JCFG Memorial Golf

Official Twitter Account of the JCFG Memorial Golf Tournament raising funds in support of Heart & Stroke and Cystinosis Research

[JCFG Memorial Golf @JCFGMemorial]

$11 for 11 - Allies for Andrew. It's been 11 years since diagnosis #Cystinosis. $11 Buys hope. Join us! https://t.co/0S2h48Thhx

[JCFG Memorial Golf @JCFGMemorial]

@DonnellyStephen You’ve missed the mark with prioritizing Family Carers sir. We are on our knees, keeping loved ones safe and reducing the burden on the healthcare system. When we fall, the whole healthcare system will fall. You will fall at the next election!

[Family Carers Ireland @CarersIreland]

“The fact that family carers have once again been ignored is devastating. They were cast aside for PPE, they were ignored for priority testing and now they are being ignored for vaccinations. What message does that send out?" #carerscantwait https://t.co/CH6Zbuvto2

[JCFG Memorial Golf @JCFGMemorial]

@CarersIreland Disgraceful! We are on the frontline 24/7. We don’t get shifts off to recharge. Family carers are on our knees. If we fall, the whole healthcare system will fall.#carers can’t wait

[Family Carers Ireland @CarersIreland]

"We have highlighted this at a political level and yet unfortunately we still have not seen family carers being included as a priority group". FCI's Catherine Cox telling @RedFMNews that family carers must not be forgotten in the #COVID19 vaccine roll-out. https://t.co/gQpkJn9wmg

[Family Carers Ireland @CarersIreland]

"As his carer, I absolutely should be getting the vaccine to protect him &, if I fall ill, who will mind Jack?...It would make total sense that carers like me are on the vaccine priority list like frontline workers because we are indeed frontline workers." https://t.co/S9092Iw3rZ

[JCFG Memorial Golf @JCFGMemorial]

@CarersIreland Great organization doing incredible work to lobby on behalf of family carers.

[JCFG Memorial Golf @JCFGMemorial]

If you have followed our family’s journey with Cystinosis you will understand why one box of tissues is not enough. #curecystinosis https://t.co/HWzygR9noP

[JCFG Memorial Golf @JCFGMemorial]

#hero

[Cystinosis Research @NataliesWish]

6 months ago today, Jordan Janz received the first stem cell & gene therapy transplant! Though Jordan’s 6-month check-up was postponed due to current stay-at-home orders, he reports low cystine levels, so he is not taking cysteamine therapy! Thank you, Jordan, for your courage!

[Family Carers Ireland @CarersIreland]

A reminder that our Carers' Coffee Club will go live at 11am on https://t.co/xeVBLf0ETw with Bryan Nolan offering advice on how to stay well and mind yourself while caring for those you love during. Please tune in and join the coversation. #Covid19

[Family Carers Ireland @CarersIreland]

Please visit our website for the latest information on #Covid19 from official, trusted sources.
#StayAtHomeAndStaySafe https://t.co/zTJoMwAvsz

[JCFG Memorial Golf @JCFGMemorial]

I just signed a @IATSECANADA petition: Help Ensure that the Entertainment Industry & its Workers Are Supported! / Aidez à assurer le soutien de l’industrie du divertissement et ses travailleurs.. Sign here: https://t.co/dEM4e0EykG

[JCFG Memorial Golf @JCFGMemorial]

@CystinosisIrl Heartbreaking but responsible decision.

[JCFG Memorial Golf @JCFGMemorial]

THIS is what we have all been raising funds for. Thank you to all of our supporters; the finish line is in sight! https://t.co/XZ6eD7ybfo

[JCFG Memorial Golf @JCFGMemorial]

I know this feeling!!!

[J Λ M Ξ S @jamesglynn]

when you’re in an uber from the airport to a new city https://t.co/0bwjZNPUXg

[Family Carers Ireland @CarersIreland]

Our Political Party Carer Commitment Checklist outlines which of the 10 pledges from our #GE2020 manifesto that political parties have committed to. To download the checklist, please visit https://t.co/TvYcmJ3PB7

[JCFG Memorial Golf @JCFGMemorial]

Our hero. #curecystinosis

[Cystinosis Research @NataliesWish]

"I am immensely proud of Jordan for trying and for fighting for a better life. After all, that is what hope is: a desire to be in a better place" -Jordan's mom, Barbara. Thank you, Jordan & family, for leading the charge toward a cure for cystinosis!
#curecystinosis

[Robyn Henderson @RobynHenderso13]

@JCFGMemorial another great day on the course for a funtastic golf tournament. #mikeysfoundation #cystinosis #bouldercreek #goodtimes #holeinone

[Brianna Parkins @parkinsbrea]

Equal pay, probably.

[JCFG Memorial Golf @JCFGMemorial]

Mark your calendars. September 14, 2019 is coming quick. Stay tuned for details. @JCFGMemorial #mostfunyouwilleverhaveinagfcourse.

[Karen McCullagh🇮🇪🇨🇦 @kcmccullagh]

This is how we do it! @JCFGMemorial style! Fun for funds for @NataliesWish @MikeyNetwork and @ChildrensWishAB. #besttimeyouwilleverhaveonagolfcourse

[JCFG Memorial Golf @JCFGMemorial]

The 8th annual @JCFGMemorial is going down on September 14th. Watch for details. Any guesses as to what @countmacula21 @Alan_McCullagh will be wearing this year?