Mighty Ivy

I am Mighty Ivy! I am a smart and adordable 4 year old and I have a twin sister, Isabel. I just happen to have Rett Syndrome. This is my journey.

[Mighty Ivy @IAmMightyIvy]

https://t.co/5Qmzbp2K1Y

[Mighty Ivy @IAmMightyIvy]

Hello everyone, this is Aunt Tracy. Sorry it has been so long since our last post. We did not mean to leave you... https://t.co/URwv8vtGGx

[Mighty Ivy @IAmMightyIvy]

https://t.co/jgmAANkR4Z

[Mighty Ivy @IAmMightyIvy]

I will get back to updating soon, I promise. But tonight, my heart is so heavy. I cannot sleep and I have so many... https://t.co/TszmOrolQg

[Mighty Ivy @IAmMightyIvy]

https://t.co/GQ2AvOA5dD #4Ellen @TheEllenShow please help! @ladygaga #tilithappenstoyou #mightyivy #curerettsyndrome

[Mighty Ivy @IAmMightyIvy]

Til It Happens To You...
#MightyIvy #RettRevolution #CureRettSyndrome https://t.co/QwzCxeBIaZ

[Mighty Ivy @IAmMightyIvy]

I posted a new video to Facebook https://t.co/3VSC8j9Ux4

[Mighty Ivy @IAmMightyIvy]

Dressing change. She hates it. I can't touch her. I'll cuddle her afterwards. We do this once a week. I won't... https://t.co/lOwmFatkkl

[Mighty Ivy @IAmMightyIvy]

This...not even 15 minutes before I went live, we were like this. And y'all...I did cry and my heart almost... https://t.co/ij4bvct6tv

[Mighty Ivy @IAmMightyIvy]

I posted a new video to Facebook https://t.co/EkmjTYlsdI

[Mighty Ivy @IAmMightyIvy]

How many things can one little girl require? I'm going to show you a one week delivery just to feed our girl. https://t.co/oTvF85Pk7z

[Mighty Ivy @IAmMightyIvy]

I posted a new video to Facebook https://t.co/FFlfhpkx2v

[Mighty Ivy @IAmMightyIvy]

Hi! https://t.co/tOvLFVo6iF

[Mighty Ivy @IAmMightyIvy]

I posted a new video to Facebook https://t.co/rafCx3x43D

[Mighty Ivy @IAmMightyIvy]

Let me if you hear me. You may wish you didn't. One of those days. Just a reminder of what Rett syndrome does.... https://t.co/vWsJkcp5AU

[Mighty Ivy @IAmMightyIvy]

Irma set in around 2am and she peaked around 10am-noon here. We lost power at 10:30am and are still without. GA... https://t.co/BfP3aPHr4G

[Mighty Ivy @IAmMightyIvy]

Hi! https://t.co/Ekr0cYqflY

[Mighty Ivy @IAmMightyIvy]

We are alive. Quick update. We have some interesting weather expected. https://t.co/aI0fu4bpfx

[Mighty Ivy @IAmMightyIvy]

It's a hard life! 😂 Honestly, it really is a hard life for our girl. But she slept like a rock in mama's room... https://t.co/kPctjY0gmD

[Mighty Ivy @IAmMightyIvy]

Girls are home. ❤️❤️❤️ Quick update. https://t.co/PODMyRtApu