably seen the “thumb to forearm” test. But hypermobility is more than party tricks.

The Beighton Score is just a screening tool. Many people were more flexible when younger and still have instability, pain, or dislocations now.

#hEDS #HSD #POTS

[hypermobility.org @HMSACharity]

Relaxation is hard. When you use half your energy just holding it together, “rest” isn’t simple. It takes practice and that can be stressful! Hence our weekly members' sessions with Kim (Mon 8pm).

How do you relax? I’m a water baby, in it, near it. Forest light comes a close 2nd

[King Arthur Fan @brandilwells]

If you’ve ever applied for public assistance or disability then you know how true this is.

[Autistic Lauren 🏳️‍⚧️ 🏳️‍🌈 @Autistic_Lauren]

Tired of people being all "You can put your mind to it if you stop convincing yourself you can't" when it comes to disabilities. Sometimes we just can't, and it's important to acknowledge what your limits are to avoid pushing yourself too far

[Wheelie MS Advocate - #PoweredByExperience - ♿️ @WheelieFUMS]

When people on benefits judge others on benefits, it doesn’t just affect “them”, it affects everyone.

The same policies being pushed don’t pick sides.

This isn’t left vs right… it’s about protecting a system we might all need.

#UniversalCredit #BenefitsSystem #StopTheDivide #UKPolitics #DisabilityRights

[hypermobility.org @HMSACharity]

Oh, this is diabolical.

[Happy Captain @EODHappyCaptain]

Curse the person who put the back pain Relief on the bottom shelf:

[hypermobility.org @HMSACharity]

@Autistic_Lauren Dark mode, almost always.