IPF Awareness

Aiming to increase awareness of Pulmonary Fibrosis, support charities in helping improve the outcomes and quality of life for patients with this disease

[Tameside Pulmonary Fibrosis Support Group @TamesideGroup]

From Reflux, to Auto Immune Diseases, to Medication, to Idiopathic (no known cause), whatever the reason, a diagnosis of PF is devastating. It's debilitating, exhausting, frightening & PF literally takes your breath away. 🫁
Raising Awareness of PF! 💜
#aroundtheworldwithtpfsg

[Action for Pulmonary Fibrosis @ActionPFcharity]

🫁Today is World Lung Day.🫁

Pulmonary fibrosis is a devastating lung disease that is still not widely recognised. More research and awareness are urgently needed.

💜Share this post and together, let’s shine a light on pulmonary fibrosis: https://t.co/pzC2btwaUE

[Action for Pulmonary Fibrosis @ActionPFcharity]

Our 2025 Conference Award applications are open!

Are you a student, early career researcher or HCP presenting your PF work at @BTSrespiratory Winter Meeting or other conferences?

We offer extra financial support for those facing barriers to attend:

https://t.co/wGJ3bmQluE

[Laura Fabbri @Istamina]

📢 Save the date!
Join us on 10 Sept 2025 for an #ILDIN webinar with @drphilmol 
“From Calm to Crisis: ILD Acute Exacerbations”
➡️ For ILD-IN members. Registration info coming soon via email.
#ILD #ERS #LungHealth

[Breathing Matters @Breathingmatter]

From our #PulmonaryFibrosis Wish List: £50 – For analysis of a novel molecular imaging (PET) scan in an #IPF patient.
See more wishes at https://t.co/pUrZwIYxRx
#GrantAWish #PulmonaryFibrosis #WishList #ThankYou #YourDonationMakesADifference

[Laura Fabbri @Istamina]

10 years of ILD-IN
We’ll have great speakers, the latest updates, and memorabilia from the past to celebrate.
Not-to-miss event for the ILD community #curePF #ILD

[Action for Pulmonary Fibrosis @ActionPFcharity]

You now have until 14 July to complete the PF State of the Nation survey.

This is your chance to help drive real change in PF care across the UK.

🎥Watch this video of Ronnie, who's completed the survey and shares why it’s important to take part.

https://t.co/tcbzGssrcu

[IPF Awareness @IPFawareness]

@TamesideGroup I am so sorry so many have lost their lives to this horrific disease. I’m so grateful for all you do and raising awareness is so important 💜 #aroundtheworldwithtpfsg is such a great idea. You should be proud

[IPF Awareness @IPFawareness]

❗️Unbelievably this issue still isn’t sorted after 5 years. Wearing oxygen all the time even in bed, nasal tubes are uncomfortable behind the ears. Sometimes it’s the small things. let’s not forget about the day to day, quality of life @ActionPFcharity #qualityoflife

[IPF Awareness @IPFawareness]

@TamesideGroup Congratulations 🙂 great news!

[PCRS @PCRSUK]

Want to share your research with a leading respiratory audience?

Submit your abstract for the PCRS Conference! Present your work, gain valuable feedback and contribute to respiratory best practice.

📝 https://t.co/fMG0sNwoyA

#PCRS2025

[Action for Pulmonary Fibrosis @ActionPFcharity]

📣Now’s your chance to share your experience to help make positive, lasting change in PF care across the UK.

Complete the 2025 'PF State of the Nation Survey' today to help influence change and ensure PF is prioritised and recognised.

📋Take part: https://t.co/6a9ZJkz7mo

[IPF Awareness @IPFawareness]

Great news thanks to all involved. Good to hear progress is being made 😊

[Action for Pulmonary Fibrosis @ActionPFcharity]

📣Two major global trials have found a potential new treatment for IPF and other forms of progressive pulmonary fibrosis. The drug, nerandomilast, significantly slowed lung function decline, offering hope for the first new PF treatment in over a decade.

https://t.co/Cl6CEd3pco

[IPF Awareness @IPFawareness]

@TamesideGroup I am so sorry 😢 heartbreaking 💔 I find it hard to believe that this can be a rare disease. Thinking of you all. You’re amazing keep fighting

[Naftali Kaminski @KaminskiMed]

Finally! The Pulmonary Fibrosis Drug Connectome is on #IPFCellAtlas!! If you want to know if a drug is antifibrotic, which cells it targets, or what drugs target a gene , in what cells - go to https://t.co/3acmOQ2RiC click on the Connectome tab. Enjoy!!
#DataSharing
#CurePF4All

[IPF Awareness @IPFawareness]

https://t.co/Vu9nac5oCl

[IPF Awareness @IPFawareness]

Tramper hire in Derbyshire for people with limited mobility 🙂 Great for getting out and about in the countryside👍 Cromford Mill today. There is a café, bookshop and gift shop too #tramper #mobility #disabled #Derbyshire ⁦@ActionPFcharity⁩

[PCRS @PCRSUK]

Calling all researchers! 📣

Abstract submissions for #PCRS2025 are open until 30th June. Share your respiratory research or service development work and gain recognition.

Learn more and submit ▶️ https://t.co/HuOINDpv4z

[IPF Awareness @IPFawareness]

Happy Easter! 🐣 Treat yourself. You deserve it! 🙂 #HappyEaster

[Action for Pulmonary Fibrosis @ActionPFcharity]

Are you a basic science or medical student interested in #lungscarring research? Or a clinician scientist with an idea for an 8-week project?

Together with @BALRcommunity, we're supporting 2 Summer Studentships in 2025. Applications will open in March.

https://t.co/fSHNHx4DcA