Hey @elonmusk I'm moving to a rural area with few options for internet. My question is when is @SpaceXStarlink coming and can I get it? My wife is a teacher and I do a podcast part time so we need internet.
‘Hayden was twenty years old and had never been told he was at risk, or that SUDEP was a thing. This needs to change.’
Read the #MyStory of Hayden - https://t.co/AH6chdIQEU
Access free bereavement support -
[email protected] /01235 772852
#MorethanSeizures#NationalEpilepsyWeek
Raise awareness about epilepsy & the risks of sudden unexpected death in epilepsy (SUDEP). Together we can share tools & resources to help others engage w/their health care team about reducing possibilities of SUDEP & accelerate research to help #EndSUDEP. https://t.co/RvF7vgbrVQ
Hey @PrimeVideo you need to release the #darktower pilot. In these times of peril it would be beneficial to see the pilot episode so we could see it for ourselves. #darktowerpilot
For #MothersDay@GMA shared a video & essay about #SUDEP warrior moms who have lost kids to sudden unexpected death in epilepsy: https://t.co/oabRSYhdFu. #EndSUDEP 1/3
Featured on #GMA are Libby Boyce, who lost her son Cameron in July 2019; Sally Schaeffer, who lost her daughter Lydia on Mother's Day 2014; and other #SUDEP warrior moms speaking out, raising awareness, and fighting for research and cures. #EndEpilepsy 2/3
We’re celebrating #InternationalDanceDay with the best dancing Wildlife Warrior in the world! @BindiIrwin you will always be our dancing queen of conservation. 💚🐊
Caring for someone w/a chronic condition such as epilepsy can be overwhelming & stressful. Isolation from others, changes in sleep habits, appetite, chronic stress & anxiety may be signs of caregiver overload & burnout. Wellness tips for caregivers: https://t.co/dAA1MpfuPj
Tune in TUE 4/28 at 5PM (PT) for an Instagram LIVE interview between @epilepsylifestyleblog, Kyle, and Arizona #EpilepsyAdvocate Brandon, @brandonberry861 on how #COVID19 has affected their lives as individuals living with #epilepsy. Follow their IG accounts to get notified! 💜📲
People who are registered disabled can now call to ask for support from NHS Volunteer Responders. We are in daily contact with the DHSC and will share any further details as soon as we can.
TAKE ACTION and tell your members of Congress to include the epilepsy community’s priorities in the next COVID-19 relief package to ensure access to health care and vital other forms of support. https://t.co/z9ZX64NE3I
A message for our supporters
@SudepAction are making changes in these uncertain times - with the team making a voluntary contribution of 25% of their wages this month to support our work.
Whatever happens around us, SUDEP Action remain always by your side.
Sending our heartfelt condolences to
@GMMOPAZ & his family as they mourn the tragic loss of their 21-year-old daughter, Brooklyn, who sadly passed last week. Please don't hesitate to reach out to @EpilepsyAZ for support.💜Read full @azfamily article here https://t.co/iHcsWi3RV2.
The term ‘petit mal’ as a type of epileptic seizure is medically dated.
In up-to-date, modern medical literature the term used is: ‘absence seizure’. See @epilepsyaction ⬇️
https://t.co/MnG7imUIxN
Ruby is on day 11 of having the coronavirus! She is still testing positive, heart rate is still up, but now off oxygen and temp is stable. I can’t wait for Ruby to come home, to just be able to sit with her. As I’m still not aloud to see her! Thank you for all your love/support❤️