Jet

[Jet @janejet07]

@TheNerveShow Her health should remain private, asking how many surgeons etc is nobody’s business but the POW. This is below the belt.

[Jet @janejet07]

@ABrokenBattery @DrOscarDuke What makes me cross is that the presenters used the correct ME term and then the Doctor goes on and on about CFS - it makes it feel a bit deliberate- I really hope it wasn’t but frustrating that he didn’t do his homework!

[Jet @janejet07]

This is a brilliant description of what has happened with ME.

[Jet @janejet07]

@finnishgunners Brilliant

[Jet @janejet07]

@PhysiosForME Thank you

[Jet @janejet07]

@mayordcsdc @Dan_Wyke thank you

[Jet @janejet07]

Please sign if you can, despite huge amounts of biological evidence, many Psychiatrists, the organisations that represent them, and those involved if the failed PACE trial at still pushing their dangerous agenda which has held back research.

[Long Covid Advocacy 💙 @LongCovidAdvoc]

🩵On #MEAwarenessDay we are sending an open letter to @rcpsych calling for alignment with current evidence.

Supported by 20 organisations. +35 advocates, clinicians & academics!

In democratic spirit we are offering a public sign-on opportunity 🔗👇️
#RCPsychIC #Garner

[Jet @janejet07]

@misspaulalondon Yes visited Rigby and Peller and M&S neither used tape but checked what size I was in. But they fitted very well - it’s not just measurements, it’s the different boob shapes and how they lie on the chest and bras all structured and fit differently.

[Jet @janejet07]

@XOQueenEsther Very well said!

[Jet @janejet07]

@CaroleBruce17 @cfs_jo @NickyProctor Yes very well done @NickyProctor you were so calm and and clear. Thank you

[Jet @janejet07]

@according2_taz Download audible or kindle edition?

[Jet @janejet07]

@KSchnickelfritz @CaroleBruce17 🙏 thank you

[Jet @janejet07]

@ABrokenBattery @Dan_Wyke Good news, good to see Devon and Exeter stepping up and hopefully learning from their mistakes.

[Jet @janejet07]

@Dan_Wyke @wesstreeting I actually wonder when these Doctors will be prosecuted for withholding life saving treatment e.g feeding the patient regardless of what they think the cause of non eating is. Really think we need the ME charities to take hospital to court on Savannahs behalf

[Jet @janejet07]

@MartinSLewis @KemiBadenoch Martin you are passionate on the subject and imho it was really good to see 2 people with opposing views discuss their views and also both be grown ups afterwards too. Things don’t always go to plan - @KemiBadenoch @MartinSLewis well done to both of you.

[Jet @janejet07]

@LBC Most companies do not want to train staff. Many jobs say graduate with 2-3years experience - I don’t consider that a graduate job. There are very few trainee/starter jobs out there. I didn’t go to uni but there were lots of opportunities learn/train - not now even with degree.

[Jet @janejet07]

Save Savannah Victora-May - Prevent Another ME/CFS Tragedy - Sign the Petition! https://t.co/H0RpAYAjX4 via @UKChange

[Jet @janejet07]

Save Savannah Victora-May - Prevent Another ME/CFS Tragedy - Sign the Petition! https://t.co/VJ7HHHcHL9 via @UKChange

[Jet @janejet07]

I’ve just donated - Please donate if you can, it seems the NHS is only going to change for ME patients if they are taken to court - #MECFS

[Adam @ABrokenBattery]

TW: Update on Savannah via GoFundMe: Donations have now funded legal action. Sonya Chowdhury (CEO Action for ME) has briefed a solicitor as well as Savannah’s MP. I’ve donated again.

Also includes a diary style update of her experience in hospital.

https://t.co/akyahJ19Xt