“I suck it up and push through with my disabilities. So can you”
You actually don’t get extra points for making yourself suffer. It doesn’t make you better.
Being chronically ill while young changes the way you view aging.
Most people spend their younger years assuming physical limitation belongs to some distant future version of themselves.
Some of us learn much earlier that the body doesn’t always follow that timeline.
People underestimate how much chronic illness can affect cognitive function.
Pain. Poor sleep. Autonomic dysfunction. Inflammation. Constant physiological stress.
All of it can impair attention, memory, processing speed, and executive functioning.
“Brain fog” sounds harmless until you actually live with it.
💬 “A mí no se me informó de que la Esclerosis Múltiple puede ser muy diferente según las personas. Es un punto importante para tratar en el diagnóstico porque tendemos a generalizar”.
💬 “Me gustaría saber qué hacer para evitar el sufrimiento de los que están a tu alrededor”.
Cada diagnóstico de EM es distinto.
🧡 Y cada experiencia merece ser escuchada.
¿Cómo podría haber sido mejor tu experiencia con el diagnóstico de Esclerosis Múltiple?
📩 Deja tu mensaje en https://t.co/N1KhrxRYjY
😊 Unos días antes del Día Mundial compartiremos todos los mensajes recibidos.
Si eres familiar de una persona con EM, también puedes compartir tu historia. La EM también impacta en quienes acompañan cada día 💚
📆 30 de Mayo: #DiaMundialEsclerosisMultiple
#WorldMSDay World Multiple Sclerosis (MS) Day
#MiDiagnósticodeEM #MyMSDiagnosis
#EsclerosisMúltiple #MultipleSclerosis #MS
people truly do not understand that disabled people do not have the same energy levels as normal people.. it takes so much energy to do such menial tasks that if a disabled person deems a task unworthy of their energy who tf are you to argue that
Lo que CUESTA tener discapacidad:
→ Productos de apoyo: 500-5000€
→ Adaptaciones hogar: 2000-15000€
→ Terapias privadas: 30-60€/sesión
→ Tiempo perdido en trámites: incontable
→ Energía emocional: infinita
Y luego te dicen que hay "ayudas".
Sí. Después de gastarte una fortuna. 💜💸
#Discapacidad
Spinal cord imaging in #MultipleSclerosis needs improvements in acquisition and post-processing to enhance its effectiveness and applicability in future clinical trials.
Systematic review from @ahmadtubasi99@VUMCDiscoveries@BagnatoLab ▶️ https://t.co/7URt0QUA7T
Chronic illness teaches you how quickly people lose patience with something that isn’t improving.
At first it’s concern.
Then it’s suggestions.
Then it’s silence.
Once it becomes clear this isn’t going away, people stop caring the way they did in the beginning.
Palabras que tu médico DEBE usar en informes:
❌ "Le cuesta"
✅ "Limitación funcional"
❌ "Tiene dolor"
✅ "Dolor crónico que interfiere con AVD"
❌ "Se cansa"
✅ "Fatiga discapacitante"
El lenguaje técnico importa.
Los baremos buscan estas palabras. 📝
Guarda esto.
#Discapacidad #EERR
Please don't forget that the only difference between you and a disabled person is time. Even if the disability is temporary, it will happen in your lifetime. Disability is part of the human condition. Advocating for disability rights is advocating for your inevitable future.