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Jain Foundation
@JainFoundation
Orchestrating a Cure - LGMD2B/Dysferlinopathy/Miyoshi
Seattle, WA
Joined June 2013
2.9K
Following
1.1K
Followers
197
Posts
Jain Foundation
@JainFoundation
over 9 years ago
For Rare Disease Day: Jain Foundation science staff directing the global research to find a cure!
Jain Foundation
@JainFoundation
over 9 years ago
For Rare Disease Day, we want to share a documentary (made by an amazing person) that inspires us. https://t.co/mwD5oWTHqT
Jain Foundation
@JainFoundation
over 9 years ago
What is Limb Girdle Muscular Dystrophy type 2B/Miyoshi Myopathy? https://t.co/sw6R5RT33R via
@YouTube
Jain Foundation
@JainFoundation
almost 10 years ago
Want some cool gear for LGMD awareness day Sept 30th? Check out our new store! https://t.co/mDLbLegpNG
#lgmdawareness
#lgmd
Who to follow
TREAT-NMDยฎ
@TREAT_NMD
Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world.
Parent Project Muscular Dystrophy (PPMD)
@ParentProjectMD
#EndDuchenne
CureDuchenne
@CureDuchenne
We are committed to improving the lives of those affected by Duchenne through accelerating research, improving care and empowering the community.
Jain Foundation
@JainFoundation
almost 10 years ago
Stephanie gave a very moving talk at the
#2BEmpowered2016
conference https://t.co/AZwa0k4z2F
#LGMDawareness
#LGMD
#causes
#raredisease
Jain Foundation
@JainFoundation
almost 10 years ago
Excited to support a patient who made
#lgmdawareness
gear!
#LGMD
#nonprofit
#adayinthelife
#causes
#raredisease
Jain Foundation
@JainFoundation
almost 10 years ago
#LGMDAwarenessday
2016 is official in Georgia this year!
#LGMD
#LGMDawareness
#raredisease
Jain Foundation
@JainFoundation
almost 10 years ago
Cody Miller won gold in Men's 4x100m medley relay & brings
#awareness
to
#raredisease
, pectus excavatum! https://t.co/aMb9rrcWS7
Jain Foundation
@JainFoundation
almost 10 years ago
#LGMD
Consortium's Free Genetic Testing Program Is A Major Success, helping over 1200 people! https://t.co/L9ba7Uacc4
@rareDR
#LGMDawareness
Jain Foundation
@JainFoundation
almost 10 years ago
It's official in Washington!
#LGMDAwareness
Day will be Sept 30th! Thanks Brad for applying!
#lgmd
#nonprofit
Jain Foundation
@JainFoundation
almost 10 years ago
Step aside, Olympics hereโs the Cybathlon: devices to help people with disabilities
#lgmdawareness
via @NatureNews https://t.co/6aLPGie0d7
Jain Foundation
@JainFoundation
almost 10 years ago
LGMD Consortium provides free genetic sequencing, visit https://t.co/zEt1k8kGiJ to learn more https://t.co/bjZ4bsSUkb
#LGMDawareness
#lgmd
Jain Foundation
@JainFoundation
almost 10 years ago
Chris gave an inspirational talk about achieving your dreams despite
#lgmd
at
#2bempowered2016
#lgmdawareness
https://t.co/AUMoJCKkwi
Jain Foundation
@JainFoundation
almost 10 years ago
2016
#LGMD
Awareness
#Scholarship
= huge success reaching over 87,000 people! Even got mentioned here https://t.co/B1d82OKn6Z
#LGMDawareness
Jain Foundation
@JainFoundation
almost 10 years ago
Todays
#staffspotlight
- Sarah, Director of Patient Outreach and Community Strategies!
#lgmd
#lgmdawareness
Jain Foundation
@JainFoundation
almost 10 years ago
Today's
#staffspotlight
! Meet Elaine, a Research Program Officer at
#thejainfoundation
#lgmdawareness
#nonprofit
Jain Foundation
@JainFoundation
almost 10 years ago
Today's
#staffspotlight
-meet Miriam, our Head of Operations!
#LGMDawareness
#thejainfoundation
Jain Foundation
@JainFoundation
almost 10 years ago
Jill Viles gave an inspirational talk at the
#2BEmpowered2016
Patient Conference https://t.co/6xrH2678PQ
#LGMDawareness
#JainFoundation
Jain Foundation
@JainFoundation
almost 10 years ago
Help us choose a design for a t-shirt, which would you wear? https://t.co/MkJLlXEFMF
#LGMDawareness
Jain Foundation
@JainFoundation
almost 10 years ago
The
#2bempowered2016
Patient Conference was a great hit! Here's Yumi's opening talk https://t.co/ppH19UK9dr
#lgmdawareness
#LGMD
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