We are launching our Etsy store, Apparel for Zebras, in collaboration with @raising_rare to provide high quality merch.
use code SAVE10 for $10 off a $100 purchase, and code SAVE30 for $30 off a $250 purchase.
https://t.co/IdZacZee3z
#RareDisease#apparel#etsystore#patient
We are launching our Etsy store, Apparel for Zebras, in collaboration with @raising_rare to provide high quality merch.
use code SAVE10 for $10 off a $100 purchase, and code SAVE30 for $30 off a $250 purchase.
https://t.co/IdZacZee3z
#RareDisease#apparel#etsystore#patient
Mental Health Awareness month has come to a close but that doesn't mean we stop thinking about it. @Raising_Rare 's last episode with Dillon Loomis-Head touched upon so much of the #mentalhealth journey and struggles of being a #patient#clinicaltrials
https://t.co/ip7iUhoc8o
@drsxr But you still have to start somewhere. All diseases started with that first diagnosis and the question of the unknown. #KeepPushing you are an asset to your patients. #hcldr#rarediseaseday2023
Good discussion. As docs, they tell us "don't look for zebras if you hear hoofbeats." But if you don't look for zebras, you don't find them. I've diagnosed my share of zebras. Its all about a balance. #hcldr
A4: What gets forgotten? The 364 days that aren’t #RareDiseaseDay. Don’t let up when the calendar turns to March. We don’t. We can’t. It gets lonely, isolating, & siloed.
Amplify our voices. Partner with us. Bring us into the healthcare conversations from the start. #hcldr
so glad we could guest host #hcldr tonight to bring #awareness to a #community that we love and care about. don't forget to give @Raising_Rare a listen. @SalemOaks is here to help and would love to hear from you.
@K_SalemOaks @RareDiseaseDad@hcldr Actually, I love the Montreal Model of patient partnership: the patient isn’t at the center, but an equal part of the team! For more info https://t.co/SLoGveJwgQ #hcldr#PatientPartnership