@DonnellyStephen You’ve missed the mark with prioritizing Family Carers sir. We are on our knees, keeping loved ones safe and reducing the burden on the healthcare system. When we fall, the whole healthcare system will fall. You will fall at the next election!
“The fact that family carers have once again been ignored is devastating. They were cast aside for PPE, they were ignored for priority testing and now they are being ignored for vaccinations. What message does that send out?" #carerscantwait https://t.co/CH6Zbuvto2
@CarersIreland Disgraceful! We are on the frontline 24/7. We don’t get shifts off to recharge. Family carers are on our knees. If we fall, the whole healthcare system will fall.#carers can’t wait
"We have highlighted this at a political level and yet unfortunately we still have not seen family carers being included as a priority group". FCI's Catherine Cox telling @RedFMNews that family carers must not be forgotten in the #COVID19 vaccine roll-out. https://t.co/gQpkJn9wmg
"As his carer, I absolutely should be getting the vaccine to protect him &, if I fall ill, who will mind Jack?...It would make total sense that carers like me are on the vaccine priority list like frontline workers because we are indeed frontline workers." https://t.co/S9092Iw3rZ
If you have followed our family’s journey with Cystinosis you will understand why one box of tissues is not enough. #curecystinosis https://t.co/HWzygR9noP
6 months ago today, Jordan Janz received the first stem cell & gene therapy transplant! Though Jordan’s 6-month check-up was postponed due to current stay-at-home orders, he reports low cystine levels, so he is not taking cysteamine therapy! Thank you, Jordan, for your courage!
A reminder that our Carers' Coffee Club will go live at 11am on https://t.co/xeVBLf0ETw with Bryan Nolan offering advice on how to stay well and mind yourself while caring for those you love during. Please tune in and join the coversation. #Covid19
I just signed a @IATSECANADA petition: Help Ensure that the Entertainment Industry & its Workers Are Supported! / Aidez à assurer le soutien de l’industrie du divertissement et ses travailleurs.. Sign here: https://t.co/dEM4e0EykG
Our Political Party Carer Commitment Checklist outlines which of the 10 pledges from our #GE2020 manifesto that political parties have committed to. To download the checklist, please visit https://t.co/TvYcmJ3PB7
"I am immensely proud of Jordan for trying and for fighting for a better life. After all, that is what hope is: a desire to be in a better place" -Jordan's mom, Barbara. Thank you, Jordan & family, for leading the charge toward a cure for cystinosis!
#curecystinosis