@ManchesterGigss@wearejames When you are scanning through tweets and clips from last night and randomly find a video of yourself just living in the moment ๐
Did you know, 16 babies are born w/a rare chromosome or gene disorder every day in the UK? At UNIQUE, we're here to offer support & advice. Follow us for stories & updates on rare chromosome & gene disorders and join us in celebrating Rare Disease Day this year ! #UniqueAndRare
@CabbageGrrl Stay positive, his words literally came from nowhere. Even though they are limited they are a joy to hear and 12 months ago I couldn't have imagined him whispering "daddy".
Did you watch #ThereSheGoes last night? If so, you'll have heard @Unique_charity mentioned. They're a superb charity & #rarechromoday an annual initiative to raise awareness & donations to support the work they do. A post from my blog to mark the day.
https://t.co/Jod4iMTE0u
If you've received a diagnosis of a rare #chromosome or #gene disorder for your child, as the Doctor on #ThereSheGoes says, do get in touch with us at Unique. We can help and we are there for you. See https://t.co/R8KZumaaUY
#ThereSheGoes It still hits true and depicts the realities & little moments life throws up as a #rarechromo parent. It just keeps on delivering & removing the mystery of our world & a shout out in the episode for @Unique_charity too ๐ #idic15#dup15q
@PureGym Can you email the gym and instruct them to shut the windows and keep them closed? Someone seems to misunderstand the concept of air conditioning in there.
Hi @PureGym is the air conditioning not working properly in Manchester Stretford or have you just turned it down/off to save costs? Although, them having all the windows open (again) and letting all the hot air in from outside doesn't really help either!
@ThomasDonnan_@BBCiPlayer It's a fabulous depiction of life with a rare chromosome kid. The dark & often brutal days of realisation & diagnosis, the highs of little-big achievements and the unending joy in the most unlikely of places.