ESRC/Wellcome Trust research programme exploring the social and ethical implications of genomic screening in the UK. Prof Felicity Boardman, Dr Corinna Clark
📣Save the Date📣our next SERG meeting will be on June 22nd at University of Oxford. Speakers include Dr Susie Weller and Dr Michelle Peter. Hybrid options available. Register here: https://t.co/M0QgjzXjdA
New paper: Psychosocial implications, acceptability and ethics of screening for paediatric type 1 diabetes: a systematic review and mixed methods evidence synthesis
https://t.co/Jsufe4o1fb
New paper from our team: views of the UK public, families and adults living with SMA, health professionals and families offered screening towards newborn screening for SMA @SMA_NBSalliance@SMA_UK_@Corinna_Clark_ https://t.co/XxcGVb7ioF
Felicity Boardman talking about ethical considerations in newborn screening programmes @ Adelphi Genetics Forum Oct 25 https://t.co/ks75gZmVZk via @YouTube
📢new paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet‐specific autoantibodies - Faustini - 2025 - Diabetic Medicine - Wiley Online Library https://t.co/O4x7SqlU4Y
📢New Paper Involving IF Team: a systematic review on the attitudes of individuals with/at risk of adult-onset genetic conditions on reproductive genetic testing📢
https://t.co/JsP2QlvzvK
📢 New paper involving IF team 📢Establishing the performance and acceptability of dried blood spot sampling to screen for islet-specific autoantibodies https://t.co/O4x7SqlU4Y
So great to see this collection come together! After a fascinating few days at @Fond_Brocher in the summer of 2023, we now have an edited collection of papers addressing the question of severity and its uses in genomics
https://t.co/6TL7nc5djz
New Paper: Special Issue in EJHG on Severity. What started as a @Fond_Brocher workshop in the summer of 2023 is now a wonderfully rich and diverse collection of papers spanning policy, practice and lived experiences: https://t.co/iwFMSsfLyU
📣New paper from QRDC project 📣“Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion: A Scoping Review” is now published and is available at https://t.co/t7YqKStHPY
New Paper: #JMIR#Preprint: Advances in newborn screening: development of an online scenario-based tool to enable research participation and public engagement. https://t.co/SaHIqWyY6b #digitalhealth via @jmirpub