@OliveSiffleur It's tough. Definitely also changed my social interactions. Luckily, I do have friends who understand, but maybe it's it's because they see me suffering from long covid and long explenations. Not sure if all would understand if I wasn't chronically sick. It's not your fault!
@butterflykale Honestly, I would wish for a lot of people who don't mask at all to do it at least partly. I am a long-covid hauler, and yes, even I sometimes felt too pressured to wear one. You are definitely taking part in the solution, not the problem.
1/6Vorschlag für eine grundsätzliche,selbstbewußte und offensive Antwort auf Studien-oder Therapieangebote,
die #MECFS nicht gerecht werden:
„Ich respektiere Ihr Engagement für meine Erkrankung,möchte aber folgendes zu bedenken geben:ME/CFS ist eine schwere körperliche Erkrankung
@igarglewithfire Ugh the ignorance in so many comments ... probably the tone of the teacher is hard to deliver in writing! But just imagine it was that way. You can't believe it? Why?
@dok_torin Ich halte dir fest die Daumen! Bei mir ums Eck hat eine neue Hausarztpraxis mit Homöopathie etc. neu aufgemacht :((
Dank Leuten wie dir kriegen manche P. nach jahrelangem Leiden einen Grund für ihr Problem & echte Lösungsätze! (Bei mir waren es übersehe Allergien +Asthma)
@AlkaSelzer2@MrsMonk484123 Leider ist die Gesellschaft nicht gut draud eingestellt chronisch kranken Menschen zu helfen. Erfährt man erst wenn mans im Umfeld sieht.
They will not mention the fact that there are no approved treatments, and that most doctors don't know how to manage or treat long COVID patients. Reinforcing the (mostly) false idea that if you get long COVID, doctors will be able to help you.
@healingfromlc I don't have this but I make weird pronunciation mistakes. Errors I know as a linguist i should not be making regularlyin my native language. It's odd and scary.
@disabledtudor Thank you, I learned sth!
❤
Everybody who profits from a wheelchair should be able to use one! I have severe POTS and would profit from it and will try soon if it helps me to get out of the house more.