URGENT!!!
Please everyone retweet, pass along to FB, everywhere All #CPP#autoimmune fill out this form, let’s get those opiate guildlines retracted now. Report #CDC falsifying data. Please everyone fill out, only chance we have to hold CDC accountable.
https://t.co/wMGC1u4upj
@PithyPins Called, wrote, gave Josh’s info already, thank you. Susan Edelman is a very kind lady like @Liz_Llorente. She had a meeting but promised to call me back. She really should talk to Josh first because I’ll probably deafen the poor lady with my rambling rant.
I have a hard time wrapping my head around those making money off of suffering of lifelong diseases and unfixable conditions that have lifelong pain. 😔
@Shasta77777 New York Post investigative journalist and former colleague is looking for New York pain patients and physicians and others to speak about pain and opioids......
Susan Edelman
Reporter
1211 Avenue of the Americas, New York, NY, 10036
917-584-7675
[email protected]
🔴 ATTENTION:
NEW YORK - Pain Patient's,
Physicians, /others
NEW YORK POST REPORTER would like to
speak to you -
Please SHARE!
CONTACT information below 🔽 --Thank you
@BonnieZ36975344@lawhern1 I think Darnell has been watching us and knew exactly what to say at the right venue. She’s a clinical psychologist, a professional manipulator but after 18 years of psychotherapy (by choice) I cannot be gaslighted. I know her history. I’ve even met Dr. Ellis who she plagerizers.
The cutesy coward Beth Darnell couldn’t take the truth from a rare and orphan disease sufferer. This is the pillar of strength so many are leaning towards. Can’t take the heat from one very physically sick woman who most likely won’t live through another Summer. Cutesy Kolondy!
@BonnieZ36975344@lawhern1 I’ve listened to every video, podcast and read every article. One very staged speech does not undo Darnell career is based on degrading and deeming incurable disabled. It proves people like her think we’re too stupid to think for ourselves. I have a rare disease but not an idiot.
@lawhern1@Jmkilingnyc Have you listened to the podcast? I couldn't even finish so sick of those profiting off of those with lifelong diseases and unfixable conditions that have lifelong pain.
@lawhern1 She’s telling people with horrific spine disease to be Mindful Vulcans using our brain computer in 5 inch heels. I did not get Darnell wrong. She’s Scientologist at the very least. She’s cozying up to incurables as a down payment for her new Summer home. https://t.co/BI8x7uvLS0
@lawhern1@lawhern1 I’ve done my homework and I didn’t misjudge her. I’m a street savvy new Yorker whose met and seen every type of personality. I know people don’t change without redemption. This is a fight for my very existence and I must choose wisely who I want speaking on my behalf.
@HeatherReeve5@lawhern1 I’m so sorry @HeatherReeve5 . I have severe to crisis Hypercalcemia, it’s highly fatal. People don’t realize what a socially limiting affliction No Sun Disease can be. It’s a deal breaker for society. I can’t remember an August without a medical crisis and I’m super careful.
@lawhern1@lawhern1 Darnell should have apologized to the worst sufferers with the most horrific diseases she’s mocked before anyone accepted her. Poked with a pretend stick. My liver turned to stone. My lungs too and spontaneously collapsed. Sorry my perspective on suffering runs deeper.
@lawhern1 I’m not asking for a gold star or pity but Darnell is when anyone confronts her with her own words and audio. What have we become when a healthy suspicious “Johnny Come Lately” is cared about more then one of the few rare and orphan diseases activists who fights as hard as I do.
@lawhern1@lawhern1 I cannot metabolize sunlight and life alone in isolation and darkness. I’ve had vital organ calcification twice. I’ve mimic cirrhosis, TB, Lymphoma, syphilis, fatal ILD and now my aorta is calcifying. If advocates want to “safe space” someone deserving I’m right here.