ICPV

Independent Cancer Patients Voice is a patient advocate group independent of established cancer charities and aware of the value of medical research.

[ICPV @ICPVtweets]

To find our more or to contact ICPV please go to our website https://t.co/vWRRvyeC6J or our Facebook page https://t.co/Y7YIojYKkY

[ICPV @ICPVtweets]

Our friends at Breast Cancer Now want to hear how breast cancer has impacted your life. The Survey is all about understanding your experience better. They want to get an honest, unvarnished picture of the realities of breast cancer right now.

[Breast Cancer Now @BreastCancerNow]

Our Big Breast Cancer Survey is about understanding your experience better. Have your say today.

https://t.co/UnGQ0ckGI7

[Breast Cancer Now @BreastCancerNow]

Our Big Breast Cancer Survey is about understanding your experience better. Have your say today.

https://t.co/UnGQ0ckGI7

[ICPV @ICPVtweets]

Are you struggling with body image after surgery? If so, why not take part in thus study. See below for more information or click here https://t.co/m1LPp4vNuR

[ICPV @ICPVtweets]

It was a great meeting and good to hear positive feedback.

[Edward St John @ercstjohn]

Engaging with a patient focus group @RCSnews with @ICPVtweets was an invaluable experience! Gained excellent insights about @Concentric_Hlth. It's crucial to ensure that we're building a product that truly meets patients' needs and enhances their experience. Thank you all! 🙏

[ICPV @ICPVtweets]

‘Feeling empowered is a gift’: a radiotherapy researcher on how her breast cancer shaped her work https://t.co/nXJmfuh9Jh

[ICPV @ICPVtweets]

For information on Prosignia and Oncotype in a variety of languages check out SHORE-C https://t.co/1t57qfYNpc

[ICPV @ICPVtweets]

Join the Ethnicity and Breast Cancer PPI Group
Women with a personal experience of breast cancer, or women who have an interest in breast cancer are invited to help develop a new study. See the flyer below for details.

[Stuart McIntosh @StuartAMcI]

Great to be here at #ASBrS24 presenting our survey putting putting experiences at the heart of future research design @drshelleypotter @ICPVtweets @ABSGBI @QubPGJCCR @ResearchNBT

[NIHR Involvement @NIHRinvolvement]

Embedding public involvement activities throughout a research project can ensure that research evidence is relevant, timely & used by stakeholders. But how best to do it?

Our latest Collection includes examples of best practice & practical advice: https://t.co/BVpKuN7v5e

[ICPV @ICPVtweets]

Have you every used Concentric for digital consent? If so we need you help to join a focus group to discuss how the process worked for you. See the flier below for date and details or contact [email protected]

[WCRF International @wcrfint]

Applications now open for the ICPV VOICE Course for Patient Advocates! Welcoming those actively involved in cancer research with personal ties to cancer. Gain insight into cancer biology basics and boost advocacy confidence. #PPIE #CancerResearch

https://t.co/nARMdFl7aS

[NAoMe @NAoMe_news]

📣 We are recruiting for our NAoMe Patient & Public Involvement Forum!

If you have metastatic #breastcancer (MBC) or are a friend/relative/carer for someone with MBC - email us 👉 [email protected]

@BreastCancerNow @METUPUKorg @ICPVtweets @forcateam @UseMyData

[Science and Innovation at Cancer Research UK @CRUKresearch]

@antonis02 @Cambridge_Uni @mhairi_aitken @turinginst @deemtembo @HDR_UK Richard Stephens of @useMYdata highlights the importance of transparency and trust from a patient perspective at #CRUKDataConf24 (AB)

[Sense about Science @senseaboutsci]

Across Denmark, Iceland, Finland, Norway and Sweden, 22% of all clinical trial results were never made public. Only 27% of all trials results were made public within 12 months of completion. Medical research is going to waste and undermining public health https://t.co/Unw6XPbC7z

[NIHR Involvement @NIHRinvolvement]

Research teams should communicate with a wider audience about public involvement and research, using a broad range of approaches that are accessible and appealing.

Find out more about the 'Communication' standard and reflect on whether you're meeting it:
https://t.co/ErpKWevZBa

[NIHR Involvement @NIHRinvolvement]

We know that administering payments for public involvement can be complicated, so we’ve developed guidance with @HRA_Latest & @ResearchWales to support organisations with this.

Find out more here: https://t.co/U4yU0zQBJl

#TuesdayTips

[OPTIMA @OPTIMAbstudy]

🇦🇺 OPTIMA AUSTRALIA 🇳🇿

[ICPV @ICPVtweets]

https://t.co/1T6Soo1qYy

[Beyond Cancer at LSHTM @beyondcancer0]

We have a really interesting opportunity for women who have experienced a cancer diagnosis as a young adult to join a one-off focus group and help with our research plans. Role profile: https://t.co/Qof53NAodx Application form: https://t.co/eC9CuShf70

[Dr Liz O'Riordan @Liz_ORiordan]

@SurgeryWomen @UKWENTs @TheMammaryFold1 @ASiTofficial @ICPVtweets @bccww @unbounders @DrLindseyFitz