Exciting news! 🎉 The @HyperIgM Foundation proudly presents their latest Podcast series, "Patient Voices," led by their very own 15-year-old #HyperIgM patient, Ezra Fineman. Dive into the inaugural episode on YouTube here: https://t.co/VMQo6BKIma
Did you know April is Primary Immunodeficiency Awareness Month? To help spread the word, we’re giving away two $25 Starbucks gift cards along with a Hyper IgM Foundation mug. #hyperigm#PIAwareness
Don't miss three days of connection, learning, and networking with the primary immunodeficiency (PI) community. Featuring the most up-to-date information from world-renowned healthcare professionals, this will be an experience you won't want to miss! https://t.co/4Hipt4KzvF
On this episode of RTL, Akiva Zablocki shares the remarkable story of his family’s journey to successfully treat their son’s one-in-a-million immune disorder, and how they are now helping patients all over the world through their Hyper IgM Foundation.
https://t.co/wCvNgxcYmg
ESID is pleased to announce an excellent grant funding opportunity.
Researchers with interest in advancing a cure for Hyper IgM Syndrome - the Hyper IgM Foundation is calling you to apply!
https://t.co/vVY6IZgsm0
Heartwarming story of 11 year old #HyperIgM patient, Adam, from Australia. We are so glad to see how well Adam is doing after his bone marrow transplant. Looking forward to seeing him grow and thrive and maybe one day command a battalion! https://t.co/BfM5QyxSVG
📢The Hyper IgM Foundation and WAS Foundation's X-Linked Carrier Survey is now open! Please help distribute this survey to your relevant patients' families. For more information, please follow this link to learn more🧠
https://t.co/RgHFSS5CrA
New blog entry - #HeadOfTheHerd w/ Akiva Zablocki, President, @HyperIgM! "In the end I am an optimist, because there is no other way to approach the #raredisease world we are in besides optimism." Read more: https://t.co/tHP8pAO2qe
Hyper IgM Families already spend their daily lives avoiding germs and illnesses like the common cold or flu. Hyper IgM Foundation President, Akiva Zablocki, shares his secrets to staying safe when germs are all around us. #coronavirus#hyperigm#TheMighty https://t.co/7v3DVvaulj
Akiva Zablocki, President of the Hyper IgM Foundation, shares his family's secrets to avoiding germs in hopes of curtailing the spread of the coronavirus. #coronavirus#hyperigm#RareDiseaseDay
We wanted to share with you some touching words from a partner of one of our rare adult patients. This year the Foundation allocated grant funds to support Dr. Caroline Kuo’s Gene Editing research at UCLA. We were… https://t.co/ij0uqmmJ1Y
Congratulations to Dr. Caroline Kuo from UCLA, and BIG news for Hyper IgM!! Dr. Kuo just received a $4.9 million award from the California Institute for Regenerative Medicine (CIRM) in support of her development of… https://t.co/aB7ikF4TBr
The Hyper IgM Foundation is proud to announce that it joins the Primary Immune Deficiency Treatment Consortium (PIDTC) as one of its Patient Advocacy Group (PAG) partners. The PIDTC consists of 42 centers in North… https://t.co/5AkQmPo9zT
Big thank you to Lisa Boyer and her wonderful team at Wells Fargo!! Through their efforts during the annual Wells Fargo Community Support Campaign, they raised $500 for the Hyper IgM Foundation. We love the size of… https://t.co/cJIzOFhmlC
When men are invited to our Women's Law Group discussions designed to raise awareness and promote inclusion, it has a tangible impact, Amanda Zablocki & Joanna Beckett of @SheppardMullin write. https://t.co/wOsY3Z1YTc