Ross

Recently diagnosed with #Haemochromatosis so learning live with #IronOverload. Live in the UK. Keen to connect with others, learn more & raise awareness 🩸

[Ross @IronLoader]

@garymccreadie @GiveBloodNHS No worries and good luck 🤞🏻 it’s a relief to get started and not that bad. My main advice is hydrate really well - I’ve run in the morning before a couple of times and it doesn’t help you bleed!

[Ross @IronLoader]

Back on it to nudge me under 100 & hopefully into maintenance🤞🏻 26th #venesection this year and now looking forward to a break before managing my #haemochromatosis with @GiveBloodNHS 🩸

[Ross @IronLoader]

@VickyVousden @GiveBloodNHS Thank you!

[Ross @IronLoader]

@R0LLSY @IronOverloadUK How you getting on? Had a little break on here but had another venesection today, and hopefully last for a while

[Ross @IronLoader]

#venesection 21 and back within normal ferritin levels at last - nearly there #haemochromatosis 🤙🏻💉🩸

@IronOverloadUK

[Ross @IronLoader]

@R0LLSY Thanks & yes interesting to see what the body will do, but whatever the jump at least we know long term damage is now unlikely 🤞🏻

[Ross @IronLoader]

Pint 19 ✅ hoping for sub 200 levels after this one 🤞🏻 #haemochromatosis #venesection

[Ross @IronLoader]

Back at it with pint 17 #venesection #haemochromatosisuk #haemochromatosis

[Ross @IronLoader]

14th #venesection today & second week running I’ve experienced a very slight indigestion feeling in my chest and a low heart rate. Will be getting advise from my #haemochromatosis consultant tomorrow, but has anyone else experienced this?

@IronOverloadUK

[Ross @IronLoader]

@garymccreadie On the positive at least you know what you are dealing with & hopefully treatment starting doesn’t take long

[Ross @IronLoader]

Hello I’m Ross 👋🏻 I recently started treatment for #haemochromatosis so am keen to learn more and start connecting with others. #venesection 1 was fine but number 2 today didn’t go to plan as I managed to pass out at the end 🤦🏻‍♂️ hopefully a one off but any advice welcome!

[Ross @IronLoader]

@Fabisiak73 I’ve had most of my vs Friday afternoon’s & have an easy run Sunday morning - seems to work ok for me 🤷🏻‍♂️ slow, steady & lots of water

[Ross @IronLoader]

13th #venesection yesterday & managed a 10km run in the sun this lunch time today. Positive summer vibes & feeling like light at end of the tunnel! 🏃🏽‍♂️ #haemochromatosis

[Ross @IronLoader]

@KarinCalford Hey Karin, nice to meet you too 👋🏻 I’ve been fine the last 10 so hopefully it was just a one off faint into the consultants arms! 🤦🏻‍♂️ how is it working out for you?

[Ross @IronLoader]

@R0LLSY Indeed, I’ve felt sluggish today but manageable as it’s been a relatively quiet working day, but will have to see how we go. Determined not to let this influence my life & work balance too much if possible though!

[Ross @IronLoader]

How do others plan their venesections to improve life/work balance?

I recently recorded an interview for mental health awareness week including my take on to manage the potential loneliness of having a condition like #haemochromatosis.

[Ross @IronLoader]

@Janet_hols Let’s hope so! 🤞🏻

[Ross @IronLoader]

A double jabbing for my 11th pint as I clotted up on 1st attempt. A 2nd bag and some wiggling to adjust we finally got there! Hopefully it’s not the start of vein trouble 😬#venesection #haemochromatosis

[Ross @IronLoader]

10th pint down & hopefully not many more to go 💉🩸#haemochromatosis #venesection